How I control my Rosacea

[MissD]

Originally Posted by drums

Dear MissD,
Probably not recently but I have in previous posts so as a new member its easy to see why i may seem to be not up to your speed. If you had read some previous ones you would find derms are the last people i would seek help from but then on the other hand recently my views have been received mostly with some scepticism and even ridiculed by some dog loving male moderator so much so that it would not be fair for me to express my feelings.

Drums, unless you are a doctor and have received medical training I see no reason why anyone should believe a word you say.

Anyway if it makes you feel happy in the majority all animal fats and hydrogenated but its possible you could have missed the whole point which is if humans eat fats it immediately begins to activate a unstoppable process that from thereon an individual has totally no control over and it will not stop until the fat has been excreated from the body.
One has to realise all secretions manufactured in your body has a fat part. If the part of the fat one eats is to be manufactured for sebum production the genetic key to unlock its exit point route and destination will be added somewhere in its manufacture possibly in the liver but it begins with eating and digestion

This makes no sense whatsoever. Fats serve many purposes and eating them (the good fats anyway ie essential fatty acids) are absolutely essential to health. They protect organs, promote healthy skin and nails, and I have never heard of fat being excreted from the body so I'd like to see your sources on that. In fact, I'd like to see your sources on your first post made in this thread too.

Anyway just to add for you to think about, before a close person went through the monopause this person would sweat in certain places. After the menopause was complete this person no longer sweated in these places at all but now she does sweat from places never before.
Is it because the womb no longer requires the previous fats to use and her body's fat processing has changed the aforementioned codes.
Heavy stuff hey?.
Must go!

It's called hormones.

So far, you seem like nothing more than an armchair "expert" who came to an unfounded conclusion based on one person and Google.

[phlika29]

As drums has pointed out he has very specific personal ideas as to the cause of rosacea. Whilst diversity of views/opinions is acceptable the moderators have in the past needed to point out that these views are wholly personal.

[MissD]

Originally Posted by phlika29

As drums has pointed out he has very specific personal ideas as to the cause of rosacea. Whilst diversity of views/opinions is acceptable the moderators have in the past needed to point out that these views are wholly personal.

I see - but it comes across as though he's playing expert which is a bit irritating.

[travellingpete]

Originally Posted by Mistica

70 F = 21 C is a cold day here LOL.

Which is why I wanted to get some clarification of what you and others referred to as 'warm'.

If that is warm, what do you define as cold?

73 F = 23 C, which is a coolish day here.

77 F = 25 C, which is roughly what temp our house is, with air con running. To turn it off would be to die, especially in the summer.

81 F = 27 I start melt down at this point.

86 F = 30 I am really struggling. And of course, humidity makes it so much worse.
Sweating doesn't allow skin cooling as the air is already near saturation.

108 F = 42 I am layed out on the tiled floor.

113 F = 45 Absolutely unbearable, even with air con running. It only cools so many degrees below.

In summary, it appears that cool, warm, hot is all relative, depending on where we live.
Your warm is a cold day to me.
My cool is a hot day to you.

People go to the mall for a day's outing here, simply to cool off.

Hi Mistica

I think it would be good if Rosaceans could migrate every year. How about winters in Brisbane then down to Tassie for summer?

Pete

[J-Mill]

Originally Posted by MissD

I see - but it comes across as though he's playing expert which is a bit irritating.

Drum's "cured" his "Rosacea" and now spreads the gospel around to those that want to try it. He has been spouted this consistently for years. I will give him this, he is committed.

His viewpoint has actually moderated in recent times and he has stopped trying to sound scientific because when he has posted specifics of his ideas they completely fall apart. Generally he just refuses to post specifics. Generally people stop paying attention when he blames them for contracting Rosacea (why or why did we move out of Africa, damn you plate shifting!!)

Have a look at this thread from last year where he suggested a link between Rosacea and toxemia: http://rosaceagroup.org/The_Rosacea_...t=15094&page=2


Anyway, I have always credited him with at least pushing ideas that are relatively low risk and don't cost much. Although recent posts about heating one's face up, I think prior to heating, have me rethinking this.

It's no more nutty than many of the odder treatments mentioned on here. I can tell you this much, I would use "Drums Therapy" before I flew to the Ukraine to give some mysterious "doctor" my money to give me a harsh 4 month chemical peel (refusing of course to tell me exactly what is in the chemicals) to cure "redness". I would likely also try it before injecting myself with a drug that has not been proven to be safe and it not approved by any regulatory body.

This is the exchanging of ideas we tolerate in order to actually get useful information out there, freedom of speech is a bitch.

[Jason1984]

I used to have one or two intense flushes every day in particular my nose would burn, swell and redden. I couldnt figure out why my flushing was getting worse, then i realised it started getting worse from hte time i started carrying around a drink bottle of water to put cold water constantly on my face.

Then afte christmas i had had enought and decided to try Colins techinues. and i can truly say i have been "intense" flush free since the 27th december last year. I get a little pinkish sometimes but i would say its about a 2/10 at worst instead of my flushing before whihc was about a 9/10.

I have not looked back. i have control over my flushing now, and have improved my quality of life greatly, i no longer fear the warm lecture theatres or warm bars/restaurants.

I havent been able to keep up to date on this forum lately as i have started back at my second year at uni doing a commerce deagree and hopefully being an accountant and ive had so many tests, exams and assignments.

Well if anyone has any questions regarding this technique just ask away?

It truly does work you just have to give it a weeks trial, what have you got to loose??

Thanks,

Jason

[GJ]

The kernel of Drums' thesis - that some rosaceans seem to be facially anhydrotic - is of considerable interest. It is has been noted by those wearing white coats.

To peremptorily dismiss an opinion, on a board populated entirely by laymen, simply because it does not originate from a doctor, is peculiar and unfortunate.

Placing undue, unthinking, slavish faith in doctors will lead to harm rather more readily, rather more certainly than entertaining the quirkily perceptive thoughts of a delightful Northerner.

Many folk here have used red light therapy for years. Only now are a handful of doctors beginning to concede that it may be useful; a concession rendered, it might be noted, in spite of an absence of worthwhile studies.

Doctors are slow; the science that dictates the scope of their actions is often slow. You will find incompetence amongst doctors just as readily as you find it amongst teachers or plumbers. You will find too that the science upon which they depend is sometimes just plain wrong.

It takes a rather special sort of arrogance to cheerfully reflect upon the inaccuracies and crudities of yesteryear's science while not allowing that today's sallies might be similarly regarded a few generations hence.

Science is, broadly speaking, a tremendous thing. A good deal of the time you may depend upon it for wise counsel. But the last thing science needs are disciples who are blind to its limitations. The first thing it needs are challenges.

Keep up the good work, Drums.

[MissD]

GJ, I do not trust "blindly" in doctors. As an example, my dermatologist wants me to go through a glycolic acid peel which I refuse to do since glycolic acid is what sent my rosacea flaring in the first place. But I trust him because he is the one that is doing my laser treatments and it went absolutely wonderfully. He's nice and genuinely cares as a bonus. I also trust my general practician because when I went to see her for my flushing, she did what many general doctors would miss: suggested I may have rosacea, prescribed me Metrogel and referred me to the derm.

My trust is not blind, it's very well founded. Why? Because doctors have went through literally years of medical school, exams, interviews and stress to get where they are today, all for the love of studying the human body and helping people.

On the other hand, people like Drums base their "expertise" on nothing but personal experience and Google whilst misinforming other people, perhaps even keeping them from getting the actual help they deserve from medical professionals. Drums in particular is even suggesting we are responsible for causing our rosacea by somehow consuming fat and acid, which is completely unfounded and bogus. Still, people who know even less about the human body than Drums could believe it and place blame on themselves. I'm just glad he hasn't claimed he cured cancer by avoiding eating cooked food or some such nonsense because at the very least rosacea isn't fatal (but can certainly be devastating).

As far as I know Drums isn't challenging anything and refuses to deal with dermatologists about his supposed new-found knowledge. So how do you expect them to acknowledge it? They aren't mind-readers. Science was founded on peer-review, not going around the internet touting ridiculous claims. And while scientists have bee wrong in the past, it is this same peer-review that keeps it going forward to correct those mistakes. If it was stagnant we'd be in trouble.

What's peculiar and unfortunate is believing a random person on the internet with no medical training whatsoever. That doesn't mean I completely dismiss anything anyone has to say - I did try the method being discussed in this thread, after all, and it does help. It helps better than I expected, actually. But there is no way I am going to trust people like Drums when they, as I said before, haven't a clue on how the human body works. I know I don't know even half of the things about it nor do I pretend to, but I sure as hell know that rosacea isn't caused by eating fat or have a link to toxemia .

If you want to trust him and others like him then fine, more power to you, but I'd rather leave health issues like this to people who base their learning on years of hard work and evidence-based medicine.

I apologize for this thread getting derailed so badly, by the way. So to push it back on the tracks a bit, I will say that by not sitting under or in front of a fan all the time, I now no longer flush when I lay down and that used to be one of my biggest triggers. Let's hope that the flushing won't ever come back in a vengeance.

[J-Mill]

Originally Posted by GJ

The kernel of Drums' thesis - that some rosaceans seem to be facially anhydrotic - is of considerable interest. It is has been noted by those wearing white coats.

To peremptorily dismiss an opinion, on a board populated entirely by laymen, simply because it does not originate from a doctor, is peculiar and unfortunate.

Placing undue, unthinking, slavish faith in doctors will lead to harm rather more readily, rather more certainly than entertaining the quirkily perceptive thoughts of a delightful Northerner.

Many folk here have used red light therapy for years. Only now are a handful of doctors beginning to concede that it may be useful; a concession rendered, it might be noted, in spite of an absence of worthwhile studies.

Doctors are slow; the science that dictates the scope of their actions is often slow. You will find incompetence amongst doctors just as readily as you find it amongst teachers or plumbers. You will find too that the science upon which they depend is sometimes just plain wrong.

It takes a rather special sort of arrogance to cheerfully reflect upon the inaccuracies and crudities of yesteryear's science while not allowing that today's sallies might be similarly regarded a few generations hence.

Science is, broadly speaking, a tremendous thing. A good deal of the time you may depend upon it for wise counsel. But the last thing science needs are disciples who are blind to its limitations. The first thing it needs are challenges.

Keep up the good work, Drums.

This board is a beacon of bad information lately.

Red light therapy was of interest of dermatologists a loooonnnngggg time before people on this board were discussing it. They have been studying it for at least 15 years now, perhaps longer.

As for Drums' idea linking Rosacea and the inability to sweat (I will call it this to appear less arrogant) this is not a new idea either. It is the ridiculous scope of the idea and additional elements Drums added to it that make it ridiculous. Of course if you lack the ability to sweat (some people do, it is a malfunction of the sympathetic system) you may have blushing associated with your inability to properly cool you body/face. This is something doctors have also been aware of for a long time, it is essentially the reverse of why people get ETS surgery (the sympathetic system is overactive and causes excess blushing and sweating).

To say however that all Rosacea is caused by this (which Drums has) or that it is linked to toxemia (which Drums has) or speaking of toxic sweat precursors (which Drums has), etc., etc., etc. is absolute nonsense. It is incorrect to even call this "Rosacea". This is a problem with the sympathetic nervous system. Correct that problem and your "redness" will go away (and you regain the ability to sweat). Time and time again Drums has refused to acknowledge the reality of this situation and has come on here and blamed people for having Rosacea which has not been tolerated well by the community here, though I can't imagine why. He has insisted that all Rosacea is linked to this, which is patently false.

So while I agree with you that only a fool would not accede the limitations of doctors and science in general, I would argue that a greater fool would pat people on the back for going around and spreading nonsense just because at the core of that nonsense, lies a kernal of twisted truth...yes the medical inability to sweat can cause redness and blushing....no it is nothing new....no it is not Rosacea (though it may overlap)....yes overwhelming Rosaceans sweat, and sweat proudly.

Yes, keep up the good work here, what is next, someone is going to tell us that Rosaea might have a connection to demodex mites or some other theory out of the available literature that has been around for decades.

This I think has more to do with the need for people to feel important than their desire to help others.

[phlika29]

Well this has been a very interesting debate but as Miss D pointed out we have strayed vastly off topic.

These are the points that I think we can take from this discussion

People have diverse views on rosacea and the causes of rosacea
If people are talking about their opinion that they should make it clear that it is just that.
Active debate is to be expected.