Cured....?

[lamarr]

Well what can i say, i haven't been on this forum in over a month. I no longer have rosacea....

Mepacrine is what has cured me, when i say cured i mean so long as i stay on the mepacrine i will remain rosacea free. Swelling on my nose is completely gone, the flushing is completely gone and i just blush occassionally. Just had a hot bath and came out pretty normal looking.

It took a few months and things continue to improve because i do still have some slight redness.

I am using light therapy to heal the remaining damaged vessels. 590nm, 660nm and 880nm wavelength, i use them all several times per week.


Let me just say it is amazing how much rosacea effects your life and sometimes you don't realise just how much until you are rosacea free again. 3 months ago i had to live infront of moving air. Now i can sit in stuffy rooms while being questioned infront of a whole lecture class at university.

Keep looking for answers people, i had to ask my derm for the mepacrine, although he did say it would of been what he would of used on my next anyhow...

I still take remeron, propranolol and clonidine, but i am stopping the clonidine and propranolol. I actually really like the effect the propranolol has on social anxiety, i can now go out clubbing and not need to drink (i can't drink because of the drugs anyway) but i still have plenty of confidence and can actually dance and not give a crap lol.

When you get over your rosacea it will of made you a much more patient and understanding person. Belive me.

Best wishes,

Mark

[Brighteyes]

Thats great Mark! Can you tell us a little more about Mepacrine - I've never heard of this treatment option before. Are you using it to erradicate parasites or off-label use? I guess I'm asking how it's supposed to help rosacea? Thanks.

[Brady Barrows]

Mark,

Never heard of this drug for rosacea before. I just checked Wikipedia about it and was redirected to Quinacrine (trade name: Atabrine).

http://en.wikipedia.org/wiki/Mepacrine

If you haven't read about the use of this synthetic drug and the controversy you might want to check it out. It is a good thing you are a male, but I wonder what it does to males over a long time use?

[Peter]

Hello Mark

That's excellent news and if it is going to work then Mepacrine can be very effective. The key to treating rosacea is to stick with a treatment that is obviously helping for a long period and then there is every possibility that you can nip its progression in the bud and even put the condition into remission.

We have discussed the use of Mepacrine in other threads and for those who are up to speed with rosacea and it's treatments, then although it's not always used as a first line option it can be useful for those where other drugs haven't helped.

http://www.rosaceagroup.org/The_Rosa...e+peter&page=2

http://www.rosaceagroup.org/The_Rosa...174#post198174

As we all well know all drugs can have side effects and people can react in different ways but I wasn't aware of any controversy with Mapacrine especially after I discussed it's use for rosacea with Dr Tony Chu. From what I understand on the dosage usually prescribed for rosacea then the main side effect is a slight yellowing of the skin (disappears when the drug is stopped) and in very rare cases it can effect the eyes. If you are seeing a dermatologist experienced in it's use and who will monitor you on a regular basis, then it might be a good choice for you.

Good luck with the light therapy as well Mark - always pleased to hear about people having success with this.

Thanks

Peter

[Brady Barrows]

Originally Posted by Peter

Hello Mark

That's excellent news and if it is going to work then Mepacrine can be very effective. The key to treating rosacea is to stick with a treatment that is obviously helping for a long period and then there is every possibility that you can nip its progression in the bud and even put the condition into remission.

We have discussed the use of Mepacrine in other threads and for those who are up to speed with rosacea and it's treatments, then although it's not always used as a first line option it can be useful for those where other drugs haven't helped.

http://www.rosaceagroup.org/The_Rosa...e+peter&page=2

http://www.rosaceagroup.org/The_Rosa...174#post198174

As we all well know all drugs can have side effects and people can react in different ways but I wasn't aware of any controversy with Mapacrine especially after I discussed it's use for rosacea with Dr Tony Chu. From what I understand on the dosage usually prescribed for rosacea then the main side effect is a slight yellowing of the skin (disappears when the drug is stopped) and in very rare cases it can effect the eyes. If you are seeing a dermatologist experienced in it's use and who will monitor you on a regular basis, then it might be a good choice for you.

Good luck with the light therapy as well Mark - always pleased to hear about people having success with this.

Thanks

Peter

Thanks for the links to the discussion on Mepacrine. I will use the information of the medical articles you cite on Mepacrine and rosacea on my page for Mepacrine. Very helpful of you. The controversy on Mepacrine is discussed at Wikipedia:

http://en.wikipedia.org/wiki/Mepacri..._sterilization

Obviously it doesn't have anything to do with rosacea, but nevertheless, a controversy.

[DJC]

great new lamarr.

Has your ocular rosacea disappeared too?

[phlika29]

Great news Lamarr. I am going to ask dr chu about it when I see him in early january

[Melissa W]

That is wonderful lamarr
I am hoping that it comes to the states soon so I can ask my derm about it as well.

Best wishes for continued success!

Melissa

[Brady Barrows]

This discussion stimulated me to do some research on Mepacrine for rosacea and there seems to be no other studies done on Mepacrine for rosacea other than the four reports already mentioned:

In 1955 (two reports), 1962 and 1964. Obviously since physicians are still prescribing Mepacrine for rosacea there should be further studies done on this but I can not find any. If anyone knows of more recent studies published, that would be helpful. I wrote my page on Mepacrine at this url:

http://tinyurl.com/7hlb9v

[cbebe28]

what kind of rosacea did you have?