SD - Why is it so hard to budge?

[IH8_SD]

You know what really pisses me off? We can send people to the moon, build machines that break the sound barrier etc. but we can't cure seb derm (or rosacea for that matter). It's completely ridiculous. I know that people are going to say 'it's because skin diseases aren't life threatening' - bullshit. I have seb derm, and it is ruining my life. Many people are far more worse off than me, and they are probably more depressed.

Show of hands/posts - who looks at people with simply normal skin and just wishes that there's was even close to that? Not jealousy or envy, but just wishing to once again experience the self confidence of one that looks 'normal'.

It hurts right? Well maybe it's time that the medical profession started taking this more seriously, started looking at people with skin diseases and realise that they live in physical and emotional pain every day. Companies need to stop thinking bout the $$$ and go back to the original point of medical therapy - to heal.

I know this may seem like a pointless thread, but it helps to rant sometimes to people who get it you know?

Please feel free to add your own rant!

[Judworth]

Originally Posted by IH8_SD

You know what really pisses me off? We can send people to the moon, build machines that break the sound barrier etc. but we can't cure seb derm (or rosacea for that matter). It's completely ridiculous. I know that people are going to say 'it's because skin diseases aren't life threatening' - bullshit. I have seb derm, and it is ruining my life. Many people are far more worse off than me, and they are probably more depressed.

Show of hands/posts - who looks at people with simply normal skin and just wishes that there's was even close to that? Not jealousy or envy, but just wishing to once again experience the self confidence of one that looks 'normal'.

It hurts right? Well maybe it's time that the medical profession started taking this more seriously, started looking at people with skin diseases and realise that they live in physical and emotional pain every day. Companies need to stop thinking bout the $$$ and go back to the original point of medical therapy - to heal.

I know this may seem like a pointless thread, but it helps to rant sometimes to people who get it you know?

Please feel free to add your own rant!

Hello

Totally agree!

I have suffered for 7 yrs with rosacea, everyday it plays out it's own little drama
just when you think you have gained some sort of control.............along comes yet
another issue!
I have given up on Dr's & derms (infact my guess is that they don't even have rosacea
down on my notes).........I haven't been back since my diagnosis!

This is certainly NOT a pointless thread; we have every right to be p***** off!
Our skin hurts, it's sore, unpredictable, annoying, red, dry.inflamed..............

(Goodness I feel better for that!).

I have my hand held high too! Although just wishing hasn't got me anywhere so far!

Still, we have no choice but to continue to try all sorts of meds,topicals,supplements &
therapies!

Good luck to us all!

Jx

[Snegovik]

I do agree. But let us hope that Summit in UK will change this with their SMT D002 when the new meds are ready.

http://www.summitplc.com/SMTD002.htm

It is said to be as effective as accutane, but without the serious side effects.

[Benjamin]

the site says 2007, so its been a while with no news.

[MasK]

I've read somewhere that the market of the products (cosmetics, make ups, lotions, laser treatments, and many other stuff) to cover redness and acne has exploded since some years. Like 700 times more than 5 years ago or something.
Who wants to find a cure? Certainly not the people who earn money with that products.

[Snegovik]

Originally Posted by Benjamin

the site says 2007, so its been a while with no news.

Not really. The manager said to the british media that the meds will not be ready before earliest 2012. The meds already proved very succesful. They will check out the possibility for both topical and oral meds.

Let us hope they are on to something. 2012 is not that far ahead.

[Snegovik]

Originally Posted by MasK

I've read somewhere that the market of the products (cosmetics, make ups, lotions, laser treatments, and many other stuff) to cover redness and acne has exploded since some years. Like 700 times more than 5 years ago or something.
Who wants to find a cure? Certainly not the people who earn money with that products.

Well, some make a cream that cover redness. But there are more serious docs who does research in hospitals etc. Like in Europe were the healthcare is mainly sponsored by the goverment, and the scientists are paid by the tax payers. They don`t work on make up or creams. I honestly doubt that those who do would have the intelligence and knowledge to find a cure for rosacea or seb derm anyway.

And for the private companies who are serious enough to work on it, they would be billionares if they found a cure or good treatment, and would not give a damn if they sent all the cream or laser scientists down the drain. The producer of accutane for example. You think they considered to make antiredness creams instead and take accutane of the marked?

[MasK]

Originally Posted by Snegovik

Well, some make a cream that cover redness. But there are more serious docs who does research in hospitals etc. Like in Europe were the healthcare is mainly sponsored by the goverment, and the scientists are paid by the tax payers. They don`t work on make up or creams. I honestly doubt that those who do would have the intelligence and knowledge to find a cure for rosacea or seb derm anyway.

And for the private companies who are serious enough to work on it, they would be billionares if they found a cure or good treatment, and would not give a damn if they sent all the cream or laser scientists down the drain. The producer of accutane for example. You think they considered to make antiredness creams instead and take accutane of the marked?

I'm from Europe. Here, the labos are sponsoring governments, like everywhere else They have sold a new flu to the world lol. I'm joking... maybe.
But I really think that it's better (for them) not to cure skin diseases, because it is "not" life threatening, so ppl can buy drugs and creams that don't cure anything all their life.
But I'm angry against theses drugs I took that made me so sick (like accutane, the "best seller" drug "against" acne), so maybe I'm a bit too strict in my thinking.

[Mistica]

Originally Posted by MasK

But I really think that it's better (for them) not to cure skin diseases, because it is "not" life threatening, so ppl can buy drugs and creams that don't cure anything all their life.

I would agree with that.
I have a friend who is very much into conspiracy theories and for many years I laughed at him as he always seemed to find an ulterior motive for everything. I didn't really pay much attention to what he was talking about as his areas of interest weren't mine.
Then I started researching medicine and became increasing horrified by what I found.
The health industry is primarily about making money with concern for actual health coming in second place. Ok, this does not apply to many doctors who work hard at saving peoples lives. It applies to the pharmaceutical companies. There are doctors who have a vested interest in their products though.
Most ( maybe all) of the research being done for rosacea is aimed at suppressing symptoms by way of long term use of drugs.

Not long ago, I watched a documentary about antidepressants, particularly paxil. It is marketed as being safe and a quick fix for a minor episode of the blues. No one should be given such medication for 'the blues' or a response to a natural situation, such as experiencing grief. Yet, doctors hand them over like candy. Paxil is addictive and very few people manage to get off it. It can be dangerous too, creating more symptoms for which other medication is needed.This all spells huge profits for the pharmaceutical industry. It is being pushed on kids who don't need it.
Ok, I have veered off track, but the point is, I don't believe rosaceans should be expecting any miracle cure any time soon. Not from the pharmaceutical companies.
According to many scientists, many of our diseases are caused by diet and cryptic bacteria and who wants to be told that? Alter our lifestyles and take antibiotics? There is little money in that.

[Erikson]

Originally Posted by Mistica

I would agree with that.
I have a friend who is very much into conspiracy theories and for many years I laughed at him as he always seemed to find an ulterior motive for everything. I didn't really pay much attention to what he was talking about as his areas of interest weren't mine.
Then I started researching medicine and became increasing horrified by what I found.
The health industry is primarily about making money with concern for actual health coming in second place. Ok, this does not apply to many doctors who work hard at saving peoples lives. It applies to the pharmaceutical companies. There are doctors who have a vested interest in their products though.
Most ( maybe all) of the research being done for rosacea is aimed at suppressing symptoms by way of long term use of drugs.

Not long ago, I watched a documentary about antidepressants, particularly paxil. It is marketed as being safe and a quick fix for a minor episode of the blues. No one should be given such medication for 'the blues' or a response to a natural situation, such as experiencing grief. Yet, doctors hand them over like candy. Paxil is addictive and very few people manage to get off it. It can be dangerous too, creating more symptoms for which other medication is needed.This all spells huge profits for the pharmaceutical industry. It is being pushed on kids who don't need it.
Ok, I have veered off track, but the point is, I don't believe rosaceans should be expecting any miracle cure any time soon. Not from the pharmaceutical companies.
According to many scientists, many of our diseases are caused by diet and cryptic bacteria and who wants to be told that? Alter our lifestyles and take antibiotics? There is little money in that.

Just thinking about it makes me puke!!! That could be the truth!!! I try not to think about it but I still get mad!!