Who has had Vitamin D Levels Checked?

[DJC]

Originally Posted by Mistica

Dan initially underwent the triple antibiotic protocol for Cpn for rosacea and other health issues.
He improved a lot all round, but found he had plateaued. After much research and discussions with certain doctors, he switched over to high dose vitamin D therapy instead.
Side effects were seen all over again, but not as extreme as with the antibiotic therapy.
After a long and rocky ride, he found his rosacea fading away completely.

Delighted with his success and certain the same could be achieved without the triple antibiotic route, he advised his father, also a rosacean, to supplement with high doses of vitamin D. His rosacea faded away over the course of about a year.

Dan's took longer to go away as he was severe.

I too have a severe case and it is a rocky ride.

Dan also does FIR sauna therapy. His father doesn't.

In order for dramatic improvements to be seen, the serum blood levels have to reach around 100ng/mL and have to be maintained for a long period of time.

Mine are currently 71ng/mL and while significantly improved I have a long way to go.

Are you thinking about going this route?

Great reply Mistica, thank you very much!

I am already taking Vitamin D3. Have only been on it for about 2 months now. First month I took 20,000IU per day( I was very Vitamin D deficient). Second month I dropped down to 10,000IU per day and am I still on that dose in my third month.

I ahve read alot about Vitamin D on the Vitamin D Council website and on Dr Mercola's website. Dr Mercola seem to be of the belief that optimal levels are around 50-60ng/ml. Anthing above that gets toxic.

What do you have to say about that? He certainly thinks 100ng/ml is toxic levels.

I havent notice a difference in my Rosacea yet that I can tell. But my levels were extremely low. And I know it can take a little while for your body to start storing Vitamin D away and your levels to build up.

I will try and get some blood tests done. I am not sure if its healthy to try and get my levels to 100ng/ml though.

[Mistica]

Hi DJC,

Wow! 20,000IU all in one hit. Did you suffer any side effects? Flu type symptoms etc?
What about an exacerbation of rosacea symptoms, such as increased flushing, redness, inflammation etc?

I reacted to 1000IU! It has taken me months to work up to 7400IU. Initially I ramped up the dose quickly to 9400IU and paid for it dearly, even though I didn't think I was going to based on tolerated reactions to 1000IU and then 2000IU. I had to drop back.

I don't know what to say about the fact you have not noticed any improvements yet. How bad is your rosacea?
Dan is the expert on all this. Hopefully he will see your post and offer some thoughts.

I was very deficient too and have found significant improvements since dosing with D3. Compared to normal people though, I am still in really bad shape and have to wonder if vitamin D will ever truly free me from this debilitating disease.
My serum levels when tested a few weeks ago were 71ng/mL. I feel better in general too.

Based on what I have read together with what Dan has told us, healthy bodies do well on levels between 50 - 80, but those with diseases require much higher levels and 100ng/mL is considered the point where the internal battle on cryptic bacteria can effectively take place.

Some doctors/scientists feel that those with cancer, such as breast cancer might need to go even higher. I think 120ng/mL is the more realistic level at which toxicity can set in.
However, I feel it is always wise to have regular blood tests along the way to make sure everything is in order. Individual needs and tolerability may differ.

I still hold the fear that too much vitamin D may cause immunosuppression, but when discussing this with my biochemist mentor, he seemed to feel that if suppression were occuring, I wouldn't be experiencing the exacerbations in rosacea symptoms at each dose increase. The fact I do get worse each time, followed by an improvement, suggests to him that the immune system has been stimulated to kill 'something'. Most likely cryptic bacteria in the facial tissues. He is sure the gut is involved as well.
This all sounds credible, but when I hear about cases such as yours and Trent's who also hasn't experienced any kind of 'die off", I start to wonder, if A) rosacea is more than one disease, which is not a new idea, or, B) it might be one main disease, with additional ones on the top. Such as cryptic bacteria entering the scene at some point in certain individuals.
Who knows for sure, but I wish somebody did!

It is recommended to take magnesium and zinc along with vitamin D. In addition I also take a multi, which contains 2500IU of vitamin A.

Are you undertaking any other kind of therapy at the same time? Such as oral antibiotics, low carb diet etc?

[lh76]

Hi all,

i am currently taking D3 for 5 months, 10 000ui per day and really don t know wether my skin is better. Sometimes i find my skin looks good and sometimes not, especially for two weeks, since i have added magnesium. i thought D3 could be a solution to my skin problem but now i have a lot of doubt. i don t know what i can think because exept Dan we haven t any exemple of people who have really improve their condition with D3 and the results on my skin are not really positives.

good luck to everybody

[Mistica]

Originally Posted by lh76

Hi all,

i am currently taking D3 for 5 months, 10 000ui per day and really don t know wether my skin is better. Sometimes i find my skin looks good and sometimes not, especially for two weeks, since i have added magnesium. i thought D3 could be a solution to my skin problem but now i have a lot of doubt. i don t know what i can think because exept Dan we haven t any exemple of people who have really improve their condition with D3 and the results on my skin are not really positives.

good luck to everybody

Hi,

I am sorry you have not improved at all. You are right, we only have Dan and his father to look to as examples and Vitamin D3 can not be accepted as a treatment until many others have benefited as well.

Personally I have improved, but I wonder if this is as good as it will get? I can only continue and see what happens.
Perhaps 10,000 is too much to take initially? I don't really know.
While I had a reduction in flushing and swelling early on into treatment, I didn't stop having reactions at 6400IU until around 5 and a half months. When I increased my dose by 1000IU I became worse again, but not as bad as before taking vitamin D.
My face was terribly inflamed and so sore. It is nice to be without this, most of the time. I still get bouts, but it isn't day in day out as it was. So for me, Vitamin D has helped, but as I said, will this be it?

Dan seems to think it will take one year at least before true improvements are seen, but I can understand how doubt can set in if no improvements at all are seen after five months into treatment. This certainly casts doubt.

Did you experience any side effects from the high doses?

[Mistica]

Do you have any thoughts on these latest posters experiences?

Also, during your worst days could you eat egg?
I know it is terribly high in sulphur, but then I eat a few onion pieces on my meals with no obvious problem. Eggs are another matter.

Oddly, I use topical sulphur which I find beneficial. It is all so contrary.

I am giving your topical more consideration again, as I wonder if caffeine will help prevent my visible capillaries from worsening. I wish it was easy to get products over here. You American dwellers have a much wider choice and easier access to them.
Salicylic acid has helped in some ways, but long term it may not be a good thing being a cox 2 inhibitor. It could be starving my skin due to NO inhibition, which could result in angiogenesis. So, immediate affects are reduction of hyper flushing, but long term, possibly, increased redness.

[iDan]

Hi Mistica,

I seemed to have some allergies to egg when I was at my worst, but this cleared some time ago...

Studies now suggest that toxicity does not occur until somewhere over 150ng/mL. See Table 5 on page 13 in the article below for more on this:

Vitamin D in Clinical Practice

Also, as I've mentioned before, studies suggest Magnesium may play an important role in Vitamin D metabolism and perhaps even proper Vitamin D Receptor (VDR) formation. Studies also seem to suggest that magnesium deficiency may lead to Vitamin D resistance:

Vitamin D3 and the Importance of Magnesium

So it really makes sense to try supplementing with magnesium if Vit D3 alone does not seem to provide any benefit. The same goes for zinc:

Vitamin D3 and the Importance of Zinc

Hope this helps...Good luck all!

[MasK]

Originally Posted by iDan

Hi Mistica,

I seemed to have some allergies to egg when I was at my worst, but this cleared some time ago...

Studies now suggest that toxicity does not occur until somewhere over 150ng/mL. See Table 5 on page 13 in the article below for more on this:

Vitamin D in Clinical Practice

Also, as I've mentioned before, studies suggest Magnesium may play an important role in Vitamin D metabolism and perhaps even proper Vitamin D Receptor (VDR) formation. Studies also seem to suggest that magnesium deficiency may lead to Vitamin D resistance:

Vitamin D3 and the Importance of Magnesium

So it really makes sense to try supplementing with magnesium if Vit D3 alone does not seem to provide any benefit. The same goes for zinc:

Vitamin D3 and the Importance of Zinc

Hope this helps...Good luck all!

Interesting, since I have also probs with magnesium. In fact too much magnesium pass in my urine, so I take 6x87mg a day (prescription made by the doc). I think I will make a blood test to see some values (zinc, vit D,...).

[tp912]

I haven't posted in a while but I have been keeping up with the thread. Two weeks ago I increased my intake from 6000iu to 8000iu and added 250mg of magnesium. Everything seemed to be fine for a little over a week, but the last few days have been rough. My skin hasn't been this bad since I started going by the warm room protocol.

In a way I am somewhat glad, though, im really not at all. It is nice to know that I am having the same reaction finally with supplementing the D3, as others are. In a way it lets me know that this may be a treatment that will work for me, as before, I didn't know if my rosacea was not similiar to others since I didnt' experience the same effects.

Anyway.. I may back off of the magnesium for now, but continue at 8000iu per day. My face is on fire right now

Glad to hear things have calmed down for you Mistica

[Mistica]

Originally Posted by tp912

I haven't posted in a while but I have been keeping up with the thread. Two weeks ago I increased my intake from 6000iu to 8000iu and added 250mg of magnesium. Everything seemed to be fine for a little over a week, but the last few days have been rough. My skin hasn't been this bad since I started going by the warm room protocol.

In a way I am somewhat glad, though, im really not at all. It is nice to know that I am having the same reaction finally with supplementing the D3, as others are. In a way it lets me know that this may be a treatment that will work for me, as before, I didn't know if my rosacea was not similiar to others since I didnt' experience the same effects.

Anyway.. I may back off of the magnesium for now, but continue at 8000iu per day. My face is on fire right now

Glad to hear things have calmed down for you Mistica

Hi Trent,

Sorry to hear about the inferno face. Hopefully it will calm down soon.
I recently increased my dose to 8400IU ( from 7400IU). As usual, things heated up, but I have been finding the following helpful. I stay at the increased dose for a few days and when I feel things getting a bit too much, I drop the dose back down again for a few days. It allows all the inflammation which has built up to drain away. With this method, I am finding my recent increase much easier to handle.
Once you have stabilised at the 8000IU, try adding in the magnesium again, but perhaps every second or third day initially.
I have just added zinc back into my regime and shall be following this method. Previously I simply tried to battle through, but this way seems smoother.

Have you noticed any improvements at all, even small ones, so far?

[lh76]

hi,

it is very difficult to say if i notice an improvement. sometimes my skin looks better, sometimes not. since the last two weeks my skin is worst, maybe because i was taking magnesium, that s why i have decided to stop it yesterday and today my skin is less red.
i become a little bit sceptic about this treatment but Dan gave me so many hopes and looks so sure of his treatment that i am goint to continue and see what happen.

bye