22nd August 2012 04:06 PM
Diagnosed yesterday -- bummed out today
Hi! I went to my GP yesterday thinking I was having an extreme bout of allergies and acne...and he diagnosed rosacea. My eyes are bloodshot, my eyelids are swollen, and I have terrible itching around my eyes and nose, and my tongue is sore. My skin is blotchy and red, and I do have acne and flaky skin, especially around my nose. I'm 58 and post-menopausal and I hate going to the doctor.
This morning I made an appointment with a dermatologist because I'd like a second opinion, and should it turn out I do have rosacea (or some other skin condition) I want the guidance of a specialist. Unfortunately I couldn't get an appointment until October. So, while I'm waiting, what do you all recommend I do as far as educating myself about rosacea, and self-care?
23rd August 2012 12:14 AM
I'm sorry you are going through this but I am glad you found us. There is a lot of info here so take it slowly and don't get overwhelmed. One day at a time.
Here is a link that gives a good overview of rosacea.
First I recommend (if you haven't already) finding a good sunscreen you can apply whenever you are going to be exposed to UV rays. Many rosaceans have sensitive skin and find that titanium dioxide and/or zinc oxide (physical sunblock) works best over the chemical sunscreens. Wearing a hat is also helpful in keeping cool and protected.
Diet plays a role in triggers so the key is finding what may be your trigger(s). That varies for each individual and it takes trial and error to find what might exacerbate your rosacea. Most people are sensitive to alcohol, spicy foods and hot (temp) food. But many avoid dairy, simple carbs etc. In the link I gave you there is a dietary section as well as lots of info here under lifestyle and diet.
Also it is best to go simple. Use minimum of topicals/makeup etc and treat your face gently. Take a look at our topical section and you will see what works for others and what doesn't. Everyone is different and much of finding what works for you comes through trial and error so patience is key.
We are here when you have questions and/or need support. Hang in there- one day at a time and you will find what works for you and you'll be OK.
23rd August 2012 07:17 AM
There is also a wealth of information at the RRDi.
23rd August 2012 12:46 PM
Thanks Brady for the link. I will definitely check that out.
Thanks Melissa for the encouragement and advice. Overwhelmed is definitely how I'm feeling right now. I found some interesting info on the forum that I think might be very useful, for example the histamine intolerance discussions and the discussions about food triggers. I have a long history of food problems. As an infant I had colic, and as a young adult I had colitis. In 1987 I was exposed to some chemicals at work which threw my immune system into overdrive and I developed severe allergies to a number of foods, aspirin, and NSAIDs. My allergist recommended that I completely avoid artificial food additives e.g. colorings, preservatives, etc. and I've eaten only all-natural foods, organic when possible, since then. My present mindset is "here we go again" because once more it seems that the instruction manual for how to take care of my body has been thrown out the window, and I have to retool and rethink little things like washing my face, what I eat and drink, and how I dress when I'm outdoors.
My GP prescribed Patanol and Metrogel, My insurance company is pushing back on the Patanol but hopefully he can convince them that I need this medication. Based on info I found on the forum I've started using Cetaphil, which is soothing but I wish it didn't contain fragrance. However my skin is still very oily in the T-zone and I'm not sure if it's safe for me to continue to use a clay mask to draw out the worst of the oil.
I think the thing that's thrown me for a loop most of all is that I don't fit the general profile for someone who would develop this disorder. I'm Jewish and my ancestry is Russian, Austrian, German and Hungarian. Although I'm fair-skinned I have brown hair, brown eyes, and an olive complexion that tans quickly and deeply. No one in my family has ever had rosacea. I don't like being the exception to the rule because it might mean that what works for most people with rosacea won't necessarily work for me.
Well, thanks for the opportunity to vent! I'm so glad I found this forum. There's so much amazing information here and I'm grateful for the people who've shared their experiences and successes.
23rd August 2012 07:59 PM