22nd May 2012 01:30 AM
Feeling pessimistic. Would appreciate supportive words, optimism, and/or advice.
People keep telling me, basically, that no matter what I do my eyes are going to get worse.
I have had ocular rosacea for only a month and wasn't even diagnosed until 2 weeks ago. This, after 7 years of dealing with facial rosacea. I have been swift and diligent in seeking treatment for my eyes. I do warm compresses twice daily and gentle lid scrubs with plain water (for mild blepharitis).*** I have not worn my contact lenses in a month. I am currently on day 6 of a month-long regimen of Doxycycline hyclate (100mg 2x daily) prescribed by my derm. Today, I saw my primary care physician, who visually inspected my eyes and eyelids and said that the insides of the lids actually look healthy and normal (no obviously clogged meibomian glands or anything like that).
Although I initially presented with recurrent styes (in my left eye) and mild bleph (in my right), I've managed, through the gentle regimen described above, to keep the styes at bay and reduce the severity of the bleph (which was already mild to begin with). My eyes are not bloodshot, irritated, or dry. They look "normal" except for the little bit of "eyelash dandruff" (bleph) which no one but me likely even notices.
In short, I was feeling optimistic.
Yet some people in some online forums basically keep telling me, in spite of this, that it's just going to get worse.
Does it inevitably HAVE to get WORSE??
I mean: I caught this within 2 weeks of onset, unlike my facial rosacea, which went undiagnosed for the first 2 years, and then not properly treated for a year after that.
I feel like people are ripping away any hope I have. I don't expect to be "cured"; I know this is chronic, just like my facial rosacea. But to just hear everyone say "You have no choice. It will get worse" is awful and demoralizing.
Please---if anyone has any words of encouragement to offer, or has lived with ocular for awhile and managed to keep it more or less "stable," I would appreciate it.
***I tried baby shampoo lid scrubs the 1st week, but these proved too harsh and gave me bloodshot/irritated/dry eyes, so I discontinued that and now, on the advice of my PCP, use just plain water.
22nd May 2012 06:39 AM
There aren't any clinical papers I am aware of that with treatment Ocular Rosacea gets worse. In fact, the opposite is usually the case, that you will usually see improvement. You might want to ask your physician about Topical Cyclosporine or Avermectin Milbemycin Eyewash. For more info click here.
22nd May 2012 11:03 AM