Bowel disease and rosacea

[Mistica]

This topic has been brought up several times, but I thought it might be worth a mention again.

Take a look at this old thread from a bowel disease forum.
So many patients have rosacea and or/flushing.

http://www.crohnsforum.com/showthread.php?t=6737

[Mistica]

http://www.gidoctor.net/client_files...s-Patients.pdf

Success stories of BD/rosacea patients who had significant success with Rifaximin.

I always find these studies odd, as the success rate doesn't match that of our rosacea community here. Ours is less, alas.

[MasK]

The success rate is dependant of the cause.
Rosacea has probably many causes, including hormonal and dietary.
BUT in patients with clear GI troubles (IBS, IBD, GERD, flatulence, bloating, ...) and immune compromised like AIDS, it seems clear to me that it is related.
Unfortunately, my GP do not want to try rifaximin...
I'm on oregano oil for some days along with digestive enzymes. Don't like that idea but I will give a try anyway.

[Mistica]

The success rate is dependant of the cause.
Rosacea has probably many causes, including hormonal and dietary.
BUT in patients with clear GI troubles (IBS, IBD, GERD, flatulence, bloating, ...) and immune compromised like AIDS, it seems clear to me that it is related.
Unfortunately, my GP do not want to try rifaximin...
I'm on oregano oil for some days along with digestive enzymes. Don't like that idea but I will give a try anyway.

Hi Mask,

I recently tried two capsules of oregano oil ( 100mg each) and they made me flush horribly. I wondered what your reaction to them is?
Also, for what reason are you taking them? Have you started to develop P&P's?

I developed a lot due to A) stress and lots of flushing. Over all deterioration. Plus my taking of Dr Ohirra's fermented probiotics. I know you favour fermented foods and I wondered if you have found that over time, this has worsened your symptoms in any way?
I am thinking of the overgrowth theory.

I am supposed to be trying the combination of rifaximin and vancomycin soon, with the aim to replace the gut based immune system with a transplant. I am rather weary of taking vancomycin.
It is the last resort and nothing has been decided yet.
It is a big step and I fear A) it might not work and B) it might cause other problems.

[MasK]

Hi Mask,

I recently tried two capsules of oregano oil ( 100mg each) and they made me flush horribly. I wondered what your reaction to them is?
Also, for what reason are you taking them? Have you started to develop P&P's?

I developed a lot due to A) stress and lots of flushing. Over all deterioration. Plus my taking of Dr Ohirra's fermented probiotics. I know you favour fermented foods and I wondered if you have found that over time, this has worsened your symptoms in any way?
I am thinking of the overgrowth theory.

I am supposed to be trying the combination of rifaximin and vancomycin soon, with the aim to replace the gut based immune system with a transplant. I am rather weary of taking vancomycin.
It is the last resort and nothing has been decided yet.
It is a big step and I fear A) it might not work and B) it might cause other problems.

My doc started me on oreganoil oil (5 drops two times a day, that was way too much, I had horrible side-effects including weakness, dizzyness, drops in BP, nausea, etc., switched to 2 drops two times a day, it's fine), because I have a pseudomonas aeruginosa infection in the gut, which prevents my beneficial flora to establish, despite probiotics use on the long run.
The problems is that the bacteria developped multi resistance to the antibiotics I took in my life, so we have to try other natural substances.
This is certainly what is causing my troubles, GI and hopefully skin.
I started recently to developp p&p on cheekbones, which is new for me. It happens every two months, lasting 3 o 4 days, very itching and I feel my skin "dirty" with a lot of sebum on it.
My BM are better now that I'm on digestive enzymes and oo. So I hope this will make a difference.

Regarding link between Crohn's and rosacea, I know a little girl who has both (only 12 years old ( ), and she felt better when I say to her that I also have these horrible flushes, alogn with the intestinal problems (though not Crohn in my case).

[Boiling_Point]

Sorry, i'm not too familar with all English-terms of things.
* Bowel disease you say, does that include many different diseases or is it a specific?
* When you say, GI, what do you mean with that?
* Is the problem SIBO somehow in the same "division" as these?

Thing is I have Ulceros Colitis and also constant red cheeks (Rosacea). And I haven't really thought about it until lately, that my whole situation with Rosacea probably is because of something internal, possibly because of the UC or it's medications and such. Will bring this up with my doctor for UC next time.

[MasK]

Sorry, i'm not too familar with all English-terms of things.
* Bowel disease you say, does that include many different diseases or is it a specific?
* When you say, GI, what do you mean with that?
* Is the problem SIBO somehow in the same "division" as these?

Thing is I have Ulceros Colitis and also constant red cheeks (Rosacea). And I haven't really thought about it until lately, that my whole situation with Rosacea probably is because of something internal, possibly because of the UC or it's medications and such. Will bring this up with my doctor for UC next time.

Bowel disease means (in my terms) all troubles specific to the bowel, including irritable bowel syndrome (IBS) or inflammatory bowel disease (Crohn's, ulcerative colitis,...).
GI = gastro-intestinal
SIBO = small intestine bacterial overgowth, when bacterias (pathogens, or beneficial) are found in the small intestine, where they don't have to be, causing troubles.

I'm not surprised that you have other problems along with UC. Your red cheeks are probably caused by UC. Did you try rifaximin?

[Boiling_Point]

Thanks!

Is there any way to test if I have SIBO?

No, I just read about Rifaximin actually and the doctors/derms over here have never mentioned it. I'm gonna bring it up with my doctor, though. I've read people getting rid of their Rosacea and bowel-problems in just 10 days with Rifaximin. It just sounds to good to be true to me...like a miracle-medication, haha! Are there any know side-effects of Rifaximin that are "dangerous"? If not, I don't see why I can't try it out.

[MasK]

Thanks!

Is there any way to test if I have SIBO?

No, I just read about Rifaximin actually and the doctors/derms over here have never mentioned it. I'm gonna bring it up with my doctor, though. I've read people getting rid of their Rosacea and bowel-problems in just 10 days with Rifaximin. It just sounds to good to be true to me...like a miracle-medication, haha! Are there any know side-effects of Rifaximin that are "dangerous"? If not, I don't see why I can't try it out.

There is a test for SIBO called the "breath-test", where you ingest a sugar that is fermented by bacterias in your intestine. This fermentation release hydrogen or methane (depends on the species of bacterias). They measure the amount of either gas and see if you have SIBO or not. This test is safe and effective.

There are side effects with antibiotics because they destroy the beneficial flora too. You need to take fermented foods and probiotic pills to restore the flora after the course.
It's not a miracle in my opinion. It's just destroying the cause of the issues, which is pathogens. But after that you need to restore the flora, otherwise you will need another course of antibiotics some months later, and lack of flora can cause a lot of troubles.

[Hoboman]

I've had Rosacea for many years and also have had Ulcerative Colitis for about 5 years.
My UC is in remission but the Rosacea came on really strong after I was diagnosed with UC.
I always thought that it was a side effect of UC medication.

My Rosacea is mostly just a lot of redness. It gets really bad after driving to work and my face has been in the sun. I have the windows tinted on all of my cars to and it helps.