Hi everyone - long post apologies,
I have been waiting a while to post this because I wanted to confirm what I was starting to come to understand. I have come to the conclusion that my rosacea is being caused by carbohydrates. I know this isn't news for many of you out there who have already come to realize this. But I have been paying close attention to my diet and no longer have any doubts. And I have been keeping track of everything I eat using a food diary.
I have read several posts on here regarding the carbohydrate link and diet changes so a few weeks ago I started a low-carb protein diet to see if I noticed any difference. I noticed that new p&ps stopped appearing within a day or two. So I stayed on this diet for a week. The redness was clearing up, the p&ps were going away. Definite signs of progress. Then I was prescribed doxycycline and started the first couple of days on a 200mg / day dosage, then moved to 100 mg / day. I was still no carbs for the first few days and found that I could go an entire day without using any topicals.
Then I started adding carbs back to see if I noticed a difference. New p&ps appeared the first night. The next morning new p&ps were starting so I cut the carbs mid-day and by the evening everything was clearing up again. The carbs are some sort of p&p on-off switch for me. I can completely shut off p&ps by taking carbs out of my diet. So far so good.
I saw the new derm earlier this week and he did the demodex test (negative) and took a blood sample. Because I am a new patient he is doing all the initial tests just to get an idea for my situation. I told him what I had noticed about the carbs. He noted that it could be a connection, but he wants to just see about my blood test first. Anyway I will follow through with him next week.
Then my rifaximin arrived in the mail. I stopped the doxy and started on the 10 day rifaximin experiment. This drug isn't available in Japan.
So back to the low carb / high protein diet. I am able to eat white rice. I tested this last night and this morning. No new p&ps with plain white rice (Japanese starchy type). Also, it seems like small servings of bell peppers / broccoli mixed with my meat / eggs is fine. Even cheese (cheddar) and yogurt seems to be ok at the moment. But what is questionable is oatmeal, maple syrup, peanut butter, and dried fruits. These are the carbs that I added back in to test if new p&ps would appear. So for now those are all out again. I am going to just add one back at a time and see if I can pinpoint which ones are causing trouble. Or maybe it is more to do with the amout eaten at any given time.
Now that I know this is carb related, which could still have a connection to SIBO, what if the rifaximin doesn't change anything? Do I start approaching this as some sort of carb intolerance? Does anyone know much about these types of food intolerances? Who should I discuss this with? Are there any cures for these things or am I just stuck with it?
I don't want to get too far ahead on this food intolerance possibility yet. I want to wait and see how the rifaximin does. So right now I am on day three. I haven't had any issues with the medication so far. I don't feel any better / worse.
P.S. regarding this rifaximin, does anyone know when I should add the probiotics into the mix? After I complete the 10 day course or during? Seems that the antibiotic will just kill any probiotics I add to my diet right now.