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Thread: Autoimmune disease and rosacea

  1. #1
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    Default Autoimmune disease and rosacea

    I have an autoimmune disease. My doctors consider me "highly autoimmune" due to the numbers on my labs...they think I could eventually get other, more serious autoimmune diseases. I don't want to get into too many details but there are many types of autoimmune diseases and I wonder if anyone else has rosacea and autoimmune disease. It complicates treatment of rosacea for me.

    I go to a major teaching hospital's dermatology department and I am a patient at the same hospital in another department for the autoimmune disease. The doctors in the dermatology dept. are very cautious and conservative with my rosacea treatments because they say if they are not, it could cause me to have complications. They said they have to be especially careful with oral medications because they don't want to trigger lupus. Plus, they think I just have a very sensitive system. So, everything is started at a very low dose then worked up to a normal dose. It takes many weeks or more to see if something is going to help or not. I am kept on the bare minimum of medication that works so I am always on the verge of a breakout, which makes the lifestyle changes very important in controlling the roseaca well.

    I suffer fatigue and other issues with the autoimmune problem that I think exacerbates the Rosacea. I also have Reynaud's Syndrome, which makes me cold a lot and which a lot of people with autoimmune diseases have. The things I would like to do to warm up, like a hot shower, or things like that, aggravate the rosacea. It is hard to balance keeping warm with keeping the rosacea in check! For example, I used to run the heater in my car full blast until I noticed it was making my face break out. Now, I turn it down, but I am so cold!

  2. #2
    Senior Member Mistica's Avatar
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    Hi,

    There are a few people here with rosacea and autoimmune diseases and a few with all the signs, but minus a positive ANA.
    Some rosaceans, autoimmune or not take mecaprine or plaquenil with success. Have you tried, or heard about this drug?
    There is a current thread in the prescriptions section on this.

    http://www.rosaceagroup.org/The_Rosa...-try-Mepacrine!

    I know of a few rosaceans and autoimmune patients who speak very enthusiastically about Dr M Powell, a Rheumatologist in Sacremento, CA.
    He works slightly differently to most other doctors. I could direct you to two of his patients if you are interested in further information.
    If you could swing a trip to see him, even for a second opinion, I would encourage you to do so.

    I wish I could consult him, however I am in a different country. He does advise my doctor from time to time, however.

    Good luck.
    Previous Numerous IPL, ZZ cream.
    Supplements: Vit K2, High Dose Vit C, BHCL, Digestive Enzymes, Ionic trace mineral drops, low dose iodine to correct deficiency.
    Skin Care: Cetaphil Gentle Cleanser, or ZZ soap.

    Treating for gut infections under specialist care. (This is helping).
    GAPS diet foods/no probiotics.

  3. #3
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    Unhappy

    Yes! Afraid so, I was severely hyperthyroid in 1994............then again in 2001..........

    had a miscarriage in 2001 and developed the rosacea beast in 2002!

    My rosacea is VERY hormone/emotion driven!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Ester C,Vit D3,Zinc, Theratears Omega 3 supplement.



    *No topical lotions.

    *Decleor HARMONIE skincare range.

    *Tried Clonidine, Moxonidine & Atenolol for flushing. (none being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Currently free of all ocular rosacea symptoms!

    History of Hyperthyroidism (Graves)
    PROUD TO BE DIFFERENT






    .

  4. #4
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    I just had blood sent to the lab yesterday to check my thyroid and also to test for lupus. I was looking up lupus and I have at least half of the symptoms so I thought I better get that checked out, although the symptoms could all be explained by other things as well, so I'm just simply not sure yet if I have it.
    Current skincare regime for rosacea subtypes I, II and IV started March, 2012:

    *Strict diet. No dairy, wheat, sugar, nuts/seeds, legumes. Only meat, 'safe starches', and low-phenol starchy/unstarchy fruits and veggies and water with ghee, lard and duck fat as cooking aids and sources of fat. Also avoiding food intolerances.
    Supplementing with raw food multivitamin, liquid zinc sulfate with copper, epsom salt baths (magnesium sulfate), calcium and vitamin C. Lots of water!

  5. #5
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    Exclamation

    Quote Originally Posted by christine123 View Post
    I just had blood sent to the lab yesterday to check my thyroid and also to test for lupus. I was looking up lupus and I have at least half of the symptoms so I thought I better get that checked out, although the symptoms could all be explained by other things as well, so I'm just simply not sure yet if I have it.
    Hello Christine,

    When you say thyroid are they saying hyper (over) OR hypo (under).

    I am hyperthyroid & my partner is hypothyroid.

    Good luck with the tests.

    Judy
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Ester C,Vit D3,Zinc, Theratears Omega 3 supplement.



    *No topical lotions.

    *Decleor HARMONIE skincare range.

    *Tried Clonidine, Moxonidine & Atenolol for flushing. (none being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Currently free of all ocular rosacea symptoms!

    History of Hyperthyroidism (Graves)
    PROUD TO BE DIFFERENT






    .

  6. #6
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    Hi Judy, I'm actually not sure! I thought they are just testing my thyroid levels. Are there different tests for each one?
    Current skincare regime for rosacea subtypes I, II and IV started March, 2012:

    *Strict diet. No dairy, wheat, sugar, nuts/seeds, legumes. Only meat, 'safe starches', and low-phenol starchy/unstarchy fruits and veggies and water with ghee, lard and duck fat as cooking aids and sources of fat. Also avoiding food intolerances.
    Supplementing with raw food multivitamin, liquid zinc sulfate with copper, epsom salt baths (magnesium sulfate), calcium and vitamin C. Lots of water!

  7. #7
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    Quote Originally Posted by christine123 View Post
    Hi Judy, I'm actually not sure! I thought they are just testing my thyroid levels. Are there different tests for each one?
    No, they 'should' do you TSH & T4 at the very least and ypu should ask which range they work to for each (as GP's & hospitals vary!).

    DON'T accept a simple 'you are within the range' comment you need to know your results!

    Where do you live?

    Judy
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Ester C,Vit D3,Zinc, Theratears Omega 3 supplement.



    *No topical lotions.

    *Decleor HARMONIE skincare range.

    *Tried Clonidine, Moxonidine & Atenolol for flushing. (none being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Currently free of all ocular rosacea symptoms!

    History of Hyperthyroidism (Graves)
    PROUD TO BE DIFFERENT






    .

  8. #8
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    Hi Judy, thanks for the input and will ask the doctor to give me numerical results on my thyroid levels when I respond to their prompt call back, asking me to phone the office...
    I live in Canada.
    Current skincare regime for rosacea subtypes I, II and IV started March, 2012:

    *Strict diet. No dairy, wheat, sugar, nuts/seeds, legumes. Only meat, 'safe starches', and low-phenol starchy/unstarchy fruits and veggies and water with ghee, lard and duck fat as cooking aids and sources of fat. Also avoiding food intolerances.
    Supplementing with raw food multivitamin, liquid zinc sulfate with copper, epsom salt baths (magnesium sulfate), calcium and vitamin C. Lots of water!

  9. #9
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    Wink

    Quote Originally Posted by christine123 View Post
    Hi Judy, thanks for the input and will ask the doctor to give me numerical results on my thyroid levels when I respond to their prompt call back, asking me to phone the office...
    I live in Canada.
    Hello Christine,

    Oddly enough we have that 'prompt call back system' here in the UK too!

    Good luck!

    Judy
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Ester C,Vit D3,Zinc, Theratears Omega 3 supplement.



    *No topical lotions.

    *Decleor HARMONIE skincare range.

    *Tried Clonidine, Moxonidine & Atenolol for flushing. (none being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Currently free of all ocular rosacea symptoms!

    History of Hyperthyroidism (Graves)
    PROUD TO BE DIFFERENT






    .

  10. #10
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    Question

    Hello Christine,

    What were your thyroid results in the end?

    Judy
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Ester C,Vit D3,Zinc, Theratears Omega 3 supplement.



    *No topical lotions.

    *Decleor HARMONIE skincare range.

    *Tried Clonidine, Moxonidine & Atenolol for flushing. (none being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Currently free of all ocular rosacea symptoms!

    History of Hyperthyroidism (Graves)
    PROUD TO BE DIFFERENT






    .

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