I have an autoimmune disease. My doctors consider me "highly autoimmune" due to the numbers on my labs...they think I could eventually get other, more serious autoimmune diseases. I don't want to get into too many details but there are many types of autoimmune diseases and I wonder if anyone else has rosacea and autoimmune disease. It complicates treatment of rosacea for me.
I go to a major teaching hospital's dermatology department and I am a patient at the same hospital in another department for the autoimmune disease. The doctors in the dermatology dept. are very cautious and conservative with my rosacea treatments because they say if they are not, it could cause me to have complications. They said they have to be especially careful with oral medications because they don't want to trigger lupus. Plus, they think I just have a very sensitive system. So, everything is started at a very low dose then worked up to a normal dose. It takes many weeks or more to see if something is going to help or not. I am kept on the bare minimum of medication that works so I am always on the verge of a breakout, which makes the lifestyle changes very important in controlling the roseaca well.
I suffer fatigue and other issues with the autoimmune problem that I think exacerbates the Rosacea. I also have Reynaud's Syndrome, which makes me cold a lot and which a lot of people with autoimmune diseases have. The things I would like to do to warm up, like a hot shower, or things like that, aggravate the rosacea. It is hard to balance keeping warm with keeping the rosacea in check! For example, I used to run the heater in my car full blast until I noticed it was making my face break out. Now, I turn it down, but I am so cold!