Hi all! I've posted on here a few times now...my story began 5 months ago when my rosacea started and the journey seems to have been years long...not 5 months long! I can't remeber what it's like not to have painful burning skin...the derms don't listen to me. First one was a total idiot and said I've ruined my skin and there's no hope!....2nd diagnosed seb derm and drugs.....they didn't appear to help much....then he diagnosed rosacea (well I could have told him that!!!!) and gave me drugs!! Couldn't tolerate them...so now it's another wait to see him AGAIN! Oh the joys......
I suffer with other illness (M.E/CFS) so my immune system is basically screwed and am housebound the majority of the time. But all I can think about is my skin now. It burns, burns, burns...red, itchy blah blah. I've taken the advice alot of you have kindly already offered. I just feel so hopeless. Also, I feel incredibly overwhelmed at the amount of advice/help/treatments/things you could try/things not to try/things that have helped some/things that made others worse.....it's exhausting!!!!!
I come on this forum every day and read so much to learn more and end up more confused and upset than ever ( not by the members as you are all amazing! ) but just the mare that rosacea is.
I can't wash my face. I can't wear makeup anymore. I can't even dye my hair as it made it a zillion times worse!!!! I look like ****!!!
Yeah, I know it aint the end of the world etc etc. Put it into perspective......but thats easier said than done when it's affecting you.
I'm so scared ALL the time. If I can't tolerate the treatment (mainly coz I'm so intolerant to drugs) and I can't tolerate topicals....how will I ever get better? I can't cope with burning and pain and misery for ever. I no longer see people (except my family) as I'm so self conscious. I used to be so confident and love life...now I feel the opposite. My life is so restricted anyway due to my M.E., makeup and my hair and looking good was something that I prided myself on. It helped me cope with how ill I felt and made me feel 'normal' like all my friends who are healthy and well. At least I was fine on the 'outside'. I know it's not whats on the ousdie that counts.......but.
Apologies for the negative rant!!!! I just needed to vent as have been so upset, alone and not knowing what to do.
Best go n' try n' chill.......Thanks for listening to me folks. Biggest hugs. Squizza xxx