When a red face isn't rosacea is everyones doctor checking?

[J1992]

Thanks for the reply.

The weight gain is intentional, im just eating more of what I usually eat which is lots of Wholegrain cereal, rice milk, tuna, brown rice, chicken , eggs , apples & grapes. No sugar, salt or any preservatives. As you can see my diet is very restricted - I have always thought however now I am eating larger quantities of the foods I used to eat, maybe I have exceeded my bodies intolerance threshold whereas before by eating small amounts my body was able to process it?

I originally though it might have been the milk, so I cut that out, then I cut out the replacement, Alpro Soya. Now Im on rice milk. Ive also cut out Cottage Cheese , as well as sugar, spices, preservatives for about 3 years now.


I dont get it? My skin is smooth and normal, yet it is red up to my temples but does occasional have white flakes of skin on it, although it doesnt look or feel dry. Also when I make my face taught by moving my mouth to the very left or right aka pulling the skin on my cheeks, the redness completely disapears?

Cheers,

J1992.

[low_self_esteem_d/trosace]

hi, im new to this forum. anyway,my rosacea started to flare up this year about 1st week of feb then slowly getting worse, went to my derma, and prescribed me oracea, in on my 2nd mo on oracea, my last pill will be on friday then will be on my 3rd mo but it's not getting any better, i will always have redness on my chin and new pimples with pus. my derma gave me neostrata cleanser and toner, and retin a during night time and differin gel morning, but its not getting any better. pls help, im thinking if ishould stop oracea or change cleanser or better yet change derma.

[Brady Barrows]

hi, im new to this forum. anyway,my rosacea started to flare up this year about 1st week of feb then slowly getting worse, went to my derma, and prescribed me oracea, in on my 2nd mo on oracea, my last pill will be on friday then will be on my 3rd mo but it's not getting any better, i will always have redness on my chin and new pimples with pus. my derma gave me neostrata cleanser and toner, and retin a during night time and differin gel morning, but its not getting any better. pls help, im thinking if ishould stop oracea or change cleanser or better yet change derma.

If there was a definitive answer for you there would probably be no need for this forum or any other rosacea forum. The answer lies in your taking in knowledge of all the treatment options for rosacea, prescription, non prescription, light therapy, trigger avoidance, and alternative treatments and making a decision. What works for one rosacea sufferer may not work for another. Just keep searching. Eventually you will rule out what doesn't work for you and find something that at the very least controls rosacea.

[cherylarose]

I went through at least 4 dermatologists who treated me for adult acne - I was put on retin a and steroids and my rosacea got horrible. I finally figured out it was rosacea (several of my aunts and my mom suffer from it) and went to Dr Soldo is Scottsdale. He diagnosed my rosacea and put me on Finacea. If I were you, I'd research a good dermatologist who has experience treating rosacea. Many dermatologists are not very knowledgeable about the disease.

[queta]

I suspect quite strongly that I have systemic mastocytosis. Even though it is rare, I have soooo many of the symptoms. The treatment, though, is pretty much what I've been doing already so I guess it doesn't really matter either way. Thanks to the original poster for starting this thread. It makes me feel less alone in my struggles.
Regards
Queta

[laurastacey]

It seems to be pretty well accepted in the medical literature that a diagnosis of rosacea can only be made once a multitude of other conditions are first ruled out. My doctor did but i wondering if everyones doctor or derm are ruling these things out to? Especially for people for who redness and flushing are the key symptoms (rather than P&P).

I remember back when i first started getting flushing that the only thing that came up on the internet for flushing was rosacea, but have since found out there are many many things which can look like rosacea, so thought i'd put it out there.


http://rosacea.ii.net/news/2006/08/r...t-rosacea.html

Most of these are unlikely or rare but there are also some pretty common conditons that can cause flushing or make it worse, such as allergies, food intolerances, thyroid issues, oestrogen imbalance (for women), lactose intolerance, fructose intolerance and coeliac disease.

Of course all of the above generally cause other symptoms aside from flushing or redness, most commonly GI issues, but some of these can be symptom less, like Coeliac disease, which is why only about 1 in 1000 people are diagnosised with it despite approx 1 in 100 having it. And the fact that lot's of rosacea say they improve when cutting out wheat or dairy products makes me wonder if some of us also have other things going on, aside from rosacea.

Anyway most of these are simple blood tests, so is everyone getting checked out for these things?

My doctor took literally 2 minutes to decide i have rosacea based on a bit of redness on my face. Prescribed me the metrogel and that was it. Even though i'd been out in the gale-force wind and snow beforehand and strong wind always turns me really rosy! I've been complaning about feeling generally unwell and having an iffy stomach for around 2 years now and they've always found a way to dismiss it. Around the time i started noticing that i could well be lactose intolerant i also started to have more issues with my skin, including redness and more breakouts. Since being 'diagnosed' with rosacea and using the metrogel (this is my 7th night applying it), my redness has grown worse and after eating food that would not normally affect me, my skin flares up more now than before. So i'm wondering if my skin is growing more sensitive because i'm being treated for the wrong thing perhaps? I'm just stuck.

I can't really eat anything the last few days without going red. But all of my other symptoms at the moment point to possibly celiac disease or at least a gluten intolerance. I would say just lactose intolerance but my face flushes from eating almost everything, and since gluten is in a majority of the things i eat and have been eating for a long time, i'm wondering if this may be my problem as these symptoms have been present for a long time too.

[Brady Barrows]

My doctor took literally 2 minutes to decide i have rosacea based on a bit of redness on my face.

I have added your report to my list.

[laurastacey]

I have added your report to my list.

It's as if family GP's don't really know the first thing about it, and when they see a sign they just give you a cream without even checking that there could be something else going on.

[Omppu]

Oh yes, I was diagnosed the same way. Gave me Rozex metrogel and Tetracycline. Rozex doesn't work and Tetrasyl gave me side effects. Going to another dermatologist on Friday.

The thing is that is not only my face but other symptoms too which is why I've been to blood tests through another doctor, or two, who doesn't know what they're doing because my thyroid levels been coming down. Seeing an endocrinologist in June.

Last time I told the doc that why the reference values even exist if they don't give a shit until it's only under the references. Like people couldn't have symptoms with values close to it.

Oona

[Angeleyes]

Though I originally came to this forum because of my ocular rosacea, I am getting such good insight into other things that have been going on with me for years.

My mother had scleraderma, my sister has lupus, we all have redness of the neck and thyroid issues. I also over the years have had very weird symptoms like abdominal migraines (severe vomiting without headaches but with an aura), vertigo, seizures when stressed or hungry, small ganglion cysts that have developed on my hands and wrists at each joint, severe body aches, fibromyalgia, swelling of the tongue and throat when eating ice cream or shaved ice drinks and gastro intestional issues. I have others, but you get the picture that lots of the body systems are involved.

I have been told after having tests for lupus, periodic paralysis and other things that I am perfectly fine. Meanwhile I have these weird problems.

The good news is that since starting antibiotics just a few days ago for the rosacea, I am feeling better over all. My skin is getting lighter on my neck, my eyes feel better, and the body ache seems to be less. Crossing my fingers that it is some systemic thing that is being helped now.