I recently was diagnosed with rosacea, and I'm having a hard time not thinking and worrying about it all the time. My family and fiance don't seem to understand at all why I should be upset by it. My symptoms aren't as bad as some people's get, but I do worry that it's just going to keep progressing.
I've had mysterious eye itching and swelling for years now, that doctors could never figure out, and chronic eye redness for quite a long time. Now I realize that it must have been rosacea for all that time. For the last few months my eyes have been driving me crazy...intense itching and grittiness that just makes me want to gauge my eyes out. It's bad enough that it wakes me up at night. I can't wear eye make-up and have had to stop wearing my contacts, which isn't really helping the self esteem issues.
I've flushed easily all my life, but it was getting the papules last September that made me realize I have rosacea. I saw a dermatologist and he put me on noritate cream and plexion cleanser, but I'm not noticing any improvement. The papules still just run their course. I have at least one or two a day (I know that's not as bad as some people get...but it's hard not feeling like it's just not fair...I just got old enough that my skin didn't break out anymore from acne, and now there's this).
I've basically stopped drinking alcohol, because I think it's a trigger for me. I'm really daunted by the long list of foods that are supposed to be triggers. Am I really supposed to give up chocolate and yogurt?!? I don't notice that I actually flush after/while eating anything other than very spicy foods, soups, or wine. Could foods still be causing a problem even if I don't notice flushing?
Is there a medication I should ask my dermatologist for instead? Are the oral medications (I saw Oracept advertised online) really safe? I really don't like the idea of taking antibiotics, but I worry that nothing else will work.
How can I get some relief from the ocular problems? From doing research online, it doesn't seem like there are many options. The eye problems are making me more miserable than the already upsetting postules...then when I read that stress is a trigger I just wonder if I'm on a stupid merry go round...
I have a hard time trusting doctors, because they're so often cavalier about their treatments...giving you things that can cause harm in the long run...misdiagnosing (I've been treated for pink eye once already). Any input you guys can give me would be amazing. I really don't want this to progress further, and it seems like it's a huge project to find the right treatment.