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Hi
thanks for reply, i understand what you mean.

please xplain what these are and how they could help? Rifaxilmin and a NSAID called Indomecatin??

Just to update.
He wants me to drop the placquenil as said if no imrpovement within 3 months no point continuing.
Instead add another beta blocker. Wants me to add atenolol to the clonidine and...

This is true about the meds.

Im currently on 75 clonidine 3 times daily, remeron 15mg daily, 400mg placquenil daily.

What am i going to ask CHU for next? Will he have something up his sleeve? ...

Where have you heard about this drug in relation to flushing etc?

Thank you

Yes I know this is all true.
But what are other solutions other than medication?
There is nothing wrong with me other than flushing/blushing/burning etc.
I do not have spots or any other issues....

I've gone back on the remeron after 3 nights off it as did not sleep at all and felt 'flushy' all day.
Slept like a beast last night after taking 15mg.

Anyway, how long does this placquenil take?...

ok update here.
have not posted in a while as i find it hard to cope when im on the forums all the time.

to be honest im not sure if the placquenil is working, im on 400mg daily. have been on it...

could you explain the procedure?

cheers went superdrug and got a months worth.

hopefully will work.

prescription says hydroxychloroquine, then plaquenil in brackets.

do you think another chemist will supply me it, even though tesco dated when they prescribed me it?

maybe ill explain they gave...

75mg 3 times a day

with regards to the placquenil, im going to try and get the proper brand.

only problem is tesco have stamped and dated my prescription so i doubt anyone will issue me with...

Keep with remeron. Up clonidine to 9 per day
When I said mepacrine did not work I asked about the placquenil and he said we was going to suggest this. He said mepacrine either works brilliant or not...

Hi
He prescribed me placquenil, the other anti malaria drug.

any one know how long it takes to kick in? if it does?

cheers

6 weeks of mepacrine and NO improvement.

luckily my next appointment is tonight.

what next for me? what shall i ask for? Currently on remeron and clonidine, and suffering.

Is this the end?

currently on mepacrine, mirtazpine, and clonidine.

How long should I give the mepacrine to see if it works?

thanks for info pal.

will shop around in a few weeks when need to buy more.

does the mepacrine work for you? how long have you been using it?

cheers

boots quoted me £ 113 for 28 pills



one other thing. if this is going to work how long till it works?

sounds similar to me

pink most of the day then late afternoon// evening flush like a tomato...

Dr Chu has said I have vascular rosacea

Just an update.

I went to my doctor, local GP today and he said NO NHS authorities will prescribe this drug, not even for malaria. He said its unliscenced for my condition, and even if i had...

Sorry. one pill per day, 100mg.
I have 50 pills because according to the pharmacy that is how many comes in a box etc.

What do you mean? I have a 50 pill supply

Just to let you guys know, I received the Mepacrine. Just popped first pill.

Here are some photos for what it looks like.

14981499

has it come in yet?

When are you collecting your mepacrine? Will you start this week?

Yeah annoying it could take £100s of pounds before any improvement if any.

Hopefully both our doctors will prescribe it on the NHS so we can continue trying it.