The pain of ocular rosacea, please help

[YankeesRtheBest]

It's one thing to deal with facial rosacea, but I can't tolerate the ocular roscaea anymore. It's just so painful and my eyes are so red. I would do anything to live my life with white, comfortable eyes that aren't dry and don't burn. I've tried everything there is - you name it. Is there any hope that people can give me about future treatments or anything at all to help me. Please, I am beside myself. -Chris

[rwilliamson320]

I feel for you man. I don't have any information that can help you and I don't know of any future treatments for the eyes. I will pray for you and hope that you do find the relief you need.

When I get allergies my eyes get very dry, red, burn and hurt. I only have to live with it for 2 weeks a year though so I could not imagine having to deal with it everyday.

[FLYBOY109]

Hey yankees. I think that oracea should have a very big impact on your ocular rosacea. It has no antibiotic activity just a stronger anti-inflamatory formulation and you can take the pill once a day for life, but check with your doctor. It should hit the market and be on sale with a prescription by august or sooner. good luck

[prryjones]

Yankee,
My advice is for you to make and appointment with an opthalmologist, and get a free sample of Elestat from him. Is the ONLY thing that has ever helped my occular sxs. Ever.
Would not surprise me if your eyes cleared in 2 days.
Try it. Really.
Perry

[YankeesRtheBest]

Flyboy - Thanks - I hope it does come out by august...do you really think it will though? I thought it was originally december teh earliest for oracea? O man...I would be so lucky if it came out by or before august. Thanks man.

Perry - I remember being prescribed that last year and it did help calm things down..I will call and ask for it. Is it also good to use because allergy season is starting? My eyes are always worse when the pollen outside increases. Thanks I appreciate it.

[FLYBOY109]

Yankees. I think this is a good estimate. It should be fda approved in may. Once that happens the company wants to put it on the market as soon as possible so they can make their money. I think it could very well be sooner than aug. I would keep a look out and when it is fda approved your doctor can call a sales rep and get some samples for you to use even before the drug has launched its marketing. This could get it to you sooner. good luck

[no more red cheeks!]

instead of waiting for a pharmaceutical fix you could take matters into your own hands and reconsider your diet.

I had rosacea for many years, including mild ocular rosacea. Then last year the eye troubles got really severe. After 4 unsuccessful visits to an opthamologist, she finally realized that irreversible damage would be done to the cornea, and sent me to the emergency opthamology department of the public hospital, where I got a course of steroid drops. The doctor there took one look at my red cheeks and the first thing he said was 'do you have lupus?' But he concluded that my eye and skin problems were rosacea (dermatologists have never agreed on what to call it - acne, dermatitis, rosacea...), and the potentially serious nature of ocular rosacea was what made me actually face this disease, not hide from it like I always had in the past.

To make a long story short (you can find more details in the 'reduce acidity = reduce rosacea' thread), I have found that an alkalizing diet works wonders for me. Neither facial nor ocular rosacea have come back since I started making deliberate food choices. No medication necessary. And I will live a far healthier life because of it in many other respects also. I highly reccommend you try it.

If you're expecting the next 'wonder drug' is on the market in August, why not make a point of trying an alkalizing diet until then? You have nothing to lose (except rosacea, heart disease, cancer, diabetes....)

Good luck :)
Joanne

10.5 months alkalizing diet, 10 months rosacea free

[no more red cheeks!]

instead of waiting for a pharmaceutical fix you could take matters into your own hands and reconsider your diet.

I had rosacea for many years, including mild ocular rosacea. Then last year the eye troubles got really severe. After 4 unsuccessful visits to an opthamologist, she finally realized that irreversible damage would be done to the cornea, and sent me to the emergency opthamology department of the public hospital, where I got a course of steroid drops. The doctor there took one look at my red cheeks and the first thing he said was 'do you have lupus?' But he concluded that my eye and skin problems were rosacea (dermatologists have never agreed on what to call it - acne, dermatitis, rosacea...), and the potentially serious nature of ocular rosacea was what made me actually face this disease, not hide from it like I always had in the past.

To make a long story short (you can find more details in the 'reduce acidity = reduce rosacea' thread), I have found that an alkalizing diet works wonders for me. Neither facial nor ocular rosacea have come back since I started making deliberate food choices. No medication necessary. And I will live a far healthier life because of it in many other respects also. I highly reccommend you try it.

If you're expecting the next 'wonder drug' is on the market in August, why not make a point of trying an alkalizing diet until then? You have nothing to lose (except rosacea, heart disease, cancer, diabetes....)

Good luck :)
Joanne

10.5 months alkalizing diet, 10 months rosacea free

[YankeesRtheBest]

Hey Joanne ..thanks so much for your advice. I understand if you don't have the time to do this, but is there any way you can make a a detailed post or PM me to tell me your exact diet that you used? This ocular rosacea has killed me and I'll do anything to get rid of it...and honestly.. if my problem is because of all the oils and thick secretions that form on the eye and the blepharitis, do you really think a low acid diet will help me? Thanks so much, I appreciate your time more than you know. -Chris

[gpenny]

I have had severe ocular rosacea for years. Nothing has worked - tried every drop and compress, plugs, restasis, doxycyline, etc. About 10 months ago I went to a derm for what I thought was unrelated problem -- hormonal acne. He told me I had overactive sebaceous glands (I'm in my forties and female) and since nothing has worked for my facial acne either, he suggested spironolactone. (It is an antiandrogen) The amazing thing is that not only is my skin better, my eyes feel 95% better! All this time I thought I didn't have adequate oily layer of tear film, turns out maybe it was the other way around. I'm not sure as none of the docs seem to understand why this works exactly. I can't believe I can finally go outside and not be thinking about how my eyes are killing me. Maybe others should give it a try.
Gerri

[drums]

instead of waiting for a pharmaceutical fix you could take matters into your own hands and reconsider your diet.

I had rosacea for many years, including mild ocular rosacea. Then last year the eye troubles got really severe. After 4 unsuccessful visits to an opthamologist, she finally realized that irreversible damage would be done to the cornea, and sent me to the emergency opthamology department of the public hospital, where I got a course of steroid drops. The doctor there took one look at my red cheeks and the first thing he said was 'do you have lupus?' But he concluded that my eye and skin problems were rosacea (dermatologists have never agreed on what to call it - acne, dermatitis, rosacea...), and the potentially serious nature of ocular rosacea was what made me actually face this disease, not hide from it like I always had in the past.

To make a long story short (you can find more details in the 'reduce acidity = reduce rosacea' thread), I have found that an alkalizing diet works wonders for me. Neither facial nor ocular rosacea have come back since I started making deliberate food choices. No medication necessary. And I will live a far healthier life because of it in many other respects also. I highly reccommend you try it.

If you're expecting the next 'wonder drug' is on the market in August, why not make a point of trying an alkalizing diet until then? You have nothing to lose (except rosacea, heart disease, cancer, diabetes....)

Good luck :)
Joanne

10.5 months alkalizing diet, 10 months rosacea free
Dear no more red cheeks,
I am thrilled to hear of such a post on this forum you are actually saying how it should be. It was courages of you to be able to face your rosacea the way you did; and I am pleased that it has calculated into positive results for you.
I can also appreciate the grit and courage you must have had to see it through.Initially the cure can be more worse than the initial problem and it is here where most folks tend to fail.Now you have a diet for life that will ensure you remain rosacea free and
healthy.
In many ways there has been a positive side from my rosacea years which is really my body was trying to tell me to stop eating the things that were harmfull.
So in that respect I am ever so thankfull for the rosacea that I had.

[drums]

Hey Joanne ..thanks so much for your advice. I understand if you don't have the time to do this, but is there any way you can make a a detailed post or PM me to tell me your exact diet that you used? This ocular rosacea has killed me and I'll do anything to get rid of it...and honestly.. if my problem is because of all the oils and thick secretions that form on the eye and the blepharitis, do you really think a low acid diet will help me? Thanks so much, I appreciate your time more than you know. -Chris
Dear YankeesRtheBest,
You know its quite amazing when you have a crisis asking people to write down loads of info for you.
Only to totally disregard the information given to you.
You have had all this information previously from me as long as one year ago.Its quite obvious to me that you are asking good folks to waste their time on writing volumes for you, quite frankly I think you have a cheek. In my opinion you don,t deserve any help or you need to sober up lad!

[banshee]

Hey Joanne ..thanks so much for your advice. I understand if you don't have the time to do this, but is there any way you can make a a detailed post or PM me to tell me your exact diet that you used? This ocular rosacea has killed me and I'll do anything to get rid of it...and honestly.. if my problem is because of all the oils and thick secretions that form on the eye and the blepharitis, do you really think a low acid diet will help me? Thanks so much, I appreciate your time more than you know. -Chris
Dear YankeesRtheBest,
You know its quite amazing when you have a crisis asking people to write down loads of info for you.
Only to totally disregard the information given to you.
You have had all this information previously from me as long as one year ago.Its quite obvious to me that you are asking good folks to waste their time on writing volumes for you, quite frankly I think you have a cheek. In my opinion you don,t deserve any help or you need to sober up lad!
aw drums, I don't think it's necessary to say Yankee doesn't deserve help. :( We can't really know what he's tried and sometimes things that were working don't anymore.

You're correct in that the board archives are filled with a wealth of information. So folks need to utilize that valuable resource & the time ppl put into it...On the same token, rosacea, especially the ocular form, can be very daunting & frightening. Folks often don't know which way to turn & treatments are quite wildcard. As a result it can be tough to make a decision so I think a lot of us are guilty of asking q's repeatedly. Imo it's in hope of getting more or varying information from what we have read previously, so to best determine what direction to go in.

I can't think anyone deserves to suffer with this terrible disease :cry: no matter how much they ask for help. It's just a matter of individually practicing reasonable "netiquette" re: posting the same thing too frequently & using what we already have. Great thing about the forum though, is that we have the option of responding as often as we like.

cheers-
banshee

[Twickle Purple]

Perry - I remember being prescribed that last year and it did help calm things down..I will call and ask for it. Is it also good to use because allergy season is starting? My eyes are always worse when the pollen outside increases. Thanks I appreciate it.

YankeesRtheBest, did you try the Elestat? Did it have the same success as before? Did taking the Singulair help with your eyes at all?

I have had severe ocular rosacea for years. Nothing has worked - tried every drop and compress, plugs, restasis, doxycyline, etc. About 10 months ago I went to a derm for what I thought was unrelated problem -- hormonal acne. He told me I had overactive sebaceous glands (I'm in my forties and female) and since nothing has worked for my facial acne either, he suggested spironolactone. (It is an antiandrogen) The amazing thing is that not only is my skin better, my eyes feel 95% better! All this time I thought I didn't have adequate oily layer of tear film, turns out maybe it was the other way around. I'm not sure as none of the docs seem to understand why this works exactly. I can't believe I can finally go outside and not be thinking about how my eyes are killing me. Maybe others should give it a try.
Gerri

Thanks for the tip Gerri, really glad you posted. I hope your success is continued!

--

Drums, you sound like you needed a hug... better late then never!

http://www.Anniroc.com/TP/hug.gif

[drums]

Drums apology.
Please accept my apologies all you occular homestead folks and especially YankeesRthebest. May I say that I was totally out of order using such Kurt and cutting remarks?
Mother earth’s cuddle has helped me to rekindle the small but existing flickering flame of humanity left in me; may it now continue to become a much kinder and brighter flame.
Banshee’s advice has also helped me to see the error of my ways and has given me a road map to enable me to become a much better person.
I do have a tendency to overdo some things and I will now try to develop a more balanced view of life. Following in the theme of Banshee’s post and learn to be more tolerant of people especially when they have problems. After all I suppose every person on the planet does have a problem of some sort; they are just different from our own.
It seems, as always with any human imbalance the healing has to start from within even when the signs of illness are at first visible from the outside probably no more so than it is with rosacea
It can take some considerable time for a person to relate to this phenomenon or even realise even to the point of total self-denial. Somehow it seems the denial of an illness will remain until the person realises what the cause is, understands the how and why and all the ins and outs of it can be explained,. It seems that until a person reaches this understanding it is almost impossible for them to move forward. No matter what sound advice may be offered in the meantime?

[YankeesRtheBest]

Thank you gpenny, I will have to do some research on that. It really sounds interesting. I know for a fact that I have over-reactive sebacious glands because my face has literally poured out oil to the point of dripping since I was 14 years old (now 22). In addition to cystic acne, the oils build up so much on my eyelids and in my eyes. When I wipe my eyes with water or use my eye scrubs, they always feel a lot better, but the oil accumulates back very quickly. So my doctor has to prescribe this for me or can I get something like this easily? Thanks so much.

I haven't been on the forum much lately cause I've been so busy with work and college. And Drums, I don't know who you are dude, but I've talked to many people on this forum and other forums over the past several years and have wrote long detailed messages continuously helping others as much as I can. That was a while ago when I asked for that elaboration and no one is obligated to do so anyway. I don't do the drama thing man, but thanks for the apology. -Chris