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View Full Version : New here, Looking for help, looking to live again!


Orion
16th March 2006, 04:31 PM
Hi to everybody. Im new here and very pleased I have managed to find a forum with more than 10 posts and 10 members.

Rosacea has destroyed my life. Im simply looking for help and advice to try and get my life back on track. I do not have any spots, blemishes, pimples, scars but I get very bad flushing of the cheeks being male i find this terrible. Most things in life trigger it off on a regular basis. You cant live a normal life with this disease. It haunts you. The doctors are of no real help 3 years ago i tryed to do something about the terrible flushing I kept going through in which I had blood tests, urine tests all to no avail. Apparently im an extremley healthy person with nothing to worry about. Oh is that right mr doctor is that why im extremly depressed due to this bloody disease! Is that why i cant live a normal life or do normal things?

Im about to spend alot of money online to buy creams, ointments etc but from the feedback I have viewed they all seem expensive rip offs with no improvements made to the poor souls that bought them.

A bit about me, Im male 28 from england. Apparently im a good looking lad from what other people tell me please note i am not trying to big myself up at all. I am generally a confident person but when this thing strikes I am useless and only want to hide away from everyone. I become a different person instantly. It has destroyed my past relationships and hence destroyed me. I have had it as long as i can remember even during my younger years at school.

Im back to square one looking for a love in my life. However im struggling. My confidence is rock bottom and I worry about meeting anyone incase it strikes as it often does! Im fair skinned so the redness looks terrible on me. Allthough of recent I have been going on the sunbeds just to make myself browner so that the redness does not seem as vivid. I dont drink alot as i hear alcohol is the main trigger in which i have to admit i find that my worse culprit often the next day i will suffer a bad flush so i can never go out drinking with friends 2 nights in a row. Im at my witts end and very depressed.

Sorry to introduce myself in such a negative way. Any advice or natural treatments that have helped please let me know.

Take care and good look!

Brady Barrows
17th March 2006, 07:11 AM
Hi to everybody. Im new here and very pleased I have managed to find a forum with more than 10 posts and 10 members.

Rosacea has destroyed my life. Im simply looking for help and advice to try and get my life back on track. I do not have any spots, blemishes, pimples, scars but I get very bad flushing of the cheeks being male i find this terrible. Most things in life trigger it off on a regular basis. You cant live a normal life with this disease. It haunts you. The doctors are of no real help 3 years ago i tryed to do something about the terrible flushing I kept going through in which I had blood tests, urine tests all to no avail. Apparently im an extremley healthy person with nothing to worry about. Oh is that right mr doctor is that why im extremly depressed due to this bloody disease! Is that why i cant live a normal life or do normal things?

Im about to spend alot of money online to buy creams, ointments etc but from the feedback I have viewed they all seem expensive rip offs with no improvements made to the poor souls that bought them.

A bit about me, Im male 28 from england. Apparently im a good looking lad from what other people tell me please note i am not trying to big myself up at all. I am generally a confident person but when this thing strikes I am useless and only want to hide away from everyone. I become a different person instantly. It has destroyed my past relationships and hence destroyed me. I have had it as long as i can remember even during my younger years at school.

Im back to square one looking for a love in my life. However im struggling. My confidence is rock bottom and I worry about meeting anyone incase it strikes as it often does! Im fair skinned so the redness looks terrible on me. Allthough of recent I have been going on the sunbeds just to make myself browner so that the redness does not seem as vivid. I dont drink alot as i hear alcohol is the main trigger in which i have to admit i find that my worse culprit often the next day i will suffer a bad flush so i can never go out drinking with friends 2 nights in a row. Im at my witts end and very depressed.

Sorry to introduce myself in such a negative way. Any advice or natural treatments that have helped please let me know.

Take care and good look!

Welcome to the Rosacea Forum. You are not alone.

As you can see, there are over 800 members of this forum and they are here because they too are searching for help. Many have found ways to control rosacea and if you keep searching you will find something to control yours. If rosacea wasn't a problem, this forum would not exist. Read, read and keep reading. You will note that many are just as frustrated as you are, so you are not alone. There is an X-Factor in rosacea that you should read about, which means that for the most part, what treatment works for one rosacean may not work for another. That is sad, but the truth. There hasn't ever been found one treatment that works for all rosaceans. Not one. You will have to search until you find one that works for you, and you have found the best place on the internet to find the treatment that will work for you.

jet
17th March 2006, 07:59 AM
Orion

So sorry to hear how sad you are feeling, I too have been very low with this condition.

When I suffer from a flare as you say I beome a different person, my husband says he wants the old me back!

I know how desperate and hopeless you can feel at bad times and I sympathize. You try to tell yourself this is silly I could have cancer or have lost a limb or be faced with starvation etc etc but your mind just fixes on the problems with your face. Then you feel selfish and stupid when you read about the terrible things/conditions/decisions other people in the world face - it is a very wicked condition.

I have the suppoort of a wonderful husband but I stll hide the torment as much as possible - is that because I feel guilty about being vain?

I have never been what you would call a natural beauty, but I think I passed as ok! But now I feel ugly and undeserving of attention, which I know is silly I have known my husband for over 25 years and I am only 42!

I have resorted to IPL which I have foud some success with - my husband says it has improved greatly but I dare not say this as I think I may not be objective and it is just wishfull thinking. The treatments are very expensive and I kknow I am lucky to be able to afford them. I also take antibiotics because a flare for me is a covering of tiny spots - not nice!

I too have tried many 'miracle creams' - don't waste your money - aloe vera gel was about the best. It is horrible how we always belive the next thing we read may be the answer.

I feel as though I have spent a lot of time saying I & me in this post and feel it is starting to sound a bit me, me, me when I am supposed to be supporting you!!
Try to have a positive outlook - I know this is hard
Find a really good friend to open up to - this helps a lot I have a great one, and although at first you won't be able to tell them everything gradually when you have started to talk, things will become easier to say.
You may be lucky and find a sypathetic docotr, unfortunately mine isn't neither was the private dermatologist, but they may not all be the same and you may be lucky.

Remember to live your life it all too soon goes by and you arrive at my age and think how did I get to be so middle aged - I know you are young and this condition must be hard at this stage in your life but remember there are new treatments on the horizon or even 10 years down the line and you will be young enough to benefit from them

Face the world try to find that confident person that is in there and live, ok make small adjustments to your lifestyle - alcohol in moderation only! You CAN still enjoy life and you will find a person who will love you for what is inside.

Orion
17th March 2006, 07:38 PM
Hi to everybody. Im new here and very pleased I have managed to find a forum with more than 10 posts and 10 members.

Rosacea has destroyed my life. Im simply looking for help and advice to try and get my life back on track. I do not have any spots, blemishes, pimples, scars but I get very bad flushing of the cheeks being male i find this terrible. Most things in life trigger it off on a regular basis. You cant live a normal life with this disease. It haunts you. The doctors are of no real help 3 years ago i tryed to do something about the terrible flushing I kept going through in which I had blood tests, urine tests all to no avail. Apparently im an extremley healthy person with nothing to worry about. Oh is that right mr doctor is that why im extremly depressed due to this bloody disease! Is that why i cant live a normal life or do normal things?

Im about to spend alot of money online to buy creams, ointments etc but from the feedback I have viewed they all seem expensive rip offs with no improvements made to the poor souls that bought them.

A bit about me, Im male 28 from england. Apparently im a good looking lad from what other people tell me please note i am not trying to big myself up at all. I am generally a confident person but when this thing strikes I am useless and only want to hide away from everyone. I become a different person instantly. It has destroyed my past relationships and hence destroyed me. I have had it as long as i can remember even during my younger years at school.

Im back to square one looking for a love in my life. However im struggling. My confidence is rock bottom and I worry about meeting anyone incase it strikes as it often does! Im fair skinned so the redness looks terrible on me. Allthough of recent I have been going on the sunbeds just to make myself browner so that the redness does not seem as vivid. I dont drink alot as i hear alcohol is the main trigger in which i have to admit i find that my worse culprit often the next day i will suffer a bad flush so i can never go out drinking with friends 2 nights in a row. Im at my witts end and very depressed.

Sorry to introduce myself in such a negative way. Any advice or natural treatments that have helped please let me know.

Take care and good look!

Welcome to the Rosacea Forum. You are not alone.

As you can see, there are over 800 members of this forum and they are here because they too are searching for help. Many have found ways to control rosacea and if you keep searching you will find something to control yours. If rosacea wasn't a problem, this forum would not exist. Read, read and keep reading. You will note that many are just as frustrated as you are, so you are not alone. There is an X-Factor in rosacea that you should read about, which means that for the most part, what treatment works for one rosacean may not work for another. That is sad, but the truth. There hasn't ever been found one treatment that works for all rosaceans. Not one. You will have to search until you find one that works for you, and you have found the best place on the internet to find the treatment that will work for you.

Many thanks for the warm greeting. I am amazed at how many other sufferers there are out there with simular problems to myself. This forum is a breathe of fresh air and so far a wealth of knowledge!

I have allready made full advantage of highlighting my thoughts and giving my help to others on here. I feel very welcome and happy to have found such a caring place.

Orion
17th March 2006, 07:48 PM
Orion

So sorry to hear how sad you are feeling, I too have been very low with this condition.

When I suffer from a flare as you say I beome a different person, my husband says he wants the old me back!

I know how desperate and hopeless you can feel at bad times and I sympathize. You try to tell yourself this is silly I could have cancer or have lost a limb or be faced with starvation etc etc but your mind just fixes on the problems with your face. Then you feel selfish and stupid when you read about the terrible things/conditions/decisions other people in the world face - it is a very wicked condition.

I have the suppoort of a wonderful husband but I stll hide the torment as much as possible - is that because I feel guilty about being vain?

I have never been what you would call a natural beauty, but I think I passed as ok! But now I feel ugly and undeserving of attention, which I know is silly I have known my husband for over 25 years and I am only 42!

I have resorted to IPL which I have foud some success with - my husband says it has improved greatly but I dare not say this as I think I may not be objective and it is just wishfull thinking. The treatments are very expensive and I kknow I am lucky to be able to afford them. I also take antibiotics because a flare for me is a covering of tiny spots - not nice!

I too have tried many 'miracle creams' - don't waste your money - aloe vera gel was about the best. It is horrible how we always belive the next thing we read may be the answer.

I feel as though I have spent a lot of time saying I & me in this post and feel it is starting to sound a bit me, me, me when I am supposed to be supporting you!!
Try to have a positive outlook - I know this is hard
Find a really good friend to open up to - this helps a lot I have a great one, and although at first you won't be able to tell them everything gradually when you have started to talk, things will become easier to say.
You may be lucky and find a sypathetic docotr, unfortunately mine isn't neither was the private dermatologist, but they may not all be the same and you may be lucky.

Remember to live your life it all too soon goes by and you arrive at my age and think how did I get to be so middle aged - I know you are young and this condition must be hard at this stage in your life but remember there are new treatments on the horizon or even 10 years down the line and you will be young enough to benefit from them

Face the world try to find that confident person that is in there and live, ok make small adjustments to your lifestyle - alcohol in moderation only! You CAN still enjoy life and you will find a person who will love you for what is inside.



Hi Jet!

First of all i must thank you for such a great reply in which I utterly relate to. I can believe how you describe your feelings when you say its not like you have a life threating disease etc I often say to myself that exact same thing! However Im begining to think it may be life threating to someone with allready low self asteem.

This disease as i call it can litterally ruin a pesons life. Im 28 and feel I have missed out on so much in life. Missed opportunities such as relationships and employment! I do however try to keep up my confidence up even when times are bad because thats me its me personallity and I dont want this disease to change me anymore than it allready has. I find if i dont keep up my strength i will simply crack up.

Please dont worry about your reply being all you it was far from it and i found it very informative and supporting! I find great help from reading and learning from other peoples experiences. I am very happy to see your IPL treatments to be of some success! I for one am to scared to have any laser treatment and of course the expense is too much for me regardless.

I may give that cream you noted a try. Im up for trying anything at the moment.

Many thanks for the support!