Any suggestions appreciated

[leaves]

Hi, very new to this. Trying to learn all I can, but find all the info. very overwhelming. I'm 54 y/o. A couple of months ago I woke up one morning with a very sore chin. A burning ache - if that sounds possible. Chin has a purplish look with small blood vessels starting to form. Went to Dermatologist who diagnosed Rosacea. Was put on antibiotic (Doxycyline) and Finacea. One day I feel it looks/feels better, the next day I feel it is worse. Don't know where the best place is to start, or even what questions to even ask. Any help would be appreciated. Thanks

[Brady Barrows]

Hi, very new to this. Trying to learn all I can, but find all the info. very overwhelming. I'm 54 y/o. A couple of months ago I woke up one morning with a very sore chin. A burning ache - if that sounds possible. Chin has a purplish look with small blood vessels starting to form. Went to Dermatologist who diagnosed Rosacea. Was put on antibiotic (Doxycyline) and Finacea. One day I feel it looks/feels better, the next day I feel it is worse. Don't know where the best place is to start, or even what questions to even ask. Any help would be appreciated. Thanks

Did you read the Newbies 101 sticky note at the top of this forum? That is a good place to start reading. Knowledge is powerful stuff and knowing what other rosaceans are doing to control their rosacea is what this is all about. What works for one rosacean may not work for you, but you can gain a lot of insight by reading what is going on in this forum as well as the information provided in the sticky note.

[leaves]

I did read it. You just made me feel very unwelcomed here. Sorry. Just feel very down and out right now. There is a lot of infomation to digest. You have been at it for a while. I have not. Was hoping to zero in on what is going on. Lots of words but no real solutions. Guess that is what Rosasea is all about. Did learn a lot - but want to go somewhere where I feel more welcomed. Bye

[IowaDavid]

Finacea has aggravated some people's skin, I think. Don't settle for what your doctor offers you simply because they're a doctor. That's caused many of us here set-backs and unnecessary pain.

Unfortunately, none of us can take away your disorder with a silver bullet; we're here to be constructive and to disseminate information. If you feel like you need someone to talk to and share your condition/pain with, try to find someone with a similar disease manifestation as yourself and contact them via PM or email.

Otherwise, the only thing we can do is urge you to read and educate yourself as to how best to treat your specific symptoms. We're not a pity-party here--we're here to empower people to take control of their own healthcare when the majority of GPs and dermatologists have nothing to offer us.

Good luck, and, if you're interested in learning and treatment, stick around. The online rosacea community is vibrant both here and at the rosacea-support yahoo group, and there are many hundreds of active posters, and readers, that are just as fed up with rosacea as you are.

It's one step at a time with this disorder, don't take the first disappointment as immutable truth--you can get better. But it takes an active role on your part. Good luck.

David

[leaves]

Thanks David and SORRY Brady. Just felt you were telling me that I didn't do my homework before posting. I have read a lot. Very scared of this, and yes, feeling sorry for myself. Depression big time. No friends have heard of this. My MD is pretty cool, but can't get the pain to stop. Will continue to read and keep the mouth shut. Wish there was a support group in my area. Need someone to talk to who understands the problems. I have become extremely self concious. Isolated. Thanks. L

[stringer97]

hi i am fairly new here. i know how this disease can knock you back. i am 23 uff did i say 22 in my other post. :roll:

your more than welcome to talk to me via messenger. im happy to talk to you and share you problems. i understand your pain, i am new to this disease so i can advise you much./ but i do suffer from hyperhidrosis as well and run my owqn support group. i listen to many members and share their problems. feel free to contact me im more than happy just to be a friend to you.

daniel

[redhotoz]

I have read a lot. Very scared of this, and yes, feeling sorry for myself. Depression big time. No friends have heard of this. My MD is pretty cool, but can't get the pain to stop. Will continue to read and keep the mouth shut. Wish there was a support group in my area. Need someone to talk to who understands the problems. I have become extremely self concious. Isolated. Thanks. L

Hi Leaves

Believe me, we have all been there - Rosacea can be so depresssing at times. At best, we live in hope for a cure. At the moment all we can do is try new things to see what works for us.

I am currently taking Doxycycline but hate the negative side effects (mostly the yeast infections ). I have read both good and bad reports on Financea, I haven't tried it myself. If you do a search on the Forum for Financea, you will find some of these reports from others here.

Hang in there and keep up the reading. The more understanding you have of this dreaded Rosacea, the better position you will be in to try to control it.

[Brady Barrows]

Thanks David and SORRY Brady. Just felt you were telling me that I didn't do my homework before posting. I have read a lot. Very scared of this, and yes, feeling sorry for myself. Depression big time. No friends have heard of this. My MD is pretty cool, but can't get the pain to stop. Will continue to read and keep the mouth shut. Wish there was a support group in my area. Need someone to talk to who understands the problems. I have become extremely self concious. Isolated. Thanks. L

leaves,
I understand completely. I wasn't sure if you had read the Newbies 101 and many who are new simply post without doing their homework. I apologize since you obviously have done your homework. Rosacea aint' for sissies. This is one tough problem and we are here to help. Many have found ways to control it but it won't go away. The general concensus is that is can't be cured. However, some have reported it has gone into remission. And you will find reports here in this forum of how it is controlled, either through prescription drugs, light therapy, diet, and/or non prescription treatments. I forgot to welcome you and hope you stay. You might be pleasantly surprised at the wisdom of this group.

[leaves]

Thank you Brady. I have already learned a lot but it is all so confusing. I'm sure it is for everyone. I will keep reading and hopefully offering some useful information also. Do you know anyone or anywhere I can go that deals with just the chin? Mine is not red but more purplish. But more than anything it is sore. Need to start thinking about triggers but not exactly sure how to go about this. Feel less alone - more hopeful. Seems like a long process and I am not the most patient person in the world. Look forward to hearing from you and others. L

[Brady Barrows]

Thank you Brady. I have already learned a lot but it is all so confusing. I'm sure it is for everyone. I will keep reading and hopefully offering some useful information also. Do you know anyone or anywhere I can go that deals with just the chin? Mine is not red but more purplish. But more than anything it is sore. Need to start thinking about triggers but not exactly sure how to go about this. Feel less alone - more hopeful. Seems like a long process and I am not the most patient person in the world. Look forward to hearing from you and others. L

leaves,

Your description of just the chin sounds unusual, but since the physician said it is rosacea, you might want a second opinion since rosacea can be misdiagnosed and it wouldn't hurt to have another physician concur with the first diagnosis >

http://www.rosaceans.com/html/misdiagnosed.html

The purplish color might be something else?

The list of triggers have been published by the NRS >

http://rosacea.org/patients/faq.html#commonlifestyle

I have also written a Rosacea 101 editorial >

http://www.rosaceans.com/html/rosacea101.html

After several hours of more homework, I think you will find something that will get your chin up and back to your usual state. It might take a couple of weeks of treatment but I am confident you will get this monster under control.

[lafittevillage]

My derm. told me that one in six people have burning associated with Finecea before going on an giving me a sample. As with all topicals, be sure to do a spot test on an obscure spot before applying it to the whole area.

[leaves]

Thank you for sharing experience and suggestion. My burning started the morning I woke up with an inflamed chin, purplish hue, and the feeling it was swollen (although did not look it). Trying to read all that I can about Rosacea, but my eyes are going crossed from all the info. Beginning to think that Brady is right. May need to get second opinion. This may not be rosacea. I sleep with my chin buried in my pillow. Even if I try not to, I wake up this way. I'm beginning to think that I am somehow cutting off circulation. Think this would produce same symptoms. Will keep on reading and appreciate all the help I can get. I hate the pain and purple!! Thank you and Bless you. L

[leaves]

Got up this morning and chin looked and felt pretty good. Applied Finacea as directed and within 15 min. chin was burning and looked purplish. HMMMM? I am going to stop Finacea for now and see what happens. Think purplish color is just "redness" over my chin area. Getting a lot of spider veins also. Kinda a mix of colors. Keep the suggestions and support coming. I do appreciate it all. L

[Kelli]

It sounds like you're having an allergic reaction to it.

I would say you're right about stopping it!

[claudia]

Got up this morning and chin looked and felt pretty good. Applied Finacea as directed and within 15 min. chin was burning and looked purplish. HMMMM?

Finacea seems to work for some but for many of us it's too irritating...eventho it's for rosacea! Metrogel or Lotion might be more gentle. Don't try to work through the pain!

[leaves]

Thank you Claudia and Kelli, OK, that baby is just way tooooo cute! Would not have thought about an allergic reaction from Finacea or that it can be MORE irritating if not for this forum and all of you!! Will continue to work through this. I was prescibed Elidel for night time. Now I am concerned about it also. Will take one step at a time. Thank you again for your response and concern. L

[Kelli]

Claudia said it right - don't work through pain. If it irritates once, it will get worse!

If you want to know of a good cleanser and moisturizer, try checking out Aveeno's new line for sensitive red skin. I LOVE it!

http://aveeno.com/productListAction.do?pid=11000

I actually use the nighttime moisturizer during the day under my make up. It doesn't have SPF, but I need the moistur right now. The other one just wasn't enough for me. The cleanser felt so good, too. It felt like I was washing with bubbles - it's foaming cleanser, not a lotion or something you have to lather.

Hope that helps. And thanks - that's my little man. He keeps me going when it gets rough. :-)

[redhotoz]

And thanks - that's my little man. He keeps me going when it gets rough. :-)

So right Kelli! My kids are little angels in disguise sometimes - especially when I am at a low point! My eldest will say something like, 'Your face doesn't look very red today Mummy' and I just give a big hug! Kids are always honest!

Red

[keisha06]

No kids personally . . . but two nephews to whom I'm very close . . . just to add how wonderful they can be . . . my one nephew who is just 10 has always been so thoughtful. He and I were always real water buddies in the summer - both loving the water. Well when my rosacea came out that made it extremely difficult - especially since it was such a HOT summer for around here . . . the few times I'd go out and really play in the water with him . . .he was always so considerate - didn't I have to be careful of my face with the water? was it too hot out for me? . . .little comments that really meant something.

Amazing what kids can come out with .. . and how sometime they understand what adults don't.

[Kelli]

When my face was at it's worst, my son would come up and just pat my cheek. Very softly. At first, I'd have to tell him "Soft touch" because it would almost drop me to my knees if he touched with normal pressure. then he'd just stare at my face trying to figure out what was wrong.

My nephew, who is now 6, asked me when I was pregnant (he was like 3 at the time) what happened to my face. I said that my skin was sick, or something like that. On one hand, it hurt that after all the make up I'd applied wasn't working, but he also showed such caring for me after that. Like I was sick or something.

Kids are amazing! I hope my little man doesn't get this. He has very pale skin, but he also takes after his Daddy and has Dermagraphics. We touch him with pressure on his skin and it turns bright red. I'm crossing my fingers he doesn't have to have this when he's older!

[leaves]

Stopped using Finacea. Feels better, but still very purple. It was very cold at work today and several people commented on my chin turning purple. Just laughed it off, blaming the cold, but embarrassing! Trying new pillow also to see if I can sleep without burying my chin into pillow. Haven't started on any triggers yet. Still reading. Trying to feel optomistic. Hope everyone else is doing well. Suggestions are always appreciated. Leslie

[keisha06]

Hey Leaves,
if heat in a pillow could be an issue - a chillow is a great way to get around that. If you haven't heard of it, it is a product that goes inside the pillow and keeps cool pretty much all night - I have one and love it. If you're interested, just google for chillow.

[leaves]

Hi Diane,

Didn't think about it being the heat from the pillow. I tend to bury my chin into the pillow. Try not to, but wake up this way. Was thinking it was more of a rubbing irritation or stopping the circulation. Will think about the heat build up. This is terrific. Thanks. Leslie