Hello everyone!

[DonH]

Hello everyone! I have been a long time rosacea sufferer and have tried many things over the years to gain control of this condition, things like IPL, meds, ect. and it has gotten a little better in the last year or so (espically after the photo facial RF treatments). I am really looking forward to chatting with you all and hopefully I will find some info in this forum that will help my condition!

Don

[fanta]

Hi Don

are you Sicilian?

fanta

[irishgenes]

Hi, Don! :) Welcome to the forum. We'd be interested in hearing about your photofacial RF treatments. What doctor did you go to? I've been afraid of RF machines because some people suffer from permanent waffling of the skin due to fat necrosis. Here is a typical post below concerning this subject from a plastic surgery forum. You can find other posts by Googling "IPL RF fat loss".
__________________________________________________ __

I have had numerous Photofacial/IPL..no RF with no side effects..they were helping my rosacea problem with the burning, redness, and broken blood vessels.
Then June 24 I go in for my maintenance treatment ..it was going to be simple..like always..but NOOOOOOOOOOOO...at the last minute the doctor I have known and trusted for 3 years informed me he was going to switch to a different machine..that I would get even better results with this machine...
FOtofacial RF!!!!!!! At the time I knew nothing of RF..I asked him about RF ..what it means, what are the potential side effects..the dangers..and he told me nothing to worry about..that the only side effects after this treatment will be mild swelling and redness like always.
Well....I should have listened to my gut that day because 6 weeks later I started seeing these shallow indentations..and some tiny tears..stretch like marks..I am waiting for my cheeks to become sunken in and hollowed out..or a cheek pad to fall. UNREAL!!!!!!! I feel so betrayed and lied to ..and of course when I call them and tell them this and ask straight out.."Is what I am experiencing called Fat Necrosis..thermage damage?) And they never answer the question straight on ..there answer always is "We've never seen That." Well..I didn't ask if you've seen it !!!!! ughhh
So now I don't know what to do ..what is there for me to do at this point.???
Any advice anyone..Anyone with similar experience?
Sk8ter

[DonH]

Hi Don

are you Sicilian?

fanta

I'm Irish-German how about yourself?

[DonH]

Hi, Don! :) Welcome to the forum. We'd be interested in hearing about your photofacial RF treatments. What doctor did you go to? I've been afraid of RF machines because some people suffer from permanent waffling of the skin due to fat necrosis. Here is a typical post below concerning this subject from a plastic surgery forum. You can find other posts by Googling "IPL RF fat loss".
__________________________________________________ __

I have had numerous Photofacial/IPL..no RF with no side effects..they were helping my rosacea problem with the burning, redness, and broken blood vessels.
Then June 24 I go in for my maintenance treatment ..it was going to be simple..like always..but NOOOOOOOOOOOO...at the last minute the doctor I have known and trusted for 3 years informed me he was going to switch to a different machine..that I would get even better results with this machine...
FOtofacial RF!!!!!!! At the time I knew nothing of RF..I asked him about RF ..what it means, what are the potential side effects..the dangers..and he told me nothing to worry about..that the only side effects after this treatment will be mild swelling and redness like always.
Well....I should have listened to my gut that day because 6 weeks later I started seeing these shallow indentations..and some tiny tears..stretch like marks..I am waiting for my cheeks to become sunken in and hollowed out..or a cheek pad to fall. UNREAL!!!!!!! I feel so betrayed and lied to ..and of course when I call them and tell them this and ask straight out.."Is what I am experiencing called Fat Necrosis..thermage damage?) And they never answer the question straight on ..there answer always is "We've never seen That." Well..I didn't ask if you've seen it !!!!! ughhh
So now I don't know what to do ..what is there for me to do at this point.???
Any advice anyone..Anyone with similar experience?
Sk8ter


Wow I have never heard of this happening, had I known I would have had second thoughts!! I had a total of seven treatments and all were RF, I live in WA State and the Derm. I went to is Peter cooperrider at (laser treatment centers Kirkland, WA). From what I know he is one of the best derm. on the west coat and was highly recommended by three different Derm. I went to. I know he also travel's throughout the world teaching other derms. about the latest technologys and he give's seminar's too.

He told me that he has basically every machine on the market and he highly recommended the RF machine for my situation. Towards the end of the treatments I did start to notice some improvement but not $3,500 worth!

The last visit I had with him he basically said he wasn't seeing the result's he wanted to see and that he would like to mabey try a more aggressive approach possibly laser (I have heard some real horror stories about laser no thanks!). He did put me on some anti inflamitories however the particular one I was taking at the time seem to turn my skin grey
:shock: so I immed. stopped taking it.

Over the years I have learned to eat a certain way and take certain supplement's to somewhat control flare-up's but still have to deal with it every day like everyone else in this forum. At one point it became so bad I up and quit a job that I really liked I had been there for over ten years and was making very good money, it was a very stressful position I held and would cause constant flare-up's and embarrassment, I just couldn't take it anymore!

Not too long after I quit I was introduced to a work at home type job through a family member and I gotta say it was a real blessing, I no longer work in a high stress enviroment, I work my own hours, have more time with my family and make great money, all this while helping other's!:D

Some day there will be a cure! 100% remission for us all, I pray for it everyday!


Don


Here's a couple links to my derm. site, has anyone ever heard of Dr. cooperrider?

http://www.kirklandlaser.com/index.html


http://www.kirklandlaser.com/staff_cooperrider.html

[irishgenes]

I'm on the east coast, so I haven't heard of your doctor. Be careful when a doctor starts talking about getting "more aggressive" with your treatment. That is usually when people have gotten bad side effects. On that website, the woman's butt looks better after treatment, but pictures can be faked. Mesotherapy is generally considered to be quackery. Below quote is from this website: http://www.medicinenet.com/script/main/art.asp?articlekey=52232
__________________________________________________ __
Not everyone is so gung-ho on the benefits of mesotherapy. Even though it was recognized in 1987 by the French Academy of Medicine as a part of traditional medicine, there have been no proven scientific benefits or merits, says Rod Rohrich, MD, president-elect of the American Society of Plastic Surgeons and chairman of plastic surgery at the University of Texas Southwestern Medical Center in Dallas. "This borders on medical experimentation," he says. "Injecting unknown substances into someone with multiple needle sticks is almost unconscionable." ......That's what Leroy Young, MD, says as well. To Young, chairman of the nonsurgical procedures committee for the American Society of Aesthetic Plastic Surgery, mesotherapy is nothing more than "quackery."
__________________________________________________ __
I am not calling your doctor a quack or saying you should quit going to him. Just research the machines and doctors in your area a little more so you'll stay safe.

[fanta]

Hi Don

are you Sicilian?

fanta

I'm Irish-German how about yourself?
Biologically Im Danish (50%)-Italian (25%)-Maltese (19%)-Serbian (6%)
(a real bastard)

I guess its the 50% Danish genes giving me trouble.

[DonH]

I'm on the east coast, so I haven't heard of your doctor. Be careful when a doctor starts talking about getting "more aggressive" with your treatment. That is usually when people have gotten bad side effects. On that website, the woman's butt looks better after treatment, but pictures can be faked. Mesotherapy is generally considered to be quackery. Below quote is from this website: http://www.medicinenet.com/script/main/art.asp?articlekey=52232
__________________________________________________ __
Not everyone is so gung-ho on the benefits of mesotherapy. Even though it was recognized in 1987 by the French Academy of Medicine as a part of traditional medicine, there have been no proven scientific benefits or merits, says Rod Rohrich, MD, president-elect of the American Society of Plastic Surgeons and chairman of plastic surgery at the University of Texas Southwestern Medical Center in Dallas. "This borders on medical experimentation," he says. "Injecting unknown substances into someone with multiple needle sticks is almost unconscionable." ......That's what Leroy Young, MD, says as well. To Young, chairman of the nonsurgical procedures committee for the American Society of Aesthetic Plastic Surgery, mesotherapy is nothing more than "quackery."
__________________________________________________ __
I am not calling your doctor a quack or saying you should quit going to him. Just research the machines and doctors in your area a little more so you'll stay safe.


LOL I didn't even see the pic of the ladies butt! I just googled his name and then copied the link. Just curious, what treatments have you done and did you have any luck? You know the thing that really stumps me is that my mom,dad and brother have perfect skin, they can exercise, lay in the sun all day, drink ect. if I so much as even think of doing one of those things my face will explode :shock: Man talk about unfair!

[DonH]

Hi Don

are you Sicilian?

fanta

I'm Irish-German how about yourself?
Biologically Im Danish (50%)-Italian (25%)-Maltese (19%)-Serbian (6%)
(a real bastard)

I guess its the 50% Danish genes giving me trouble.


I hear ya, I think it's my Irish side that's giving me the trouble!

[DonH]

Can anyone recommend a good Derm. in the Seattle, Tacome Wa area? If so please let me know and I'll check em' out. I think it's time I switch, this derm.
doesn't seem to be doing the trick.

Don

[irishgenes]

Most people on this board have mentioned Dr. Jerry Darm, who is in a suburb of Portland, Oregon. You are fairly close to him, considering that some people have flown across the country to see him. He was taught how to treat rosacea by Dr. Nase, I believe. By the way, do you have Dr. Nase's book "Beating Rosacea"? It is our rosacea bible. A bit outdated on the laser treatments, though, as that field advances so quickly with new machines coming out all the time. Here is Dr. Darm's website: http://www.drdarm.com/index.asp?pgid=70 You can do a Forum search on "Darm" to see what others have said about him in the past.

And if you look down at the "Regions: North America" section, you will see a few recommendations for doctors--unfortunately, not many. I haven't found any laser doctor I can trust on the east coast. I'm still waiting. I've been on doxycycline 25 mg. twice a day (like Periostat) and it has been very effective in preventing my papules/pustules (known as p&p around here!) I am considering low dose Accutane at this time. Lots of discussion on that subject in the Prescription Medications section.

[JR]

Hi Don

I'm also new here and I'm really looking forward to chatting with people that knows what it means to have rosacea. Hopefully, we can help each other out. Just remember, keep the faith ;)

Besides, if we can put a man on the moon, then it shouldn't be that diffucult to cure this shit... :)

/JR

[DonH]

Most people on this board have mentioned Dr. Jerry Darm, who is in a suburb of Portland, Oregon. You are fairly close to him, considering that some people have flown across the country to see him. He was taught how to treat rosacea by Dr. Nase, I believe. By the way, do you have Dr. Nase's book "Beating Rosacea"? It is our rosacea bible. A bit outdated on the laser treatments, though, as that field advances so quickly with new machines coming out all the time. Here is Dr. Darm's website: http://www.drdarm.com/index.asp?pgid=70 You can do a Forum search on "Darm" to see what others have said about him in the past.

And if you look down at the "Regions: North America" section, you will see a few recommendations for doctors--unfortunately, not many. I haven't found any laser doctor I can trust on the east coast. I'm still waiting. I've been on doxycycline 25 mg. twice a day (like Periostat) and it has been very effective in preventing my papules/pustules (known as p&p around here!) I am considering low dose Accutane at this time. Lots of discussion on that subject in the Prescription Medications section.



I have had this book for a while, is this the one you are referring to? This is the best book I have ever read when it comes to the treatment of rosacea! I'll check out Dr. Darm's site and mabey give em' a call!



http://img309.imageshack.us/img309/5868/p101000322nt.jpg

[DonH]

Hi Don

I'm also new here and I'm really looking forward to chatting with people that knows what it means to have rosacea. Hopefully, we can help each other out. Just remember, keep the faith ;)

Besides, if we can put a man on the moon, then it shouldn't be that diffucult to cure this shit... :)

/JR


JR wrote: Just remember, keep the faith. Always!!:wink:

[prometheus]

Hello and welcome Don.

[DonH]

Hello and welcome Don. Why thank you!

[irishgenes]

Yes, Don. That's the book! Dr. Darm does several treatments in a week for those who live out of state.

[trisht]

Hi Don,
I'm relatively new to the forum as well. I have been using The Sher System (Helen Sher's product) but I havent heard anyone comment on it. Its horrendously expensive but I cant find an alternative as yet. I have sent off for some Face Doctor products (claims that seabuckthorn oil cures rosacea/kills the demodex mites etc). Have you heard of any of these??
Regards
Trish

[DonH]

Hi Don,
I'm relatively new to the forum as well. I have been using The Sher System (Helen Sher's product) but I havent heard anyone comment on it. Its horrendously expensive but I cant find an alternative as yet. I have sent off for some Face Doctor products (claims that seabuckthorn oil cures rosacea/kills the demodex mites etc). Have you heard of any of these??
Regards
Trish

Hello trisht I have tried the faceDoctor soap not sure if it's the same thing you ordered though and it was very hard on my skin! It has a very strong smell and if your skin is at all sensitive I would stay away. As far as the Helen Sher's products I know nothing about them but I would be interested in trying them out!


Don

[irishgenes]

Trish, do you know about the Rosacea Search Engine? It is a compilation of posts from 3 or 4 rosacea forums. I typed in "sher" and got 410 hits. Happy reading! http://www.rosaceagroup.org/cgi-bin/search.cgi?q=sher&cmd=Search%21

[trisht]

Geez Thanks IrishGenes,
No I didnt know about that search engine. I,m not the most computer literate person in the world. Thank you again. Did you have a chance to go through any of these?
Trish

[irishgenes]

Nope. I can't use any topicals of any sort. I can only wash my face with olive oil soap that has no perfumes and dyes. I even have had to give up eye make-up. :cry:

[Sylvia66]

Hello Don :)

How big of a part does lineage (vrs genetics) play in rosacea I wonder.

My mother is from Germany. My dads lineage is English/Irish/Scottish.
No one from either side of the family (up to several generations back)
had rosacea... just beautiful skin (considering my bad skin, I'm the black
sheep of the family :roll: ).

[lafittevillage]

Me too! Everyone in my family has amazing skin, and here I am with horrible bumps/rosacea. My mama has this poreless, smooth, complexion that looks good all the time and she doesn't wear make-up! Might be due to how good she eats, who knows.

My family goes back to Sicily/Spain, but my grandmother had red hair/really light blue eyes/pale skin so maybe there is more to me than just Sicilian and Spanish. I know there was a French relative in there somewhere.

WAaaaaaaaaaaaah!

-Clings to her- I just want good skin! :(

[Sylvia66]

Me too! Everyone in my family has amazing skin, and here I am with horrible bumps/rosacea.
My mama has this poreless, smooth, complexion that looks good all the time and she doesn't
wear make-up! Might be due to how good she eats, who knows.

You know, I honestly feel diet doesn't play a factor in bad skin. All the
people I know with awesome skin, eat a lot of junk. When I was on a
health kick for two years, there was no change in my skin. My mom is in
her upper 70's... has clear almost wrinkle free skin. Her diet is questionable lol
Like tonight, she was eating pizza.

Who knows why some of us get rosacea. It might be as simple as missing a supplement :?:

[lafittevillage]

It'd be helpful if someone did!

[fanta]

Diet plays a role, Ive wanted to make some saving before Christmas and loose some weight before the big meals. Well, this has helped tremendously, not eating is great for rosacea.

[lafittevillage]

Diet plays a role, Ive wanted to make some saving before Christmas and loose some weight before the big meals. Well, this has helped tremendously, not eating is great for rosacea.

:?

I couldn't live without my cottage cheese and mango.

[Sylvia66]

...not eating is great for rosacea.

Say what :shock: