KPRF Treatments

[newboy102030]

Hi,

Can anyone tell me what the best treatments are for KPRF - for years I have assumed that I have roseace (no derm/doctors were sure and normally fobbed me off) but thanks to a couple of people on this site it looks like KPRF is the most likely.

I am currently on 10mg accutane, Metrogel and moxonidine, as I understand it I should maintain the accutane and moxonidine. My research has so far come up with 2 topical gels for KPRF, which are retin a and erythomycin - would you suggest I get my GP to prescribe one of these as a start and do you know if these can be taken with accutane?

Thanks,

Dave

[drnase]

We need to know where it is, the exact symptoms and the exact variant diagnosed -- there are dozens.

[newboy102030]

Thanks for responding Dr Nase.

Here are my symptoms, I have the small bumps on my arms and legs (never concerned me at all). I have very base redness on my cheeks and ears and some redness on my eyebrows. But nothing at all on my nose/forhead etc. I also have daily flushing/burning which is the worst part - when my cheeks flush they go dark red in blotches rather than across the whole of my face - every evening my ears also burn like crazy and appear purple!

I assumed I had rosacea until one or two people on the forum mentioned KPRF, I've subsequently emailed a photo of my cheeks/ears to Ryan on this forum and he's 99% its KPRF - primarily because of the symptoms above.

Currently I'm still on treatments for rosacea (10mg Accutane daily, 2x300mg moxonidine and metrogel). These seem to be having a limited effect - I've been on accutane now for 3 months and seen little improvement.

I would be more than willing to forward a photo to you for review.

When I visited a derm a couple of weeks ago I was fobbed off with the usual 'healthy glow' and told moxonidine was the best bet (which I'm already on). I'm also on the usual herbals as well including oil of oregano.

Any treatement advice you could offer would be much appreciated. I assume laser is my next option once I've finished the accutane but then I'm not sure which laser type is the best option - I'd consider any other options at this point.

I tried to get a prescription this week for Cymbalta (for the neural burning) as you recommended, but my GP was not keen to prescribe this as it is currently only allowed for depression in the UK and I don't want that on my records yet!

[drnase]

Please email me those jpeg photos to my drnase1000@hotmail.com. They will be kept in confidence. I would also like to see if you could get close up of red skin with and without bumps to see if there is skin disocoloation from immune cells......... sometimes you can tell.

[newboy102030]

Hi Dr Nase,

I have sent them to your account, the email will show from newboy102030

I'm fine if you either respond on the forum or direct.

I have the bumps on my arms/legs (which doesn't bother me) but nothing noticable I can see on my face.

Look forward to your response.

Dave

[Linda Wilkin]

I also have a similar situation. My arms are definately KP, because they have red goosebump like things all over them, but my face is just plain red. I thought it was rosacea for a long time but now I think it might be KPRF, becuase it is only red on my cheeks and I don't have any bumps or zits. What can I do for my face? I use metrogel at night and I wear makeup during the day, but I would love to not have to wear makeup all the time.

[phlika29]

Hi Lindahi:

Can I recommend that you have a look at this forum that specifically deals with this subject
http://www.keratosispilaris.org/forums/

[yellowred]

i think that i have KPRF, dr nasse , could I send you my photos?
thanks

[phlika29]

Dr Nase is not on this forum any more and so wont reply if you send any photos