Relax

[mvrabe]

People the root of all problems is in the mind, you are not the thoughts.search for the way to find the way back to the real you

[Spav]

Stress IMO is far from the root of all problems. Relaxing can be helpful for coping with the condition and reducing flares but it we never cure rosacea.

[TheMediumDog]

search for the way to find the way back to the real you

It has been found: Lysergic acid diethylamide. Does nothing for rosacea though.

Having said that, I've read some fascinating stuff recently, concerning the pineal gland, or so-called 'third eye'; identified in many mystic traditions as the physical seat of connection with higher orders.

The pineal gland releases a lot of melatonin. Its activity is heavily regulated by light. But more to the point, it controls (and/or is controlled by) circadian rhythms of the autonomic nervous system - and internal body temperature is part of the same system. That's the rosacea connection. A small one.

[CJBAY]

I do believe stress plays a huge role in this. I dont know if its the root, but I had a very stressful episode 2 years ago and rosacea popped its ugly face 3 months later. Of course now that I have it, that maintains the stress at some level every day, worrying about it etc. It may be a deeper cause, but I think in some people at least, stress either makes it worse, or triggered it in the first place.

[ewist]

People the root of all problems is in the mind, you are not the thoughts.search for the way to find the way back to the real you
Easier said than done...

[Simply Red]

People the root of all problems is in the mind, you are not the thoughts.search for the way to find the way back to the real you

I already know the way back to the real me; get rid of Rosacea. Honestly, if this disappeared tonight,"I" would be back tomorrow. But that's not goint to happen.

I know what you're saying about trying to relax, but like said, easier said than done.

[Mistica]

When a derm/doctor says, " stress makes rosacea worse. Can you identify a major stress factor in your life?"
I would like to say,"Yes, I am looking at it right now!".

[Melissa W]

laugh:
So true yes:

[Mistica]

My derm was an absolute arsehole yesterday. I am still stressed from the experience.
He wasn't brilliant the first time I consulted him, but he gave the impression he had a fairly good understanding of rosacea in comparison to others. For instance, that rosacea presents itself in different ways in different people and a bad flusher who experiences a lot of pain, doesn't necessarily have to be really red on the day of consultation.
When I told him about my previous experience with a derm, he interjected saying "You don't have to worry about that kind of attitude here. I see rosacea all the time and know what I am doing".

I had called the clinic several times regarding a medication problem and he had failed to return any of my calls. Also, he or the staff had lost my CD of photos. I told them on the phone they were rather unreliable and medical issues ought to be addressed promptly.
The derm must have got ticked off, as yesterday, he was really rude, starting as soon as I put foot in the door. He asked " what are you here for?!" Can you believe that?
There was no conversation about my use of sulfacetamide, or how it had helped or didn't help. He started typing me out another script as I was trying to talk to him. While I was saying it initially made my face really peel and burn etc, he sat there shaking his head, in disgreement!!!
When I said, it only seemed to really reduce sensitivity when it had formed a seal over the surface, the result being less pain, he jumped in and said " well that is my job done then. I have improved your quality of life! That is nonsense as I am still debilitated. He briefly looked at my face and declared me with minimal disease, adding that IPL didn't help rosacea, barring with the capillaries!
A complete contradiction to the letter he wrote previously to my GP, advising me to continue IPL with my own IPL doctor, as I had severe rosacea!
He got, up, and opened the door!
That consultation had to be 4 or 5 minutes tops and he wanted $98 for that.
I got to the desk and flatly refused to pay.
I tried to explain why, nobody would listen and after the staff telling me how red I was when I arrived, some of them ganged together and told me what lovely skin I had and declared me cured!!!

I still refused to pay and what with my partner having a real go at them and saying how disgraceful the staff were, the waiting room was all ears. In the end, I had to sign a form saying the government had to pay.
In our opinion, no one should have been paid.

I felt really, really stressed and of course, as the stress subsided, the next wave of flushing and burning began.
Even a short detour to the pet shop next door, to gaze upon the animals, didn't help.

Now I have no derm. But really, what use are they anyway. I can certainly do without that kind of stress.

I know it isn't me. I speak to other rosaceans in Brisbane and their stories reflect mine. It seems to be a world wide experience.

[Mistica]

I should add, that I had a consultation with my GP just prior to my derm appointment. It was a long session, about 40 minutes and I was red when I sat and and by the time he escorted me to the pathology department I was in full flush, burning crimson mode.
He noted the more I spoke the worse I became, which illustrated my problem with the simple daily life things, .. eating, talking, breathing.....
Other things he noted was the flush worsening when laying down.

When I got to the pathology desk, I was offered an ice pack as they felt the one I had probably wasn't cool enough. It was really cool actually, but my flush was simply bad.

Yes. It certainly sounds like I am with 'minimal disease' !!!

[Melissa W]

Jenny, I am so sorry. What an awful experience you had to endure. console:
That derm behaved abominably. That was great that you stood up to him and refused to pay. I don't think I could ever do that but I admire you immensely for being strong enough to tell him what you thought of his services. yes:

That was a terribly stressful experience and you are lucky your boyfriend was there by your side. That is why I like to have my husband go with me on my derm appts. I feel better knowing I have someone who can advocate for me and be objective about the appt also.

Try and put this visit out of your mind and forget about that poor excuse for a doctor. You are better off with no derm vs that derm. sidehug:
Is there a large teaching hospital in your area or in an area not too far away? You might be able to find someone knowledgeable about rosacea there.


Best wishes,
Melissa

[Mistica]

Melissa,

I never used to be so outspoken, but life has taught me that if I don't stand up for myself, no one else will ( usually, at least, not in this day and age).
When I met my partner back in 2004, he rarely had much to say to people when he disagreed with them. He would rather have avoided confrontation and let's face it, no one needs extra stress. If the issue at hand isn't overly important, then it is often better to simply let it go. Since accompanying me to some of my rosacea appointments though, he has become so incensed, he can't help himself. He describes these sessions as a living nightmare and he would have never believed such behaviour existed in the medical world, had he not witnessed it. And 'witness' is the key word here. While it is always nice to have him around for moral support, his main role in accompanying me to some of these appointments is as a witness.
I have no trouble at all with my GP's both here and in NZ. Nor do I have any trouble with other specialists. I have known my original derm since I was 14 yrs old and I still phone or email him from time to time. He doesn't know anything about IPL/Laser, as he has never incorporated them into this practice. I imagine he will retire in the near future, which is a shame. He is from the old school.
He and one other specialist back home told me right from the start, I am going to have a rough ride ahead of me and I will have to fight my way through it.
They were so right. I had no idea how much so, at the time.

It still makes me stunned though, when some derm's etc talk about reducing stress. Especially when they often do their upmost to cause it!!

[mattdog323]

forget a bout the old derms,

Find a new one,

Dermatologists fight rosacea with frustration,there is no cure

even if u find the best there still is frustration.

[Mistica]

I don't expect a cure, as there isn't one.
I don't even expect a derm to be fully informed or even to know how to make the best use of his/her IPL machine. Those types aren't found here.
What I do expect, is a consultation of decent length, politeness, attentiveness, and a two way conversation. A willingness for an intelligent discussion and openness to acquiring more knowledge.
I don't accept rudeness, nor a lack of professionalism from anyone.
There is simply no excuse.

I don't think I will even bother with a new derm at this stage. At least, not in the city where I am located.

[Melissa W]

What I do expect, is a consultation of decent length, politeness, attentiveness, and a two way conversation. A willingness for an intelligent discussion and openness to acquiring more knowledge.
I don't accept rudeness, nor a lack of professionalism from anyone.
There is simply no excuse.


Ditto.
That's the very least we should all accept.

[dave75]

good for you mistica! way to stand up to that so called dermatologist...i've had some bad ones too...so i know how you feel...its like ok, here's your prescription, give me your money and get the hell out of my office...very few have any idea about what it means to genuinely care about a patient.

[mattdog323]

jenny your dead right manners go a long way