Im Skywolf, and this is me.

[Skywolf]

http://s132.photobucket.com/albums/q19/Silversouldream/?action=view&current=Dscn0019.jpg&refPage=&imgAnch=imgAnch1
Hello all, Im Skywolf, and this is my face. I hate it. Nose swollen, face puffed up, eye lids just terrible (I remember when I used to have cheek bones) I feel that I have taken a step forward though, to allow people to see me, in all my "glory" but it is very hard, I have become a bit of a recluse, fearful of anyone looking at me. The flash washed out a lot of the red, but you can see its just not good. Im not currently under any medical advice, I don't have insurance and cant afford it, this is not a cheap condition. I am putting metrogel on, I get it from my Dad, who is also a rosacean, and it does help a bit, I was much worse. You also may notice Im quite bundled up. I keep it cool in my home, nice for the face, but the rest of me gets cold. Hot face, cold bod, one day I am waiting for a thunderstorm to form around my midsection!
I hope to find a way to get treatment, and hope to post some nice "after" "pics till then, this is me.

[Twickle Purple]

Hi Skywolf, welcome to the forum.

I'm not sure how much I can offer as my Rosacea is quite different. But I know the isolation and social discomfort this condition can cause.

You may want to check out this thread:

http://forum.rosaceagroup.org/viewtopic.php?t=4424
(especially Heather and Tamara at the end)

And this is our very own 'poster boy' (sorry Simon) for ZZ Cream:

http://forum.rosaceagroup.org/viewtopic.php?t=3669

This is Simon progress thread, check out the first page, then skip to the end so you can quickly see how well he progresses.

There are a lot of very helpful and informed people here and they can give more input then me.

I hope you find something that works for you!

All the best,
Twickle Purple

[Skywolf]

Thanks. I have read your posts with great interest, and I viewed your pictorial on your own path to being "normal". You also have many other skin problems that make me feel bad about feeling bad about myself. You have such hope and courage, as do so many others on this board. It gives ME hope. I was inspired to post my face because of IowaDavid (not sure I got that right, my appologies) His face looks like mine, and I WILL have a sucess story to share, its just getting there that is the b$^%h.

[Twickle Purple]

I look forward to seeing your success story! It doesn't need to cost an arm and a leg to get results. The ZZ cream that made the difference for some is not a prescription, but I don't know how much it costs.

Best of success Skywolf (love your name by the way.)
Twickle Purple

[phlika29]

Skywolf

Welcome to the forum. If you look back in the photo thread you will see my photo's there. I'm sorry that you have to worry about things like insurance, even for prescription meds. Although I often go privately I also know that at least my meds will be fairly cheap.

It may well be worthwhile considering prescription meds to get your symtpoms under control (such as low dose antibiotics) and then consider some other options such as diet, red light therapy, etc.

I also have a different type (more flushing and just a few v.small paps) and so have benefited from laser/IPL but I would reccomend the supplement grape seed extract or pine bark extract as a way of strenghtneing capillaries but once again I'm afraid it isn't cheap.

I wish you luck on your journey.

Sarah

[redhotoz]

Hi Laura

I've been promising to post in reply to your photo thread since you joined the Forum. Oh my! Between that time and now...well... :D guess I sweet talked you into being a Mod! :D And what a fantabulous Mod you are! Thank you!

Anyhoo....(it's a Wiggles thing)...

I'm not sure why I took so long to reply. Maybe I didn't like looking in the mirror. Akk! Does that sound bad? I mean, I think we have the same type of Rosacea...and I guess you've seen my pics! Urgh! I've spent some time looking at your photo and have visualised your face being clear of Rosacea. You are a very pretty lady...currently pulled down by the Rosacea beast. I would so love to see a smiling photo in time. :D

Laura, you are such a lovely lady and I konw that 2007 is going to bring you lots of wonderful things. Nah, I'm not psychic but I'm sending all my good vibes your way.

Jen

[Skywolf]

Awww, Jen, your gonna make me cry and melt down all my zz cream here!
I hate that pic of myself, but this is what it is, and its not pretty. I lurked around for quite a bit before I joined here, and spent a lot on time here in the photo section. Yup, I saw your photos, gosh that just looked so painful! Iowadavid was the face that got me to post my ugly mug up, the terrible acne, (his was one of the first I looked at) the pain I KNOW goes with it. Since then I have looked at many more faces here, all of them actually. What I notice is our eyes, we all have beautiful eyes.
And yea, ya talked me into being a mod, but its interesting, to say the least, gosh, just the porn bots alone are enough to make you go Eh? This is a rosacea board!

Laura

[redhotoz]

Ah, yes, the eyes can tell a lot indeed. What's that saying? Somethng like the eyes are the windows to the soul. I see a pretty lady through your eyes and also beneath the Rosacea. Given a smile...absolutely! :) Oh...and now that I have learnt that you are a bare footed hippy chick...that IowaDavid fancies you...well...gosh...you're competition, girl! LOL :wink:

Luv Jen x

[Skywolf]

LOL!!! That is me, bare foot hippe chick, with a tattoo! And there IS a beautiful face under here somewhere, it WILL happen. Maybe not through zz cream, though its working so far, but if not that then something else. I have come out of my depressed state of mind of and am fighting the damn thing back! I owe that to people on this board, for their generosity, their stories, courage, and just being silly sometimes.

Laura

[redhotoz]

I have come out of my depressed state of mind of and am fighting the damn thing back! I owe that to people on this board, for their generosity, their stories, courage, and just being silly sometimes.

Laura

Ahhhh, I am sooo happy to hear this Laura! Fantabulous! I've been there too girl...perhaps I struggle from time to time with it but overall I think I'm in a good place.

Akk, I've pulled an all-nighter...but guess what went up today?! Ok, you can't guess...my new toilet roll holder that I bought off eBay! Yeay! I now have a new cordless drill....rrrrrr. Love it! Now, let me tell you, this is no ordinary toilet roll holder. Beautiful wood, with a shelf to put a special ornament on. Urgh...but I know I have to move the ornament (it came from my Mum) as I have no doubt one of my boys will smash it (by accident) in time. It's so beautiful...of a Mummy sitting down, one son leaning over towards the Mummy and the younger son on Mummy knee. Maybe I'll pozt a pic. :lol:

My Mum, middle sister and her 3 children will be here in a few weeks. So maybe I can finish some of the renovations...like the loo! :lol:

Silly enough...reckon so! Had a very...well...weird week!

Jen

[redhotoz]

Hey Laura

Ok, this is not a photo of my new toilet roll holder but of a projected new you! I asked Fut if it could be done:

http://img.photobucket.com/albums/v220/fut/improved.jpg

Looks good, huh!

Thanks, Fut!

Luv Jen x

[Skywolf]

Eeesh, I still look a bit scary that close up! Its better though, but couldnt ya have photo shopped my nose not still all mishsaped? LOL. And folks, my hair usualy looks MUCH better as well, I had it all combed back off my face to take the pic. I have more pics to post, since using the zz cream, but for some reason the computer is having a hissy fit when I try to load them.

Laura.

[fut]

I'm not a magician.

[Skywolf]

:( Guess I have to live with the nose.