My photos (photos there now!) [Archive]

newattitude

13th June 2006, 08:39 AM

hey there simon- i find that when i stop eating all the junk that i am so addicted to- primarily anything chocolate- and i concentrate more on protein and lots of green veggies and water, my skin does better. i really woiuld like to become stricter but i realize it is a process and we all have to start somewhere. maybe juicing is too much sugar- if ur juicing fruits as well. i really believe sugar is a big culprit in all of our problem.wine is loaded with it so maybe experimenting with not drinking for a week and see how it goes? also water water water to combat dehydratin especially while drinking wine and after.i wish you much success as we all strugge with this together. best regards................lin

hencloud1

13th June 2006, 09:13 AM

Hi

Thanks everyone for their comments. I will keep you updated with progress. i have a wedding (not mine) to go to on the 8th july and I amd etermined not to have to take minocin to get through it.

I am therefoe on a high protein no alchohol diet and using z cream and zinco.

Will keep you updated with photos etc.

Kind regards

Simon

redhotoz

13th June 2006, 10:02 AM

Hey Simon

You might want to consider cooking with coconut oil - lots of it. It's one of the 'good' fats to consume. Drizzle it over your vegies too.

Fingers crossed that things will be looking good for the wedding.

Jen

hencloud1

13th June 2006, 12:18 PM

Thanks Jen

I will give it a go. Also i noticed somewhere that you have a recipe for an egg drink in the morning. I am on the high protein Brady diet for a month. This is effectively the Atkins diet. Also how does this differ from the Candida diet.

Anyway breakfast is difficult so recipe for egg drink very gratefully received.

I presume that the candida diet reduces sugar similar to the Atkins. I would be interested to know what side effects there are. i have done the Atkins before and noted lack of energy for sports, reduced libido!, white scale on the back of the front teeth (what is that?) and irritability somethimes.

Thanks

Ps well done in the footie.

Simon

redhotoz

13th June 2006, 01:27 PM

Ah, the wonderful egg drink that I keep adding more things into as I discover them! I like the egg drink in the morning as it is quick and full of goodies. The basics are:

3 raw eggs
2 tablespoons of coconut oil
2 tablespoons of butter
Water
Whizz together in a blender and drink.

Contains (based on medium sized eggs):
71g fat; 16g protein; 2g carbohydrate
I use www.fitday.com to calculate the grams of ingredients.

I am playing around with other things to add and currently I also add:
3 teaspoons of Liquid Chloryphyll (turns the drink green!)
Few drops of Stevia for taste and health benefits
1/4 teaspoon of sea salt
Good dash of lemon juice (not packaged stuff)
1/4 teaspoon of Ascorbic Acid (Vitamin C)
1/4 teaspoon of Baking Soda (equal amounts of Ascorbic Acid and Baking Soda = Sodium Ascorbate)
4 drops of Oregano Oil
Next I will also add liquid Cod Liver Oil

I haven't done a complete comparison between the diets on offer and believe they all have their merit if followed correctly. The Candida Diet I am on is not just about curing Candida, it is about natural healing of the body, for a multitude of health ailments. I like that it challenges the standard beliefs and gives you more food for thought - yes, pun intended! LOL

I've written a bit about it here:
http://forum.rosaceagroup.org/viewtopic.php?t=3619

The basics of the Candida Diet is in the ratios of good fat (2.5-3.5) : protein (1) : carbohydrates (0.8 ). Ah, I just noticed that I made a mistake in that other thread! Should have been 2.5, not 2 as the low end of fats but the calculations are correct. I also discovered that I am a bit over 166cms tall, so have adjusted my ratios accordingly. Am I still growing or maybe it was in my bad conversion from feet and inches to centimetres? LOL Yes, sugar is out.

Side effects, well, that's a good question. It does go up and down. I can be pumped up and full of energy or feeling a bit flat, depending on the amount of yeast die off happening from the amount of anti-fungals I consume in a given day. This is why it has to be done slowly. I am not sure how this applies to those who do not have Candida (I have it systemically). I've not found my libido compromised. Don't know what white scale on the teeth is about? Irritability...maybe sometimes but I'm in a much better mental state than I was in the past since being on this diet, so I am far less stressed or irritable. Aside, I was taking antidepressants for a short time and stopped those on 3rd May, when I also stopped taking antibiotics. I don't need them now as this diet has lifted my spirits considerably. Can't wait to tell my GP about this!

I understand that with natural healing, it takes one month to heal for every year you have been 'sick'. I'm not yet 100% on the diet, as there are 4 stages. I am between stage one and stage two at the moment. I also understand that as you heal naturally, your body goes back and remembers past ailments, which can flare up. However, as each flare up occurs, it becomes less and less until it no longer happens. I'm in this for the long run, in conjunction with red light therapy. I don't see this as an overnight fix but a long term goal to be Rosacea (and Candida) free.

Go the Eagles! My son was going for the other team just to be different. Of course the other team was winning in the beginning and like the last game, the Eagles came through at the end! I'm not really a sports follower but hey a good game is a good game!

Luv Jen x

Tioh2001

13th June 2006, 02:28 PM

Hi Simon,

I'll keep my fingers crossed that the ZhongZhou ointiment works for you.

It's a strange substance...it's thick, it smells and it makes your eyes water (so best to use it right before going to bed). Some people find that their condition gets worse before it gets better - this didn't happen with me...it worked great for me from the very start. I find it is best to put on your skin (after cleansing) when the skin is dry. Just put on a light covering which will leave a slight white haze. It's best to use it every night for at least 4 months.

After a few weeks of use, I was finding the ointmnet too strong and drying for my skin. So after some experimentation, I began using it over a layer of coconut oil. Using it over oil is not recommended by Demodex Solutions...but it works for me. P&P's are very difficult to get under control....and once under control, you may have to continue using the ointment intermittently on a long term basis. I use it now only when needed....and have been using it for 1.5 years.

Sorry, I don't have any photos....I have avoided cameras for many years. Hopefully, you will post photo updates as time goes on to show the progress (or lack of progress) you make with the ZZ ointment? It is very brave of you to post your photos and I greatly admire your courage.

My skin is doing pretty well right now. I've been on a very strict diet for many years (which focusses on raw fruits and vegetables, juicing, no processed food), plus using very gentle skin care + zz ointment when needed + red light....my skin is looking better then it has in many years.

I'm far from being cured...but I have come a long, long way!

Good luck.

Heather

hencloud1

14th June 2006, 09:57 AM

Hi everyone

I felt very tired yesterday after being on the diet for 2 days. I know this is quite normal since I have done the atkins before which is similar.

Thanks Jen for the egg drink recipe. I had it this morning but added cod liver oil yuk. I will leave that out next time.

I am having trouble finding coconut oil but have sent my wife on a mission to find some in town.

I have noticed my Rosacea is much clamer in the morning than at night when it always flares up and p&ps become quite painful and full.

Today I felt a little better and skin seems to be a little less painful although there was a good crop of whiteheads around the top of my nose and into the eyes. I'm sure the recent hot weather in the uk (no jokes please) isn't helping.

Will post more photos soon.

regards

Simon

redhotoz

14th June 2006, 10:12 AM

Hey, I was thinking about the p&p you have. You might want to try spraying Nasalcrom/Rynacrom into a cotton wool ball and dabbing onto them. It really helps. The working ingredient is Cromolym Sodium. It's a nasal spray.

Jen

Max

17th June 2006, 05:04 PM

have you ever considered taking a course of (low dose) accutane?

i know it's not a miracle drug, but whenever i read postings about someone taking it who has p&p's it's almost working every time. once p&p's are fading (which someone taking accutane can expect, at least to a certain degree) redness, inflammation & flushing are reduced as well (those p&p's add quite an amount to generell inflammation of skin).

and i still think that accutane (at least low dose) is a more natural approach than all this antibiotic stuff (which i'm no big fan of^^)

redhotoz

17th June 2006, 05:29 PM

...and i still think that accutane (at least low dose) is a more natural approach than all this antibiotic stuff (which i'm no big fan of^^)
Hi Max

I am not so sure that Accutane is a "natural approach". Antibiotics come from nature (as my Derm pointed out to me) but that doesn't mean they are actually good for us long term. Negative side effects are a bugger for many meds!

I've not yet read a report about someone being on low dose Accutane, going off it and being Rosacea free. Please correct me if I am wrong! I believe it is the same with any med, when you go off it, Rosacea comes back.

Anyway, that's why I an trying diet and red light therapy. Got to give it a go and see where it takes me.

Jen

Max

17th June 2006, 09:50 PM

I've not yet read a report about someone being on low dose Accutane, going off it and being Rosacea free. Please correct me if I am wrong! I believe it is the same with any med, when you go off it, Rosacea comes back.

The point i was trying to make is that i've read so many posts of disappointed accutane users that were hoping it would help them fighting generell redness and flushing.

On the other side there are those with papulopustular rosacea that seem to achive great results.

Sorry, got no prove to back up those claims, just something that seemed obvious (for me) after reading in forums for years - great chance i'm completely wrong, anyway^^

hencloud1

19th June 2006, 10:59 AM

Hi

yes i have seriously considered accutane but i do get great results with minocin and my doctor is resistant to prescribe it to me. The side effects are reported to be worse.

I can get by with about 1 pill of minocin every 2 weeks but the point is i no longer want to be a slave to these drugs.

I have felt much better since coming off the antibiotics about 3 weeks ago.

I'm luck I'm married with an understanding wife. if I was single i would be taking bucket loads of any drug that could help because you know for sure that no women is going to look at you twice with this condition! anyway your confidence would be so shot to pieces you wouldn't go out of the house.

hencloud1

20th June 2006, 10:38 AM

Hi

http://i53.photobucket.com/albums/g79/hencloud/DCP_0002.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0003.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0001.jpg

Update. I have been on the diet for exactly one week and I have been using z cream for 4 days. I know I have a long way to go and there is little improvement. Skin is still very bumby but with reduced outbreaks of whiteheads and less really deep P&Ps. I know however that without the diet my skin would be a mess so although there is little improvement it has not gotten any worse and this is without antibiotics so i am encouraged a little.

I have been waiting for 2 weeks for Linda Sy products for moisturizing so I am currently using off the shelf moisturiser which isn't ideal. Is Linda Sy a con or have others received their goods.

I would be grateful for honest opinion about the difference from the first set of photos at the beginning of the forum to these a week later.

Diet includes;

No sugar
No alchohol
Small amounts of milk
Small amounta of tea and coffee (for sanity)
No bread

Plenty of water and lemon.

Come on Linda get those things in the post.

Simon

redhotoz

20th June 2006, 11:01 AM

Hi Simon

I opened up two windows so that I could flick between the old photos and today's photos. There certainly does look like some improvement to me. It looks like the p&p are clearing, especially on the one side of your face where there were larger p&p. Your face doesn't look as sore/inflammed. How does it feel now? Sometimes I find the 'feel' test better than the actual 'look' test. That is, if my face feels calm and not irritated, I know I am doing something right. I figure the 'look' part of it will follow. Very scientific, I know! LOL

Dr Sy is dinki di. Maybe you could e-mail to ask when your order left.

Keep up the great work! It looks like it's paying off! Whoo hoo!

Jen

hencloud1

20th June 2006, 12:52 PM

Thanks Jen

Yes I think you are right. I wouldn't say that I jump out of bed whooping about facing the general public but it does feel better and calmer and hopefully this will show later. I am not holding my breath and expect to relapse into a mess at any moment. Under normal circumstances it would be a lot lot worse. I also feel much more in control and less moody for coming off the antibiotics.

Interested in your red light array, are you a talented electrician or can anyone solder one together and are the leds special.

Simon

PS new tip - cut an organic cucumber in half and hold the wet side to your cheeks, very cool and soothing, beautiful.

Will post more photos next week.

redhotoz

20th June 2006, 01:21 PM

Yes, I think I was more moody on antibiotics too. I read an article that said antibiotics can cause depression and all sorts of other wonderful (KAK) side effects. In fact, another article linked inflammation to depression! Urgh! Not to say that we are all depressed but it sure has its moments with Rosacea!

Hey, I'm really glad to hear that your face FEELS calmer. That's great!

I am far from being "a talented electrician"! LOL The panels were made up for me and then put together by my boyfriend. He is an Electrician but also very good at putting something together from what ever he has hanging around the shed, hence the frame around the panels and the stand that he made up. Now that I've seen how it goes together though, I reckon most of us could do it - even me! I really like the calming efect of the red LED lights on my face. Not a jump out of bed miracle cure but it does feel like it is helping a lot. If you are interested in making your own, PM IowaDavid for some help.

I like the cucumber tip. Thanks.

Jen

Tioh2001

21st June 2006, 03:04 PM

Simon,

I really, really feel for you.

I wish I could say I see improvement between your 2 sets of pictures, but I'm afraid I can't. I'm glad you feel there is some improvement.

Although I have fought p&p's for many years, there were only 2 episodes that were as bad as you are now.

The first one was in October 2003 (this was before I realized I was fighting demodex as well as rosacea). I had been on a 100% vegan raw food diet for 3 years at this point. My p&p's were totally under control with this diet....then 1 made 1 change to my diet....I started eating flax oil. Within about 3 weeks, my face was covered in p&p's worse then I had ever had. I immediately stopped the flax oil, but even 8 months later, I still had the rash of p&p's. In September 2004 I began using the ZZ ointment, which got me clear of p&p's in just a few days.

Then in February 2005, after I had been using the ZZ ointment for about 6 months, I decided to take a break from it. I then decided to try taking oil of oregano because it is supposed to be very effective in treating demodex. I went on a very high dose for about 3 weeks...and WHAM...my entire face was covered in p&p's...terrible red, inflamed, pus filled, weeping p&p's. I stopped the oil of oregano, went back on the zz ointment, took a week off work and got things back under control.

Simon, during a bad breakout (like you are going through now) is the worst time to be making major changes to skin care and diet. I can see you are doing the very best you can....but you just never know what will set off more p&p's (like the flax oil and oil of oregano did for me).

I can only wish you the very best and hope things improve for you.

Heather

redhotoz

21st June 2006, 03:57 PM

...during a bad breakout (like you are going through now) is the worst time to be making major changes to skin care and diet. I can see you are doing the very best you can....but you just never know what will set off more p&p's...
Hi Heather

I think you know that we agree on most things here. But with this one, I half disagree. As you know, I know and so does Simon, having a raw face with p&p is a right pain! Ouch! I would agree that playing around with topicals when your face is raw and inflammed is probably not the best thing to do, as you may not get the benefit from it, not knowing if it may work when the skin is less inflammed. Did that make sense? LOL I also wonder why you recommended the ZZ Cream, if you feel that it is not a good time to introduce it for Simon? I'm confused by this. Would there be a better time for Simon to try the ZZ?

However, I do believe that changing what is eaten, a more 'calming' diet is the best thing to do at any stage of Rosacea. I can't see the harm in doing this. I know that it is not a miracle cure but surely it can help to pave the way for less irritation? I would be interested to know why you think changing diet when the face is inflammed is not a good idea. Thanks Heather. I do have great respect for your opinions.

Simon, I think you are very brave in your approach right now and I truly thank you for posting photos. It's not always easy to post photos! Going off antibiotics can result in a rebound effect and this may still happen. I hope it doesn't!

Anyway, keep it up and keep the photo up-dates happening, please. I am really interested to see how things go for you!

Jen

hencloud1

21st June 2006, 04:47 PM

Hi Heather

This is not a flare up, this actually is my skin without antibiotics, It doesn't tend to get any better but would be worse without the diet.

As I said before I have come off antibiotics before to give the internal organs a break. I did not change diet or do anything else on those occassions and my skin was an absolute mess, worse than you see here.

I decided to try the diet thing because when on antibiotics and sticking to a high protein diet my skin was so smooth and peechy.

I am grateful you recommended the Z cream. I have been using it and can't really say if there has been any improvement.

Thank you for your honest comments that's why i posted the photos and asked for them. Please keep them coming.

One positive - I do feel better for not being on the antibiotics so that must be doing some good at least internally.

Tioh2001

21st June 2006, 05:07 PM

Hi Jen,

I know what it is like to be desparate and to be willing to try anything and everything. Over time, I've become a big believer in trying 1 thing at a time...seeing how it works, then moving on to the next thing. But of course, we can't always do what is ideal (and I don't always follow this advice!).

But, as I have said before, p&p's, especially if they are caused by demodex (which is what I have experience with) are very tricky. As I hoped to illustrate in my last note, anything which changes the environment of the skin can cause unbelievely bad results. Who would have thought I would have such a bad reaction to a change in dietary oil or using a supplement? I hoped to illustrate that just making even ONE change at a time, can result in more p&p's.

I'm just afraid that by doing so many things at once, he will not know what is making him better....or worse.

So, I truly think that during a bad outbreak is not the best time to make many/major changes to diet and skin care....one thing at a time might be better. But to try a major change in diet, plus a change in moisturizer, plus adding the ZZ ointment, plus going off antibiotics, all at the same time, may make it difficult to know what is working and what isn't.

But Simon must make his own decisions. All we can do is offer our opinions, based on our experience....Simon must decide what is best for him.

Heather

redhotoz

21st June 2006, 05:33 PM

Hey Simon. It's good to hear that you are feeling better off the antibiotics. Yes, it wil be doing good for you internally! I felt that the cystic-welt-looking red spots on one side of your face (right side in the photos) looked better in the second lot of photos. Sorry, not sure if that is the right way to describe them but those ones looked pretty sore in the first lot of pics and looked like they started to heal in the second lot of pics.

Yes Heather, I agree, Ideally, one change at a time. I know that is what I believe in but it is very hard to stick to sometimes! We all want so desperately to rid ourselves of the red face thing going on, especially p&p. It's hard not to jump in and try the lot. I do now have a lot more restraint but still know that I do try more than one thing at a time.

Ahhh, patience is a virtue! :)

Jen

Tioh2001

21st June 2006, 06:49 PM

Simon,

Thanks for posting some more background on yourself. Now I see...you are used to this level of p&p's everytime you go off antibiotics. And you've tried diet changes before, so you have experience on how your skin will react.

And to answer an earlier question about Linda Sy. She is definitely not a con. She is very sincere in her desire to help people with rosacea. She used to be a regular poster on the yahoo rosacea support board many years ago (she's retired from practicing dermatology now). I have tried a few of her products, but the only one I like is her mild oatmeal facial cleanser.

Jen, thanks for understanding what I was trying to say....one thing at a time is best. I'm always trying something new.... I've been experiementing with taking supplemental MSM (sulphur) for the last month. I think....maybe....it has reduced my permanent redness a little. As well, I've been using the Rosacea Control Serum from SkinActives for 6 days. No negative reaction...but too soon to say if there has been any positive change.

Simon, I also use red light (I wasn't as creative as Jen in making my own - I purchased a unit). It has decreased my flushing a lot....and possibly some small benefit to p&p's. Since using the red light, the weeks inbetween needing to use the ZZ ointment continue to grow.

Heather

fut

22nd June 2006, 07:18 AM

Why don't you try the new drug Oracea, seems to be perfect for you. It isn't an antibiotic so you wont grow immune to it.

redhotoz

22nd June 2006, 10:08 AM

Hi Fut

Oracea is low dose Doxycycline, an antibiotic.

http://www.oracea.com/

"Oracea is a 40 mg capsule of doxycycline, containing 30 mg immediate release and 10 mg delayed release beads. The dosage of Oracea differs from that of doxycycline used to treat infections. To reduce the development of resistant bacteria as well as to maintain the effectiveness of other antibacterial drugs, Oracea should be used only as indicated. Traditional tetracycline contraindications, precautions, and warnings must be considered prior to the use of Oracea. This drug is contraindicated in people who have shown hypersensitivity to any of the tetracyclines.
Doxycycline, like other tetracycline drugs, can cause fetal harm when administered to a pregnant woman. Tetracycline drugs should not be used during tooth development (last half of pregnancy up to age of 8 years) as they may cause permanent discoloration of the teeth. Photosensitivity manifested by an exaggerated sunburn reaction has been observed in some individuals taking tetracyclines. Although this was not observed during the duration of the clinical studies with Oracea, patients should minimize or avoid exposure to natural or artificial sunlight. Safety of Oracea beyond 9 months has not been established."

It looks like Collagenex are being cautious with their wording "To reduce the development of resistant bacteria as well as to maintain the effectiveness of other antibacterial drugs, Oracea should be used only as indicated." The way I read this is that there is still a possibility of building up resistance to this drug, just like any other dose of antibiotics. Will be interesting to see how it goes longer term. However, they don't guarantee it's safe use beyond 9 months. I guess that's as long as the trials ran?

Jen

fut

22nd June 2006, 10:36 AM

Dr. Del Rosso said, "Oracea provides therapeutic efficacy in rosacea through anti-inflammatory and anti-collagenolytic effects and is devoid of antibiotic activity. Therefore, even with long-term use, development of antibiotic resistance is not an issue. Many rosacea patients will benefit from a once-daily formulation of doxycycline that has been optimized to treat rosacea effectively and safely."

And if you read further, just to make sure.

"Research has shown that certain tetracyclines can be chemically modified to retain non-antibiotic properties that may make them effective in treating diseases involving inflammation and/or destruction of the body's connective tissues. CollaGenex is evaluating various chemically modified tetracyclines (so called "IMPACS" compounds because they are Inhibitors of Multiple Proteases And CytokineS") to assess whether they are safe and effective in these applications. The Company has a pipeline of innovative product candidates with possible applications in dermatology and other disease states. In addition, CollaGenex has acquired the Restoraderm technology, a unique, proprietary dermal drug delivery system, and plans to develop a range of topical dermatological products with enhanced pharmacologic and cosmetic properties."

source: http://www.corporate-ir.net/ireye/ir_site.zhtml?ticker=CGPI&script=410&layout=-6&item_id=738183

case closed.

redhotoz

22nd June 2006, 10:55 AM

LOL I wasn't trying to make a case! :lol:

I was interested in why you said it was not an antibiotic. Thanks for the link. I guess time will tell if their claims come to fruition.

Jen

Max

22nd June 2006, 11:20 AM

case closed.

case reopened^^

directly from manufacturer:
"Oracea is a 40 mg capsule of doxycycline"

that's it - oracea is still an antibiotic, all they did was to test if low doses are still effecient.

collagenex does some testing with chemically modified tetracyclines to get rid of antibiotic actions - but unless someone proves me wrong that's NOT the case with Oracea.

It isn't an antibiotic so you wont grow immune to it
that's a common mistake, it's not "you" that developes this immunization, but certain strains of bacteria grow immune to specific antibiotics over the years (due to worldwide excessive use of this drug).

http://en.wikipedia.org/wiki/Antibiotic_resistance

newattitude

22nd June 2006, 06:08 PM

hey simon- i i do see a difference and i think that diet has certainly played a role for me .when i stick to lo carb and eat healthy and eat lots of veggies and some fruit i feel better. i think logic dictates that the less processed stuff we consume the better off we are.i have not eliminated dairy or gluten but i have drastically cut down and i am a real chocoholic since childhood so it is hard.sometimes i binge and then i am sorry.it is a process. i do think that moisturizers are tricky and anything new in your regimen should be watched carefully. what do you wash your face with- i must have missed that.continued good luck.....lin

fut

22nd June 2006, 11:19 PM

But it IS the case with Oracea. Oracea was made specifically for ROSACEA. Not ACNE. Why? Because it is devoid of anti-biotic activity to prevent side effects of growing immune to it. It is strictly an ANTI-INFLAMMATORY for PAPULES AND PUSTULES associated with ROSACEA.

that's a common mistake, it's not "you" that developes this immunization, but certain strains of bacteria grow immune to specific antibiotics over the years (due to worldwide excessive use of this drug).

"You" are still growing immune to it. These "certain strains of bacteria" are still part of YOU. If a person is under the sun for too long, does someone go up and say "Wow, your epidermal cells are really sun burned." NO. They say "YOU are really sun burned."

Case closed :lol:

redhotoz

23rd June 2006, 11:49 AM

Well, I guess it's a case of what we choose to believe from Collagenex. Is Oracea "devoid of antibiotic activity" (as in no long term bacterial resistance) or do we believe that it can "reduce the development of resistant bacteria", if Oracea is used as indicated. Reducing the possibility of bacterial resistance and being avoid of antibiotic activity are two different things. That's why I said it looks like Collagenex are being cautious with their wording now.

Anyway, I do like that a product has been brought out that specifically targets Rosacea and may more companies do the same.

Jen

fut

24th June 2006, 10:38 PM

hencloud1

26th June 2006, 02:35 PM

Hi everyone. This is now week two and here are updated photos taken this morning 26 June 2006. Actually my skin was better on Saturday so don't know what happened between then and now.

I have cheated a little on the diet and had a few beers (well it is the world cup and England are still in).

I am still using the Z cream which does seem to have helped but still getting a few P&Ps and still some deep ones. You can see on the right side one on the lip and a couple to the right of my chin. these just wont go away!. I am also having problems with the left eyebrow with some deep P&Ps there. Once squeezed they tend to go away very quickly but these are so deep that I cant get to them and are painful.

The surface of the skin however appears a little better and not quite so aggressive but still bad though I have to admit.

The left side of my face seems to be better than the right. I tend to sleep on the right side and can only think that this must be the only reason why it is slightly better. I have tried sleeping on my back but tend to wake up in the normal position.

Will update again next week.

http://i53.photobucket.com/albums/g79/hencloud/MyPictures0003.jpg
http://i53.photobucket.com/albums/g79/hencloud/MyPictures0002.jpg
http://i53.photobucket.com/albums/g79/hencloud/MyPictures0001.jpg

redhotoz

27th June 2006, 10:51 AM

Hi Simon

It does look like your face has gone backwards a little this week. It may be a 'rebound' effect from the antibiotics you were taking? It could also be a short flare up that will calm down as you heal naturally.

Can I please ask...was your face feeling hot and/or irritated at the time of the photos?

Keep the pics coming. I'm following your progress with great interest.

Jen

hencloud1

27th June 2006, 11:51 AM

Hi Jen

No my face was not hot. It looks slightly greasy because i have been using Linda Sy Vita oil. I tried coconut oil but my skin hated it and came up badly. The Vita oil is quite soothing and acts as a good moisturiser

Even though the P&Ps are not that great I have noticed the following. My skin used to scab over after an outbreak. Clear dried scabs that were easily peeled off but nonetheless unsightly. I am finding that that is not happening any more. And actually if you look beyond the P&Ps you acn see that the surface of the skin is in better condition. It might all go wrong again soon!

Just wish I could get rid of those P&Ps. I can live with a bit of redness. Thanks for your interest and will keep updating.

redhotoz

27th June 2006, 12:21 PM

Ah, you're right. I opened up 3 windows and had a longer look. Yes, it does look like your under skin is 'smoother', or at least not so raw looking.

Oh, I meant to say before. I sooo know what you mean about the deep p&p in the eyebrows and around the eye area. They can be so painful and really hard to get to.

Keep plodding along!

Jen

Tioh2001

27th June 2006, 05:29 PM

Simon,

In looking at your new pictures, there does seem to be improvement...especially in the cheeks. Plus, I don't see any pustules.

Just to help keep you motivated, did you see the pictures on the Demodex Solutions site of the woman with "severe rosacea"?

Her name is Hilda...and it took a year for her to get completely clear (although she had excellent results after 1 month). She looks incredible now. I hope this is in your future.

She also has many inspiring notes in the D.S. forum archives. She credits her full recovery from "pastulo-papular rosacea" to the zz ointment / acarid soap. She used no other products.

I'm keeping my fingers crossed you get great results too.

Heather

fut

27th June 2006, 06:43 PM

Things seem to be getting better. I am happy for you!

fut

30th June 2006, 02:46 PM

To keep hope strong, I managed to get my time machine working. I traveled in the future 6 months and look what I found, an updated pic!

http://img.photobucket.com/albums/v220/fut/future.jpg

Only the date is messed up..

redhotoz

30th June 2006, 03:24 PM

Nice photo editing work Fut! :)

Jen

fut

30th June 2006, 03:36 PM

And a year ahead in the future:

http://img.photobucket.com/albums/v220/fut/de485fd0.jpg

hencloud1

3rd July 2006, 10:21 AM

Hi

Thanks for the digitally remastered simon, looks good, i wish it was that easy in real life. maybe in 300 years it will be!

Anyway here is week three photos. So this is now 5 weeks after quitting antibiotics and going on a high protein diet.

Actually i must confess i have really struggled this week with the diet. infact i had beer and chocolate and rice and PIMMS and lemonade and wine and a few other naughties. I hope however that it is the overall diet that counts and not one off weak momants.

Jen- you must be very strong willed to keep it up. This is the problem with high protein diets like Atkins. Once you go into Ketosis (burning fat instead of carbs) it is a fine line you walk and if you do have carbs the body then goes into overdrive and wants to vacuum up as many as possible! Mind you i noticed you ahve a banana and other fruit in the morning, maybe that is the key!

Here they are;

http://i53.photobucket.com/albums/g79/hencloud/DCP_0020.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0019.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0021.jpg

redhotoz

3rd July 2006, 10:36 AM

Hey! The p&p are much less! Wow! Even with the cheats, huh! Looking good Simon!

I'm not perfect on my diet but I try to be as good as I can be. So I agree that the overall diet is the main thing.

I used to add a banana, kiwi fruit or berries to my raw egg drink but I don't do that anymore. That's how I started out, trying to ease into it slowly. I'm still not 100% on it yet! I hope to be able to be a little more relaxed with the diet as time goes on.

You know, it's kinda funny. I never really used to pay much attention to my skin before but now that things are improving for me, I am thinking I could go further and make it look even better than normal. LOL Ok, well we all have to be positive with these things! :D Pipe dream?

Jen

moc

3rd July 2006, 01:12 PM

I've been on this candida diet since Nov 2005. I think we all find it quite hard at first - to eliminate all that we need to from our diet. It's recommended you ease into it slowly, rather than try to eliminate everything at once - just to give yourself a better chance (pyschologically and, I guess, physically in terms of avoiding cravings) of sticking to it long term - so don't beat yourself up about having had your pimms, choc beer and rice - just try harder next time ;-) I am lucky because I have an iron will, and I was able to eliminate everything I needed to immediately because I was highly motivated - but that doesn't mean I found it easy!

In terms of my progress report on the effectiveness of this diet: I've gone from strength to strength - not only did my face lose its permanent redness and ezcema/acne some months ago, but this summer for the first time I can remember, I have a nice brown face from sitting in full sun exposure (with adequate protection of course). Previously, I would have turned as red as a beetroot. Another interesting thing is, I have also lost my chemical sensitivity - I can apply my suncream without it making my skin red on application. I couldnt do that last yr. I'm at the stage now where I am able to relax the diet a bit, and get no ill effects from occasionally eating/drinking things that previously caused me huge problems. But I've learnt such good eating habits from this that I think I will always be a healthy eater from now on.

Oh and I don't think I said Simon, I can also definitely see improvements in your before and current pictures, well done!

3rd July 2006, 07:37 PM

Nice improvement, Simon!

Jen, I hope you're not paying too much attention to your skin!

Here's an idea: smash all your mirrors. Do not look at your face.

Like clowns, skin conditions demand an audience and will likely pack-up their nonsense when you have ceased looking.

Less preposterous than it sounds. Give it a try. Apply topicals by touch etc etc

You are attacking rosacea in grand style! Here, perhaps, is another weapon for you.

redhotoz

3rd July 2006, 08:26 PM

LOL Very good GJ! No, I have not turned into a mirror-dweller! In fact, the mirrir is usually fogged over in the morning and when I jump out of the shower, wet and dripping, I grab my little bottle of Rose Hip Oil and put a few drops or so on my face.

For some reason, I have been given a lot of mirrors as presents. So it's more a passing by as I go down the hallway or something. Ah, I notice my face doesn't look too bad. Mmm, must be things are going well with what I'm doing. :D

Smashing mirrors brings 7 years bad luck...I think? Sooner pass by one and move on!

Weapon? Whoosh! Either it's because I'm tired or I don't get your sense of humour GJ?

Jen

3rd July 2006, 08:51 PM

Jen, the rosacea beast confronts you!

Your LED array is your shield.
Your healthy lifestyle is your sword.

Let this 'not looking in the mirror caper' be a pen-knife that you keep about you just in case things turn messy.

Mirrors remind the rosacean that they are a rosacean.
Not good.

I'm not being flippant here! In the past, when my discipline was strong, I did this very thing and the improvement in my mood and physical symptoms was marked.

redhotoz

3rd July 2006, 08:57 PM

Thansk GJ. Nice analogy and thought process. Will keep this in mind.

Jen

hencloud1

19th July 2006, 01:15 PM

Hi everyone

Here are some updated photos. So this is about 6 weeks after giving up antbiotics. I also went on a high protein diet for 3 weeks but have not maitained it since. What I can say though is that my skin has not gotten worse with change of diet.

My skin does feel better and I think there has been improvment. I still have the occassional deep pimple but they are not as aggressive or painful as previously.

My other routine includes ZZ cream at night and Acarid soap morning and night. Linda Sy vita oil and zinco in the morning.

The wedding went well although although I did eat some seafood and flushed but it could have also been the alchohol. I think seafood is a problem for me, anyone else have the same reaction?

I am not too worried about the redness just glad to get rid of most of the P and Ps which were starting to get me down. I hope it continues and will let you know of any further improvement or deterioration.

I put most of the improvement down to the ZZ cream. Thank you Heather for suggesting I give it a try. For anyone new to the forum reading this I urge you to post your photos and get some suggestions and advice from the other members. Many have been through the mill and know probably more that any derm or doctor and are keen and willing to help. Don't forget improvement takes time.

Simon

http://i53.photobucket.com/albums/g79/hencloud/DCP_0004.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0002-1.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0001-1.jpg

redhotoz

19th July 2006, 03:11 PM

Yes, I think I have also discovered a link with seafood for me but I am not sure whether it's the way it's cooked or the actual food. I love prawns but have been too scared to buy any of late because I don't want to push the boundaries too hard.

I can see improvement from the first set of photos you posted to this set Simon. I do hope everything keeps improving for you.

Jen

Tioh2001

21st July 2006, 04:27 PM

Simon,

The improvement in your skin is remarkable. You have made incredible progress in 6 weeks. I have absolutely no doubt you will be clear of all p&p's one day, if you continue using the ZZ ointment.

It truly breaks my heart that so many people are suffering needlessly and for so many years.... and all because demodex is still called a "dismissed" theory. Even the so called "skin experts" on the skinactives.com site call demodex a "discredited" theory (which makes everything they say suspect to me). So many studies have been done…so many PROVE the link between demodex and rosacea, and either state demodex causes a rosacea like condition or state DEMODEX CAUSES ROSACEA. The ignorance on this subject is never ending. Of course, part of the problem is "rosacea" has so many different symptoms. When someone says they have "rosacea", what do they mean? Do they have flushing....or flushing and p&p's....or no flushing and just p&p's...or no flushing, no p&p's and just redness and broken veins? All these difference variations are all diagnosed as "rosacea". Because there are so many symptoms of "rosacea" and each symptom may have a different cause, it just adds to the complexity of the issue. I am not saying demodex causes ALL rosacea symtoms, but it has been proven in many studies (and by me) to be a cause of some "rosacea" symptoms (i.e. p&p's).

Hopefully others suffering from the symptoms of demodex (although their condition has been diagnosed as rosacea) will see your pictures and decide to test the theory for themselves.

Of course, there are many things which can treat demodex. I have personally found nothing better than the ZZ ointment.

Keep the photos coming!

Heather

hencloud1

26th July 2006, 04:00 PM

Thanks Heather

i know i have a long way to go btu if i had been off the antibiotics for this long without the ZZ cream my skin would be a mess.

Interestingly i have failed badly on the high protein low carb diet but it doesn't seem to have affected my skin too much. I'm sure if I went on a saint like diet my skin wouyld improve further but it is quite taxing to remain on.

One question i have though is why does it take so long to get rid of the mites. Demodex say 120 days. Have there been any studies on this?

Tioh2001

31st July 2006, 04:51 PM

Simon,

It does take a long time to get Demodex under control. Although Demodex Solutions says you can kill the entire population in 120 days, that does not mean you will never have a problem again. It is my opinion that anyone who has an infestation (which causes visible symptoms) for a long period of time (i.e. for years), will probably have to treat themself for the rest of their life. The best we can hope for is to keep the population to the level where there are no visible / physical symptoms. But because there is a reason our bodies can't keep demodex populations in check (possibly a weak immune system), we will always be susceptable to further infestations (unless we rectify the weakness in our bodies which allows demodex to get out of control).

I just found this quote from the D.S. site, which basically says the same thing:

>>Research indicates that human demodex is a conditional-pathogenic parasite. The disorder occurs as the result of a large infestation of demodex mites on the skin, combined with a weakened immune system. The physical, chemical and mechanical stimulation of the skin from the mites can cause the immune system to react in extreme ways. Local allergic inflammation, erythema, papules and pustules are all reactions by the immune system.>>

As to why it is recommeneded to treat for 120 days...that is to ensure all the mites and eggs are dead. Here is a quote for the D.S. site:

<<<You have to treat until they are all destroyed. This can only be seen by doing a test. Even if the symptoms have disappeared, it does not mean that they are completely gone. If you discontinue the treatment before the mites have been eliminated, they will multiply again very soon. The treatment can take up to five months, but you will see the results much sooner and in most of the cases, when you also suffer from itching skin, this itch will stop after the first month. To eliminate the long demodex (folliculorum) you need continuous treatment for 90 days. For the short demodex (brevis) it will take 120 days. Since without a test you never know if demodex brevis is present yes or no it is advisable to treat always at least for 120 day's to be sure they are all gone, however, the majority of the mites will be eliminated after one month.>>>

Once you have completed the 120 days, you should the try using the ZZ ointment every other day....then every 3rd day....until you find the right maintenance schedule for yourself.

Heather

hencloud1

1st August 2006, 12:54 PM

Hi
http://i53.photobucket.com/albums/g79/hencloud/DCP_00601.jpg
http://i53.photobucket.com/albums/g79/hencloud/MyPictures0003-1.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0060.jpg
http://i53.photobucket.com/albums/g79/hencloud/MyPictures0002-1.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0057.jpg
http://i53.photobucket.com/albums/g79/hencloud/MyPictures0001-1.jpg

Here are some more updated photos taken today the 1 August 2006. I have also included the photos from my first post for ease of comparison. You should be able to tell the before and after photos.

I have not put any sunsreen or any other moistuiser on today. Just washed my face this morning with the acarid removing soap. These photographs are also taken at close distance with a flash so there is no hiding any imperfections!

My skin is still quite red but better with the P and Ps. The improvement has been slow but consistent. I still have the odd papule, very hard painful lumps very deep into the skin and that last for a couple of weeks. Thankfully these are fairly invisible unless squeezed.

I was out in the sun over the weekend and actually did a little sunbathing for about 5 minutes expecting my skin to go on strike and put short thrift to it but it didn't react nearly as badly as it has done in the past.

Simon

redhotoz

1st August 2006, 01:06 PM

Wow Simon! What a great improvement and hope it keeps improving for you.

Jen

Quench

1st August 2006, 01:48 PM

WOW!!!!! You are looking mighty fine! :D You must be thrilled with the results. Hope it keeps on working for you.

Tioh2001

1st August 2006, 02:39 PM

Simon,

Your new pictures are incredible. Congratulations on having the faith (and intellegence!) to stick with the ZZ ointment. Many people give up too soon.

Simon, I am sure your pictures will help alot of people. Have you considered posting them on the Demodex Solutions board?

Heather

matt

1st August 2006, 09:46 PM

New pics look good :wink:

hencloud1

2nd August 2006, 09:35 PM

Hi

Thanks for your comments and thank you again for your invaluable guidance especially to Heather and Jen.

I have posted the results on the Demodex forum and hope they will help other people.

I came back from a mountain bike ride this evening and had a beer afterwards and did not look like a beetroot!!

Simon

Twickle Purple

2nd August 2006, 09:46 PM

WOW! What a difference within a matter of months! You're face looks great.
Bonus about being able to enjoy that beer. :D

Twickle Purple

DukeCity

3rd August 2006, 03:09 AM

Simon, - You're making great progress, do you atribute most of the success to the ZZ cream? - Do you think you had a big problem with demodex?

claudia

3rd August 2006, 05:55 AM

Wow Simon --- very impressive results! I don't know how I missed this thread but looking at your photos I felt like I was looking at my own skin, especially when I've gone without antibiotic or strong acne treatments. I've had the same results with diet changes...helps some but doesn't totally take care of the deep p&p's. FYI --- I think the ZZ cream works so well because it has 5% salicylic acid...a known acne fighter. My skin can't tolerate salicylic acid or I'd be using it too! Re: mites...according to my pharmacist all of the antibacterial topicals and meds kill them. It just takes some longer than others (topical vs systemic). Going natural as possible is my eventual goal too but for now I'm taking a break with the meds. Just couldn't face the world full of inflamed p&p's!

hencloud1

3rd August 2006, 07:23 AM

Hi

I put the improvement down to the zz cream. I haven't been using anything else and even though i started well on the diet I lost track about 3 weeks ago and have been eating normally since which included alchohol, crisps and some chocolate etc the usual.

I never had acne as a teenager. My skin was peechy smooth. I developed some dry patches around the mouth at about 24 and then when I moved to Hong Kong I started to notice a rash creeping further up. From there things seemed to get worse and worse with redness and then the P and Ps. This to me does not sound like common acne. Why should I suddenly get acne at 27 years old.

I think the demodex theory has a sound basis and the development of my rosacea and P and Ps fits better with this theory than suddenly developing acne for no apparent reason.

I have tried metrogel and it just didn't work. It aggrevated my skin and made it worse.

When I first applied the zz cream it did make my skin worse and aggrevated the rosacea. I persevered though and this is the crucial thing you have to keep going with it. This did not happen with the metrogel and my rosacea was a lot better back then when I tried it.

At least for now I have seen some improvement. Who knows if it will all stop at some point but I am enjoying being off the antibiotics for once.

Simon

claudia

4th August 2006, 09:06 PM

Yeah - I'd have to agree that getting blemishes at 27 usually isn't acne! But it could be if you didn't also have the flushing...with the flushing + broken blood vessels then it's usually rosacea.

However there's lots of myths about acne affecting only teens. Adults can get acne too....due to changes in hormones, stress levels, how the body responds to stress, etc. Stress releases more androgens which can result in cystic acne for those prone to it.

I have rosacea plus cystic acne. I can't treat the cystic acne with the usual acne treatments or my skin will turn beet red. I used to be able to...benzoyl peroxide worked great for many years but now I'm too sensitive to it and it probably made the rosacea worse! So I treat the rosacea with metrogel + diet and ingest bactrim + spiro for the cystic acne.

Salicylic acid opens pores and kills not only acne bacteria but also mites so it's not just for acne. If your skin can tolerate it then you're taking care of both problems :wink:

Strive

15th August 2006, 12:01 AM

Dramatic difference! I also noted that the tissue on your nose seems far less swollen. All those rhinophyma folks might want to take notice, as well.

I hope you continue to post photos from time to time to see if there's any more improvement, or if you are able to maintain the current level of improvement.

hencloud1

16th August 2006, 08:39 AM

Hi

New photos for this week. These were taken this morning at 9.30. The date is 16th August 2006 about 2 months after quiting antibiotics and 1 month on the z cream.

http://i53.photobucket.com/albums/g79/hencloud/DCP_0008.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0007.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0006.jpg

Quench

16th August 2006, 08:43 AM

--> :o <--

Wow! Ab fab results!

redhotoz

16th August 2006, 11:50 AM

Looking good Simon!

Question:

I can't remember if you said that you have flushing episodes or not? If so, are these still the same or less?

Thanks

Jen

hencloud1

17th August 2006, 08:50 AM

Hi Jen

Yes I do have flushes. Mainly after sport, alchohol and shellfish. Thay are less severe now and the overall redness has diminished a little. I used to have the real classic panda eyes or the ski look which is very annoying. People ask you if you have been skiing. In the end I just used to say yeah and had a great time!

I am still pink and wondering whether a good diet will sort it out.

Simon

redhotoz

17th August 2006, 10:23 AM

I hate the p&p's the most but the redness is annoying too. I'm certainly not as red as I used to be (base redness) since doing the diet thing but I do have a lot of those little spider veins, which ultimately keep my face looking somewhat red. I think the only way to get rid of those is to have them zapped by laser but I'm a bit scared to have that done. Maybe one day I will pluck up the courage?

I bought some active ingredients from Skin Actives a while back which are supposed to help with spider veins but I really haven't given it a good go. Do you have the spider veins too?

Dr Cordain (on the RRDi MAC) mentioned a couple of studies that have been done on diet/Acne Vulgaris:

Smith R, Mann N, Braue A, Varigos G. Low glycemic load, high protein diet lessens facial acne severity. Asia Pac J Clin Nutr. 2005;14 Suppl:S97.

Smith R, Mann N, Braue A, Varigos G. The effect of a low glycemic load, high protein diet on hormonal markers of acne. Asia Pac J Clin Nutr. 2005;14 Suppl:S43.

(I can e-mail the PDF's to save you the search if you would like to read them).

It is possible that the RRDi will be able to instigate a study on diet/Rosacea through the same channels. Will certainly be interesting to read the results if it goes ahead.

Another question:

Do you find that when you flush, it is normally followed by p&p's? If so, do you think the ZZ ointment has slowed this down a bit?

Thanks

Jen

Artist

17th August 2006, 11:32 PM

Simon: Ohh that ZZ cream was just what your skin needed. Wow, it looks great! Congrats to you :D

Artist

s-kid

19th August 2006, 03:59 AM

Wow, you look great man. I really want to try the z cream I'm just still not sure :(
Hope you keep on improving.

lobster222222

23rd August 2006, 09:13 PM

hey hencloud
Any new pics? very interesting results, glad it worked for you.

tkr

3rd September 2006, 03:53 AM

SIMON, WANT TO KNOW HOW U R DOING LATELY?? i AM TAKING THE Z CREAM. YOUR RESULTS ARE REMARKABLE!!YOU LOOK FAB TAMARA

domo2727

3rd September 2006, 09:28 PM

yea man...HUGE IMPROVEMENT.....look much much better.

hencloud1

13th September 2006, 10:36 AM

Hi

here are some more photos taken today. Still seem to be doing well with the z cream every day but still experiencing some redness and a few pimples on the nose. I am going to try some changes to diet over the next three weeks to see if this has any effect. I will keep you posted.

Simon

http://i53.photobucket.com/albums/g79/hencloud/DCP_0006-1.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0007-1.jpg
http://i53.photobucket.com/albums/g79/hencloud/DCP_0009.jpg

redhotoz

13th September 2006, 12:57 PM

Thanks for the up-date Simon. I'm sooo pleased to see that things are still going well for you.

I started the ZZ ointment on 23rd August and have had a pretty rough time with it so far. Constant new break outs with really deep and sore p&ps. The last 4-5 days my face has also been really swollen. Thank goodness this now seems to be settling down a little. I think the new p&p's have been less over the last 2 days but my face still looks a mess. I will keep going with it though.

To be honest, I'm not sure if it was the ZZ that created the swelling or the fact that I was taking too many anti-fungals (ie. coconut oil, Pau D'Arco tea, garlic, oil of oregano drops and nystatin). I should only be taking ONE of the last three, NOT all three of them. So, when I cut it back to just garlic, things seemed to settle a little. Ahhhh....I guess I was just pushing too hard on the diet over all. I should take my own advice and go slowly! As Bee says, "more is not better", so now I truly understand what she means!!! I think taking too many anti-fungals at the same time gave me big time healing reactions...which nearly always come out on my face.

Anyway, I thought that was interesting. Whislt I thought I hadn't been doing anything different whilst trying the ZZ, I had forgetten about upping my anti-fungal intake. I do however think it was the ZZ that created the break outs. Who knows? Urgh!

Ahhh, over all, I just hope that my face keeps clearing up now. It's been a rough 3 weeks! Also, I haven't been using my red lights, which I know would have helped! Doh! Come on, someone give me a boot up my behind, cos I know the red lights help to reduce the inflammation when I use them!

Sorry, long post! You're looking good Simon! It's very encouraging!

Jen

s-kid

13th September 2006, 11:36 PM

Yeah man, still looking great. Keep us updated with your experience with the z cream too, Jen - I'd be really interested if it was to help.

Quench

14th September 2006, 09:35 AM

You're looking good. ZZ has been just the thing for you.

hencloud1

14th September 2006, 03:36 PM

Hi Jen

Glad to hear that you have opted to give the z cream a go. Don't worry too much, the first few weeks are the worst and I had more breakouts.

Once your skin starts to improve then it will just carry on getting better and better provided you keep going with the application once a day without fail. Aslo make sure it a fine layer on wet skin and don't paste it on!

I am waiting eagerly to see if this helps you and hope that in a few weeks you will be able to post some photos, bin the diet and the red lights and have a beer sitting out in the hot ozzy sun, fairdincum!

I am still on my first tub whcih is going to last me for nearly the 120 days. are you using the acarid saop as well. i think this has helped me a lot.

Good luck and keep us informed.

love Simon

redhotoz

14th September 2006, 03:49 PM

Hi Simon

I took your advice and have been applying a thin layer at night, on to wet skin. Yup, I'm using the Acarid soap too. Feels kind of harsh but I'll stick with it to see what happens in the long run. I may be on the up and up now. Hope it continues!

I'll keep the diet going though. That is something that I feel helps to keep some sort of basic control happening. I mean, like, I don't have to even consider trigger foods now. I made the plunge and bought some liver the other day. Marinated it in olive oil, garlic and red chillies for 48 hours. No reaction to the chillies at all. So for me, I think the diet is worth sticking to. I keep testing the boundaries.

As I've said, I've been lazy with the red lights but I so miss not doing it every night. I'll get myself organised one of these days. I'm hoping to have it mounted above my bed soon, so then I will have no excuse not to do it each night. Well, as long as my 2 year old isn't sleeping on my pillow! LOL

Will certianly post results either way.

Luv Jen x

11th October 2006, 01:05 PM

Hi everyone

These are probably the last photos I will post. I have made some adjustments to diet to see the effect and lost about 1.5 stone in the process. My skin is is still a little pink but the cheeks inside are much paler. Thai food is a real trigger I learnt this week. I have posted before and after photos for comparison.

Simon

Before June 2006
http://i53.photobucket.com/albums/g79/hencloud/DCP_0057.jpg

After October 2006
http://i53.photobucket.com/albums/g79/hencloud/DCP_0003-1.jpg

Before June 2006
http://i53.photobucket.com/albums/g79/hencloud/DCP_0003.jpg

After october2006
http://i53.photobucket.com/albums/g79/hencloud/DCP_0005.jpg

Before june 2006
http://i53.photobucket.com/albums/g79/hencloud/DCP_00601.jpg

After October 2006
http://i53.photobucket.com/albums/g79/hencloud/DCP_0004-1.jpg

redhotoz

11th October 2006, 01:42 PM

Thanks Simon, it's really encouraging.

I've been applying the ZZ for just over 7 weeks now and believe there has been some improvement with the p&ps. Although, every time I think things are headed in the right direction, BAM! Urgh! Overall though, I think I have less p&p's cropping up and they don't seem to last as long. My face does feel less oily and smoother than before. I've arked up the red light use but have been less vigilant with diet, although I still try to eat well, albeit not enough.

Hey, what I have noticed with the ZZ is that my eye lids and the skin around my eys have become extremely dry. Did you find this too? I'm not sure how to describe it really. It feels like the skin is being 'pulled' or stretched but I have 'baggy' eye lids and under my eyes. It's so weird. I'm trying some heavy moisturising eye creams out at the moment to try and combat this.

Anyway, I hope you still post from time to time and not ride off into the sunset. You are definitely looking great from where you started out! Fantastic!

Jen

Twickle Purple

11th October 2006, 04:04 PM

Simon, you look great, and very handsome too!
You must feel terrific with the great success you've had.
You're photos and posts have been very helpful and encouraging.
I hope that things stay the course now for you.

Cheers,
Twickle Purple

Quench

15th October 2006, 10:50 AM

What a fantastic success Simon. Thanks for sharing with us.

Could you let us know what foods are the real triggers for you? I'd much appreciate it.

Canarygirl

15th October 2006, 08:05 PM

This is really amazing, this thread! What a life-changing event for Simon.

I wonder if the ZZ stuff would be helpful for the non p&p type of rosacea as well...

Big congratulations and thankyou for posting your story, Simon. I hope it works for you too, Jen. :)

tkr

9th November 2006, 03:11 AM

Hey simon, just wondered how u are doin these days? Hope things are still great. I am over 2 months on z cream doing better. I wanted to ask you also if the redness is better, if you still use the z cream as a mainternance program, and the acarid soap. Do you still get the same flushing as u use to. thanks alot simon and you look fab! tamara :lol:

fra

19th February 2007, 10:31 AM

Simon really disapeared.Photoshop FTW

redhotoz

19th February 2007, 12:33 PM

Just thought I would up-date about Simon. Last year he contacted me to say that he couldn't keep up with the PM's he was receiving. He's a really nice bloke and we chatted via e-mail. He even offered his photos for the RRDi info brochure on Rosacea.

I think we should be happy that Simon found what worked for him and has moved on. Isn't that what we all want?!!!

Jen

Twickle Purple

19th February 2007, 03:55 PM

I think we should be happy that Simon found what worked for him and has moved on. Isn't that what we all want?!!!

And it was very generous of him to share the pix for others to see.

Good for Simon! Whoever mentioned photoshop is beyond cynical. :roll:

tkr

19th February 2007, 11:40 PM

Hey! I just wanted to add, good 4 simon, He was an inspiration to so many of us including me and I have the utmost respect 4 him. I am so happy he is healed and grateful he helped so many to say the least. Luv ya simon, tamara

hencloud1

24th May 2007, 12:39 PM

Hi all

I have been extremely busy at work and had child No. 3 so not a great deal of time left to do anything else. Thanks for all the emails. I have been continuing with the soap but have not used the z cream at all for about 3 weeks now and my skin has not deteriorated too badly. I notice that diet really helps to improve the skin ie lots of fresh and raw food is great.

I still have redness but nowhere near as bad and less people say hey you've caught the sun or have you been skiing. Dont mind the redness and I am just so grateful for having gotten rid of the P and Ps. I still get some but they are usually small and gone quickly whereas before they were painful and persistant and ugly.

If they come back I will go back to the cream but will continue with the soap as it is great anyway.

Take care

Simon

hencloud1

24th May 2007, 12:57 PM

I noticed that the original post was the beginning of June 2006 so I will take some more photos to show a 1 year on difference.

Simon

redhotoz

24th May 2007, 02:21 PM

Thanks for up-dating Simon. I've been a bit slack with using the ZZ of late as well but my p&ps are still minimal. Must have ridden the excess mites?! Whoo hoo! I will keep the ZZ on hand just incase I need to use it again though.

Congrats on the birth of your third child. I am sure he/she is keeping you and your wife very busy. Just a smile makes it all worthwhile!

Take care and I look forward to seeing your up-date photos when you get a chance to up-load them.

Jen

queta

25th August 2007, 10:50 AM

I would try low dose accutane. BTW, you are a cute guy!
Queta

queta

25th August 2007, 10:55 AM

Sorry, I didn't realize you were showing us before and after pics. When I suggested the accutane and said you were cute, I was looking at your first pics. Looking at you later ones, a person can really tell a big difference! You look great.
Queta

hencloud1

21st January 2008, 04:21 PM

Hi Queta

thanks for the compliments can I have your phone number!

I will post more photos soon but v busy. Skin is ok and use zz cream once or twice a month.

redhotoz

22nd January 2008, 01:58 PM

Way too wicked Simon (phone number - LOL)!

How's things? Still going well? Think about you often and wonder what you're up to.

Jen

pca_

31st January 2008, 08:46 AM

What is ZZ cream?

mandrakula

1st February 2008, 01:10 AM

Using isotretinoin ... is the most effective for rosacea. I used and has helped me a lot, it is very dangerous.

Removes the shins and reduces redness ... hopefully it serves

qscott86

6th February 2008, 05:20 AM

it's unfortunate you're so uneducated about antibiotics that you stopped them for risks that are actually extremely rare. your face looks a lot worse as a result.

redhotoz

7th February 2008, 03:26 AM

it's unfortunate you're so uneducated about antibiotics that you stopped them for risks that are actually extremely rare. your face looks a lot worse as a result.

WHAT???

Twickle Purple

7th February 2008, 04:31 AM

it's unfortunate you're so uneducated about antibiotics that you stopped them for risks that are actually extremely rare. your face looks a lot worse as a result.

That's a pretty confrontational, and ignorant post. Perhaps you should ask someone their reasons for making personal choices before making assumptions and attacking those decisions.

I should add that the person you make this comment too is more knowledgeable on rosacea treatments then most of us will ever be. As well as being kind and patient, and tolerant.

redhotoz

7th February 2008, 05:26 AM

Thanks TP. I feel the same about what qscott86 wrote. You have put it more eloquently than my "WHAT???" reply though!

qscott86, for the record, it is my personal choice not to take antibiotics as they have the following negative effects on me:

- nausea
- stomach upsets
- severe Candida (yeast overgrowth): that alone is harder to deal with than Rosacea!!! Unless you've had severe Candida, you have no idea of the negative side effects, which include lethargy, a run between constipation and diarrhoea, light flashes in the eyes, thrush down below and on the tongue and much, much more
- antibiotics are known to increase feeings of depression
- head aches

I could go on and on but I normally choose not to whinge!

Having said all of this, I recently felt the need to go back onto antibiotics to get my face under control until I feel strong enough to get back on my anti Candida diet. So, at the moment, all of those negative things are happening to me and it is NOT pleasant!!!

Whilst I had a lovely comment about my face from a stranger the other day (she had seen my face when it was bad) she also said that I was indeed a brave person to go out in public the way my face used to look!!! That she would never been seen out in public the way I looked!!! Double edged sword really! Positive yet negative. Not easy to handle.

Anyway, that's my 2 cents or more. We all have a hard time dealing with Rosacea. The last thing we need is a "confrontational, and ignorant post".

claudia

8th February 2008, 12:42 AM

Amen!

Just checking back in on this thread and I agree...we need to be supportive of each other in this life :wink:

c

qscott86

13th March 2008, 05:54 PM

I appologize ... that actually came out sounding more rude than I intended... unfortunately, you can't understand the tone with which someone says something with text only. I guess I just can't imagine stopping antibiotics when your face lookedm uch better with them. I understand your concerns about antibiotics, but much of what you said is speculative. There's NO evidence, btw, that depression is induced by taking antibiotics. If anything, I would think the improved condition of your face would make you less depressed. Anyways, I shouldn't have piped in... I can't expect other people to choose the path I would have.

Also, Im not a dermatologist, but it looks to me like you have more than rosacea going on. It looks like cystic acne. I've never seen rosacea pustules all over the face (even stretching up the forehead) like that. Are you sure you only have rosacea? have you tried accutane or IPL?

patty

13th March 2008, 07:10 PM

I've never seen rosacea pustules all over the face (even stretching up the forehead) like that. Are you sure you only have rosacea? have you tried accutane or IPL?

If you have never seen it, then it must not exist? I can attest to the fact they can and do appear on the forehead, and are very painful as well.
I think you need to review the photos, there are some very brave members who have posted their pictures of what a bad case of p&ps looks like.
I never had the courage to post mine.

hef

5th April 2008, 12:21 AM

man, your before and after pics are amazingly different. that ZZ cream really worked for you. congrats.

hencloud1

13th June 2009, 05:04 PM

it's unfortunate you're so uneducated about antibiotics that you stopped them for risks that are actually extremely rare. your face looks a lot worse as a result.

Hi everyone I have not posted for nearly 3 years. Thanks for all your comments. If you are going to have a 3rd child my advice is don't. only kidding of cousrse but they do absorb your time completely.

Hi Scott

My "education" as far as antibiotics are concerned is as follows;

They have relieved an enormous amount of suffering and saved countless lives.
They are antibiotics not antibadbiotics so they do not target just the bacteria that you want to get rid of
The GMC in the Uk has advised that they should not be given out randomly and without good cause. Why?
The advice given with the biotics I use list depression (mood swings), weakeneing of tooth enamel, yellowing of the eyes and increased sensitivity to sunlight as some of the side effects.

I have experienced all of these during the time on antibiotics I still have worn down front teeth from their continued use.

There is also concern about the effects on the kidney and liver. This is from long term use.

You admit in your later post that you are not a dermatologist but I presume you must be a Doctor of some sort to pass judgement on me in such a high handed manner.

My decision to stop using antibiotics is a personal one based on the information I have gathered during the 15 or so years I have had rosacea for. When on antibiotics I felt different, moody and worse when drinking alchohol. There was a definite difference to my outlook on life. I never had full on depression but my own instincts told me that popping pills every morning was not the answer.